the_rck: (Default)
I think I'm having allergy problems right now. I started sneezing mid-afternoon yesterday, and by evening, my nose was running, and my left eye was watering constantly. No idea at all why my right eye is clear, but I'm glad of that much. I got about three hours of sleep last night because, any time I moved, I'd start sneezing and/or desperately need to blow my nose. (I'm not sure Scott got much sleep either.) Basically, shifting around makes me feel an itching burn in my sinuses that's really unpleasant. I've gone through an entire box of tissues so far.

I may have to take my box of tissues and a bag to throw the used ones into and vacate the house this afternoon because I'm pretty sure that the stuff the cleaning lady uses will make things much, much worse. But I can't imagine what I'd do with myself for five hours, especially if it's raining.

I'm trying to think of anything that changed in the house yesterday, and I'm coming up completely empty. I also didn't eat or drink anything different or use different toiletries.

My anniversary present for Scott has arrived. I got him some bluetooth earbuds. His old ones died, and he needs them for listening to podcasts and audiobooks while doing things like mowing the lawn.

Cordelia has her volunteer training for working at the library this afternoon. I need to prod her a bit to make sure she actually eats something before she goes. She'll also have to leave earlier than she wants to be because of the bus detour (the training is at the Traverwood branch).

Scott will be going to bed early tonight because he'll need to get up around midnight to go to Top of the Park and get Cordelia. She has asked the friends she's going with if any of them can give her a ride home but hasn't gotten any answers yet. I offered to spring for a cab, but Cordelia balked at the expense. I don't know, though, $11 for Scott not to have to get up in the middle of the night? Sounds like a bargain to me.

I managed nearly 700 words on my NPT story yesterday. I still don't know exactly where it's going, though, and I'm a bit over 3000 words. This does not bode well. Then again, endings often come up unexpectedly and smack me in the face, so maybe I'll find the end soon.
the_rck: (Default)
I've got the laundry all washed, and one load is dry and upstairs.

I very much want to nap, but I need to be ready to leave here in less than two hours, and I don't think there's time. I also think that I'm too stressed to sleep. I'm delaying taking Ativan because I think that I will need it more for our nephew's graduation which starts seven hours from now than I do for the appointment.

I've had four cups of black tea so far today and 12 oz of Coca-Cola.

I'm trying to figure out whether or not to dress up before going to my appointment. I'm not sure I'll have time to change after. Of course, I'm also not sure I have anything even remotely dressy that fits and has short sleeves.

Also, it's kind of wet outside, and, depending on timing, I may have to take the bus home. I don't think it's currently raining, but it's threatening, and everything out there is wet from earlier rain. Our concrete front steps, which are usually grayish, are kind of brown right now.

I'm also not sure that I'll get dinner tonight. It will depend on when my appointment ends and how long it takes me to get home. I'm tired enough right now, that I'm having trouble figuring out what to eat for lunch. I've had some saltines, four almonds, and two slices of cheese.

I made two phone calls yesterday but also added more calls to my to do list. I think that one of them is going to be manageable today because I'm probably going to get voicemail. Maybe I can manage calling Medequip, too, but I'm not going to get upset with myself if I don't.

Cordelia enjoyed Greenfield Village but was annoyed by the gift shop because nothing had any sort of price tag. The only way to find out what things cost was to take them up to the register and ask, so the line was very, very long the entire time her class was shopping.
the_rck: (Default)
The concert only lasted about forty minutes. The eighth graders were obviously more experienced than the seventh graders, even to my ear. Cordelia says that they all know that most of the seventh graders just don't practice. The eighth graders do practice, but there are only nine kids in the orchestra class, three violins, three violas, two cellos, and a bass. Some of the songs the eighth graders did sounded to me like they were-- How to put it? Thin, maybe. As if they'd sound better with more instruments playing. Some of them also didn't sound right with just strings. The best number, in my opinion, was the 'honors orchestra' number. All the eighth graders, about half the seventh graders, and a handful of sixth graders put in practice time during lunch hours all term to work on just that one piece, and it worked.

Cordelia's friend, the one with the concussion, was at the concert. According to her mother, she's still having fairly bad headaches and still has some memory gaps. She has, for example, no memory at all of the class trip to Cedar Point. The day of the injury, she couldn't remember the names of any of her friends and, when asked to name her teacher, gave the name of the teacher they had in fifth grade. She's also not allowed to use any of the online textbooks yet which is a problem because they simply don't have paper copies available.

Cordelia got her assignments for science center camp volunteering, and they scheduled her for the week of choir camp, so she's trying to get that changed. It looks like they're trying to schedule her for every week in August which isn't going to be great because that's when she's due for her annual physical. I really don't want to push that into September given how difficult it will be to retrieve her from Skyline for appointments. Also, I want to consult her doctor about whether or not we should ask for some sort of accommodations with regard to gym class in order to minimize the risk of another dislocation. I'm pretty worried about that happening in gym, but the class is mandatory, and the only choice about it is whether to take it single sex or coed (I have no idea how they sort the genderqueer kids. The schools do acknowledge that such kids exist, but I don't think there's an option for them to be in a class only with each other).

