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We ended up eating out last night. I'm not convinced it was a great idea, but we realized relatively late in the day that we had nothing thawed. There's a whole chicken in the freezer in the basement, but thawing that is going to take a few days. We went to Evergreen again because Scott really wanted to (Cordelia and I have both eaten there twice in the last four weeks) and because we happened to be out that way to visit a bakery that Cordelia was interested in. We all ended up with enough leftovers for a second meal, so there's that.

I used the c-PAP for three and a half hours last night. I'm not entirely sure why I didn't put it back on after I got up to visit the bathroom, but I didn't. My dreams were semi-anxiety dreams with lots of circling back to redo things.

I woke with a headache this morning. Caffeine and food seems to have killed it (it wasn't quite bad enough for me to take an Amerge. I only have two left. I might be able to get more during the next week, but I might have to wait until I see my doctor on the 28th).

I think I'm going to be spending a lot of time in the bedroom this weekend. Scott's watching The Defenders, and I don't want to listen to it because that's not much better than having to watch all the violence.

Our cleaning lady moved around all of the stuff I'd put aside to get rid of. I'm sure she thought that putting all of the clothing together made sense, but some of that stuff is wearable, and some isn't. The stuff that isn't has to go to a completely different place. The stuff that is wearable can go to the same place as the non-clothing stuff, and that's how I had it all sorted.

Today's goal is to finish filling out the various forms that we need to take to high school registration on Monday. A number of them are things that I need to consult with Scott and Cordelia about because they involve spending money on things that Cordelia may or may not actually have any interest in or on things that I know we want (like the yearbook and school pictures) but that we need to decide which version to get.
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I slept eight hours last night, all of it with the c-PAP, but it was very light and not very restful sleep because I still feel like I've been flattened and desperately want to go back to bed. My elbows hurt when I lie on my back for too long (I'm pretty sure that the joints are hyperextending) because there isn't a way I can keep my arms bent without making other things hurt even more.

My parents arrived here about 11:30, and we ended up going to the same Chinese place we went to the last time they came. I had really wanted to go to Totoro which is downtown, but losing that half an hour made it just not really feasible.

My mother texted me around 5:00 to say that the procedure went well and that they were already back in Lawton (two hours away).

Around 3:20, Cordelia, who was at the downtown library, called me to tell me that her best friend had hit her head while volunteering at the same camp where Cordelia did last week. This is the girl who had the bad concussion at the end of May and then needed another ER trip for a relapse two weeks later. I woke Scott and he drove over to get her because we didn't want her to have to wait there or to have to walk up that steep hill in the heat. Cordelia got home about thirty seconds after Scott got her friend here, and the two of them went into Cordelia's room and seemed to be happy. (We'd been kind of worried because the other girl looked kind of out of it and wouldn't talk to either of us.)

I had tried calling the other girl's mother and texting her mother while Scott was getting her but failed to reach her. She called us on the landline about fifteen minutes after her daughter got here. It took her another half an hour to get here because she had to take the bus. The girl said she'd called Cordelia because she didn't have any other numbers for our family, and her mother said she'd correct that oversight as she (the mother) has my cell, Scott's cell, and our landline numbers.

The last I heard, the other girl was doing okay, but that was last night. I kind of suspect that she's not at camp today, but I don't know.

Monday is going to suck hugely. I need to be up for Cordelia at 6:30 and do a fasting blood draw sometime after 8:30 or 9:00 (need to check when UHS opens) which probably means getting down there by bus. At 1:00 I have a uterine ultrasound, also at UHS. In the evening, we need to take Cordelia out to East Ann Arbor for a blood draw.

I wanted to do Cordelia's last night since the place was open until 7:30 (only until 5:30 today and so utterly impossible unless Scott was willing to do it before going to bed which he wasn't). Scott thought that we ought to give Cordelia at least a day's notice. I disagreed strongly, but he went ahead and told her right before he left for work last night. She spent the next hour having something approaching a panic attack and blaming me for it. I am decidedly unhappy with Scott about this.

Also, doing it last night would have made it more likely that, if she needs vitamin supplements or thyroid medication we could still manage to get the camp permission slips for those signed and turned in before departure. Cordelia's pediatrician requires a two day turnaround for those things, so Thursday is the absolute latest we can turn them in and still have them for the orientation meeting the following Monday evening (departure is at 8 a.m. on Tuesday with Cordelia needing to be there at 7 a.m. which is going to be vastly fun given that going by cab means a choice between risking being late and being almost certain to have a half an hour to sit outside the building before they let us in).

I talked to one of the camp organizers Wednesday afternoon about medications and such. She clarified that, although all the forms say that prescriptions need to be held and dispensed by either the nurse or the cabin counselor, prescription topical acne medications are not included under that. I'd have thought, given the age group, that those medications would be common enough to merit some sort of mention of them being an exception.

One of Cordelia's prescriptions has changed dosage, and the bottle is too full for us to be able to get a new one with the new dosing information. The camp is completely inflexible on that. They will administer medications exactly according to label no matter what other documentation you have.
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I really loathe dealing with Aetna member services. A call that should have been a five minute, yes or no thing took more than half an hour and left me without an answer. The person I talked to seems to have completely misunderstood what I was asking.

So I get to ask Cordelia's pediatrician to give us a referral for the blood tests the out of plan specialist ordered today. It's nothing very complicated. We're just trying to rule out underlying causes for ongoing fatigue before we write it off as a medication side effect. (Even though it probably is because it started when she started the medication several months ago.) None of the tests are things that ought to be controversial, just thyroid checks, vitamin levels (D, B12, and Ca2+), a comprehensive metabolic panel, and a CBCPD.