I called the choir director as Skyline yesterday, as she'd asked me to, and got her voicemail. I left a message and haven't heard back. I waited until after the school day was over because I assumed that she wouldn't answer her phone while teaching.
the_rck: (Default)
I checked the shelves at the library yesterday and didn't find the CD that's been missing for months or the one that just disappeared. My best guess that both of them have fallen somewhere, either here or at the library, where nobody looks. I've searched everywhere I can think of here at home with no luck, and the likely places at the library aren't in areas where I can look. The new missing CD, naturally, continues the streak of me only misplacing CDs that I didn't enjoy listening to. It also can't be renewed, so I guess I'll be paying for it next weekend.

Mom arrived yesterday pretty much on time at 10 a.m. We talked for a little while then got in our car and drove to Bob Evans. When we got home, Scott worked on assembling the new grill he bought (the grates on the old one rusted through, and replacing them proved more expensive than buying a new, less fancy grill) while Mom and I talked, and Cordelia and her friend went to their volunteer orientation at the science center.

Mom mentioned having seen and loved Firefly and Serenity. That felt weird to me because she's usually down on SF stuff because of it reminding her of my father. She also talked about my step-father having a very traumatic encounter with an alligator while he was out kayaking. He went out alone for reasons that my mother wasn't clear on. She thought that part was unwise. Then he went to an area where he hadn't been before, with deeper water, and started seeing very, very large alligators. There was one on the shore that spotted him, rolled into the water, swam over, and then reared up on its tail to look down at him. He was sure he was going to die. Mom says he didn't stop obsessing about it for days.

I asked if it was likely a nesting mother, and Mom said that the time of year is right and that the circumstances rather sound like it.

I told Mom about the Sgt Pepper's/Star Wars (A New Hope only) mashup videos that I ran into earlier this week, and she wants the link. Scott adored the videos even though he only recognized two or three of the songs. The whole thing is here on YouTube. It's the entire album, so it's longish. People who know the album tend to be more impressed, but people who don't can enjoy them, too. They're captioned, too, which is rare for such things.

I made banana bread while we were hanging out. It's been years since I made it routinely, but I still remember the recipe without needing to open Joy of Cooking. The amounts of everything, including the final batter, looked too small until I realized that I used to make two loaves at a time and wasn't this time. The banana bread made a good snack for when the girls got back from orientation.

Cordelia tells me that she and her friend weren't the only middle school kids at the orientation. She'd been worried about that. I think that the fact that the camp accepts thirteen year old volunteers and almost no other volunteer opportunities do probably skews their pool younger. Cordelia's planning out her summer schedule with shifts at the library and at Food Gatherers. I'd probably have scheduled the camp first because that's two chunks of a week each. I wouldn't want to make scheduling those harder by committing to days here and there through the summer. She's already trying to figure out if it's feasible to do camp the week of her dentist appointment. She'd get done at 4:00. The appointment is at 4:15. If her father is home to drive, it's doable. If he's not, it's really, really not.

I wrote almost 600 words yesterday on chapter 7 of Auguries of Innocence. It needs some tweaking because I ignored one of the characters present, but it's progress. That chapter has been sitting for quite a long time. I still want to go back to my Fandom5K, but I'm also still not sure my level of exhaustion is conducive to being sensible about editing that. The currently posted version works reasonably well, I think. It could be better, but if I'm not physically/mentally up to it, the results won't be horrible or embarrassing.

Last night's experience with the c-PAP was better. At least, it didn't hurt. The hose was still a serious PITA, and I think that a four is too high for the humidity setting at this time of year, but I actually slept. I'm just low on sleep because Scott didn't let me go back to sleep after he got up. I may nap after Cordelia leaves for school because only five hours of sleep is just begging for a migraine by bedtime.

None of us have appointments today. Cordelia has PT tomorrow. I have two appointments on Wednesday and one on Friday. I'm hoping that this will be less stressful than the last three weeks were and that we don't add more appointments on for next week. At any rate, I have all day today and a good chunk of tomorrow to myself. Thursday is cleaning lady day, so even though there aren't any appointments, I can't really relax.

My chest pain is getting better. I made it worse yesterday by carrying a basket of laundry from our room to the top of the basement stairs (I made Scott do the up and down the stairs part) and by doing a lot of bending over to get things off the floor that I didn't want to be there when Mom arrived.

My hands have been hurting more. I think part of the problem is that I'm picking up and moving more moderately heavy things (dishes, empty or full, and hardcover books are a problem that way) and trying to hold open paperbacks to read them. The OT people said I should just switch to audiobooks. I pointed out that we own more than 5000 books. I didn't go into the other issues with audiobooks-- price, time investment, inability to 'read' them while other people are watching TV in the same room (or, often, while there are other people in the house at all). The next suggestion was a book stand. I've looked at those online, and they look pretty iffy. I don't think that buying one without a chance to try it out would be a good idea because the ones most likely to work for me are pretty darned expensive. Also, for in bed, I'd want one thing and for in the living room quite another.
the_rck: (Default)
The c-PAP last night was not a success. I put the 'discomfort' levels on par with walking home from the bus stop on a broken foot and sprained ankle. My skin actually felt like it was burning where the nasal pillows touched. I'm going to clean them, assuming I can find anything safely unscented that's also mild enough, and try again tonight. The nasal pillows I used at the sleep clinic didn't burn, so I'm hoping this is something that can be cleaned off. The weight of the hose was also painful if I slept on my side facing the machine, and the headgear is, sadly, designed to put velcro on my cheeks. I think I can deal with that last by wrapping it. I'm not sure with what, but there must be something.

I kept the rig on for about two hours, possibly slightly more. The first hour, I couldn't possibly have slept even if things had been comfortable because Scott was playing videos on his laptop (while next to me in bed) and because lights were on in the living room.

I wanted to stay in bed longer than I ended up doing this morning, but my mother had said she might drive over today, so more sleep wasn't a good option. As it happens, she's not coming until tomorrow (or maybe not at all. The check engine light is on in her car, and she doesn't want to drive two hours each way without being sure that the car will make it).

The A-Ride folks say, in their canned message, that one is supposed to allow an hour and a half to get to one's destination. Half an hour for the pick up window and an hour for travel time. It's a shared ride service, so it's entirely possible to need to go far out of the way to pick up or drop off other passengers. I've done six rides in the last two or three weeks. Two of them ended up shared. Every one of them, the driver arrived either before my pick up time or right on the dot. Yesterday, I was at Medequip eleven minutes after my pick up and forty nine minutes before my appointment.

Fortunately, the guy I was supposed to see was free to see me early. I was done by the time my appointment would have started if they'd stuck to the schedule. They don't have an actually waiting area. They tell people to sit on the various recliners that they offer for sale. I eyed those and realized that only one of them was actually the right size for me to be able to put my feet on the floor while sitting. That's out of probably twenty different chairs. Being 5'2" isn't that weird.

I tried to do some editing yesterday and discovered that I was too cranky to deal with my beta reader's perfectly reasonable comments without shooting back sharp comments. So I sent an apology and closed the documents.

Scott went out and picked up the library holds last night. I had one that was set to expire today, and we weren't sure there'd be time to get down there today if my mother visited. We'll still need to stop by there tomorrow, but even if Mom does visit, Sunday will be less filled with things that Scott has to do. Getting holds yesterday means dealing with two DVDs that can't be renewed. I suggested we try to get through them both today so that we don't have to take them back mid-week.

PT is claiming I was a no show on Thursday even though I called. They aren't open today, so I can't call and complain about that. I did call. I did leave a message. My cell phone shows I was on the phone with their number for a minute and a half at 6:30 a.m. on Thursday. I wouldn't argue if they said I didn't give them twenty four hours notice, but I was not a no show.

The chest pain is less than it was. Breathing is almost never hurting now, and that was the most worrying bit.
the_rck: (Default)
Damn. I'm going to have to call UHS tomorrow and hope they can fit me in around my other appointments this week. The right side of my chest is hurting and has been getting worse for the last four days. Up until today, I was assuming it was a pulled muscle since it mostly hurt when I reached for things or picked up something hardcover book or full kettle heavy, but it's been hurting to breathe off and on today, and the part of my chest between the collarbone and the actual breast on the right side is tender to touch. The other areas that hurt when I move/breathe are not tender to the touch, but they very definitely go around the side and up into the armpit.

It might just be fibromyalgia fuckery, but it also might be an infection of some sort. I don't have a fever, at least, but I'm concerned about the feeling of pulled muscles in my chest when I breathe. The list of potential causes of right side chest pain that I found is almost all things that seem pretty unlikely because of the location.

An appointment tomorrow might work since my potential conflict is anything after 3 p.m. If they can get me in earlier, it might work. Or maybe Thursday afternoon. PT will end about 11:30 Thursday.
the_rck: (Default)
I think the additional memory is helping my laptop run better. Messages is still broken in that it can't deal with AIM, but everything else has been much more stable and much less prone to short freezes. I've had three sites that usually give Firefox fits open in tabs for two or three days now without getting script errors. I've got ten programs running, including iTunes which usually makes all sorts of trouble.