I was hoping that we could go to Taubman tomorrow for the blood draw because my parents could drop us off there on their way to Kellogg after lunch. Going on Friday will mean a bus trip. Going next week... Well, Cordelia won't be home until 4:15, so our options will be very limited. I think East Ann Arbor (not on the buses) does blood draws that late, but getting there would be nasty given construction and the time of day. Taubman's likely open until 5:00, but it's also awful to get to at that time of day. And I don't want to take Cordelia for a blood draw when she's dehydrated after more than 8 hours outside.

I don't think I'm going to manage the other urgent call today. I've got 40 minutes until that office closes, and I'm utterly fried. My head's hurting, and I want a hug and someone telling me that I did a good job to just get the Aetna call out of the way.
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Drat. I finally got all the insurance claims ready to mail, and I missed today's pick up. It's so unpredictable when the mail carrier will come by, that it's easy to think I'm in time and not be. I'm going to try to get Scott to drop the envelopes at the post office on Green Road when he wakes up. If he wakes in time, we'll be going out that way anyway to visit the bank. (He thought I'd already done the bank trip. Which explains why he looked at me funny each time I mentioned that we needed to go. Except-- Why on earth would I mention it if I'd already been?)

I need to remember that kiwi lime scented VO5 conditioner is something I'm allergic to. I forgot to record the scent that was a problem last fall, so Scott bought it again, and I used it again. I smelled it before putting it on, several times, and it wasn't a problem like that, only after it was on my hair. The scent got stronger at that point.

Cordelia's giving me a hard time about getting DVDs of things that I could watch streaming. I keep pointing out that I just don't think to turn on the TV unless I've got a DVD in hand. She took that as me not knowing how to stream things and was quite patronizing about it. I know how. I just don't think to do it 90% of the time, and when I do, it's generally at a point when I can't use the TV. (Streaming on my laptop makes doing other things while I watch considerably harder.)
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According to my SIL, our nephew is beyond tired of the whole Eagle Scout thing. He's earned it, but the troop he was with when he fulfilled the requirements folded before he could get the bureaucratic parts dealt with, and he got jerked around a lot as a result. The ceremony will be in August, and he's trying to persuade his parents that that part isn't necessary or that, if it is, it can be five minutes folded into his graduation party in July.

I asked the clinician at radiation oncology about the patient portal's inability to realize that having a diagnostic mammogram scheduled means that one does not need a screening mammogram. She told me that that's the result of a deliberate administrative decision that she doesn't agree with. There is no way to disable that reminder as long as the patient's file says they're female. It has to be gotten rid of by a clinician every single year, and doing that has been made deliberately difficult because people were lying about screenings having happened or having been scheduled just to make the notice go away.

The clinician said that she's been trying to get them to make an exception for women who've had double mastectomies because some of them find that reminder actively traumatic because it reminds them of what they've lost. Many of them feel it's a message that they're no longer really women.

For me, it's just an irritating untidiness, but it's active cruelty for some people.

Today's to do list )
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Yesterday, the forms for my annual long-term disability review came in. This is the LTD I have through my former employer, and they’ve always been more difficult to deal with than Social Security. I’m going to have to get the medical form to my psychiatrist so that she can fill it out. My next scheduled appointment with her is after the deadline.

There’s a longish form that I was supposed to fill out by hand and really couldn’t, not with the osteoarthritis, so I typed the questions into a document and then typed my answers. Typing is infinitely less painful than trying to use a pen/pencil. I thought about waiting until Monday to call and ask if they have the forms online so that I could type my answers that way, but I knew that waiting would mean worsening anxiety, so I wrote a draft of my answers last night. I’m letting it sit right now so that I can go back and add things that slipped my mind.

I considered having Scott write answers I dictated, but there was so very little space on the paper for my answers. For example, "Please provide us with a detailed description of your present illness or injury. Please list all physical and/or psychiatric/psychological symptoms, complaints, limitations." has three lines on the form, and I have twelve different things I need to list and detail. Each of those would take at least two lines and likely more.

Not counting the form and DW/LJ posts and emails, I did no writing yesterday. I just couldn’t focus enough to manage even a single sentence on We Are Where We Began, and opening something else seemed too hard.

We intended to go to the bank yesterday morning to move some money from Cordelia’s account to ours to cover some of the medical stuff for her, but we completely forgot. Scott thinks next weekend will be soon enough.

Cordelia’s got an orchestra concert this week, one with orchestras from all the local middle schools. She’s getting together with some friends for a couple of hours this afternoon to practice. Because her school is small, they’ll be performing with the other tiny middle school rather than on their own. Cordelia’s class went to the other school once, and the kids from the other school came here once. Cordelia says they sound really good together. The teacher for the other school’s orchestra is the woman who taught Cordelia in sixth and seventh grades.
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I got all three cooking chores done. I found, filled out, and mailed the forms for getting medical records. I also finished filling out the forms for Sunday’s appointment. Those opened in TextEdit and were quite long, so I ended up typing in my answers instead of printing and trying to write by hand. I think it would have taken days and a lot of hand pain to fill out the forms by hand.

That leaves the phone calls, two of which I might still be able to make today if I can find the wherewithal because they’re in different time zones, one of which has to wait for tomorrow because I don’t know what time zone they’re in, and the last of which would be relatively easy but definitely has to wait because I know that office closed an hour ago.. Oh, and my email which is stacking up rapidly. I’m at the stage where I look at my inbox and blink and fail entirely to process what I’m seeing. I know that most of these are things I can deal with easily, but right now, I just can’t.

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