I more or less fell over from exhaustion yesterday. I'm not looking forward to the next couple of weeks which promise to be almost as hard as the last two weeks. I made next week harder by scheduling with Medequip for Friday morning to get the c-PAP fitted/set up. I didn't have any other appointment that day, and I really, really need to do this.

My primary goal for today is to nap. I'd like to finish making up a character for Scott's Firefly game and also sign up for Not Prime Time. I think the latter won't take too long because I can mostly just copy and paste. I'm just putting it off in case someone signs up with something I know I can write but hadn't intended to offer. I'm unlikely to edit my offers after I sign up, just because that would be extra effort.

I have figured out what I need to add to my Fandom5K story to tie it up nicely (it's fine as is. This would just make it better). My hope is that this will only add one to three thousand words. Longer would be fine as long as the words come quickly. I just don't want to spend more than a day writing the scene.

The FFnet troll has sent two more messages, this time trying to tell me that my plot has holes in it. The name on the comments is different but still a guest, but the (lack of) punctuation and capitalization is the same as is the general vocabulary. My suspicion is that they're trying different attacks, trying to see if they can come up with one that will make me respond.

Scott thinks I should pat the troll on the head and tell them that the name change is really cute in the same way that a toddler hiding behind a three inch sapling and expecting not to be seen is. I fail to see why I should take that much trouble over it.

I'm kind of curious at this point as to how many other angles of attack they'll come up with. I almost need a bingo card. Wonder if I can get a blackout?
the_rck: (Default)
Four more PT appointments scheduled, two for next week and two for the week after. That makes two appointments for me, two appointments for Cordelia, and the election on Tuesday to deal with. I think that I'll wait to go vote until Scott gets home. There's unlikely to be a line at any point during the day. The only thing on our ballot is the sinking fund millage for the schools, and I'm inclined to think that functional plumbing and roofs that don't leak are important things for schools to have.

The week after next will have three appointments for me and one for Cordelia plus Cordelia's class trip to Cedar Point which will require getting up extra early. Two of my appointments that week are the same day and in the same building but at least two hours apart.

I ended up taking a cab home because I was too tired to deal with staying out any longer than I absolutely had to, not even to get myself lunch out.

And the troll has sent me six or seven new comments, still all on the same story. I haven't looked at all of them, but the ones I did were complaints about YMMV aspects of the story, specifically characterization. If those had come first, I might have assumed a genuine desire for conversation or at least no ill will.

If this goes on, these comments will contain more words than the story. It's also very clear when the troll has leisure time. The last two days, there haven't been comments before I left for my appointments but were when I got home. Two more arrived shortly after I got home today, so it seems to be a two or three hour window.

I'm kind of beyond the pointing and laughing stage. This is tedious.
the_rck: (Default)
Yesterday was my last OT appointment, and it was shorter than my scheduled time because we'd covered everything on my list by forty minutes in. I got advice on a couple of things that are not currently problems but were big issues when my hands were at their worst. I thought I'd ask just in case they're ever issues again.

Blue Cab seems to be doing a better job of running the A-Ride than Yellow Cab ever did. Every pick up was within five minutes of the start of the scheduled time (they set a half an hour window), and the cabbies were all friendly. The policy has changed from the drivers having no obligation to help passengers reach the cab to them being required to provide assistance from door to door if it's needed. They're not allowed to go inside, but they're not dumping mobility impaired passengers in awkward places.

Today, I have what might be my last PT appointment but also might not. I rather suspect not. My current intention is to take a cab there and the bus back. I think that I'll take the inbound #23 and transfer to the outbound #22. The stop for the #22 is about 2/3 the distance from the house as the stop for the #23 and doesn't require climbing a steep hill to get home. It'll add about half an hour to my trip, but as long as things don't change, I think I can handle that.

I had anxiety issues yesterday afternoon and evening that I couldn't explain except that maybe I felt guilty for not managing to fit in all of my PT exercises. Some of those require lying on the floor, and I didn't want to do them within an hour or so after eating and really couldn't do them while the cleaning lady was here. I probably could have fit them in after she left and before dinner, but by then, I was having reflux issues that made lying down very unappealing. I did do most of the exercises that I could do sitting or standing, though.

I woke this morning with a headache, but food and caffeine seem to have gotten rid of it. I haven't done any of my PT yet because I want to have all of my energy for going out. I'm still very tired and kind of groggy. I don't think more food will help, and I don't have time to make more tea or coffee. I know there's a coffee kiosk somewhere in Taubman (or there used to be), but I don't want to do the walking required to see if I'm remembering correctly. Plus, there's no guarantee that more caffeine would do anything but make me need many visits to the bathroom which would be pretty inconvenient during an hour long PT appointment.

The GSA at Cordelia's school is doing a reading of I Am Jazz for the 4-8th grades today. It's a picture book, so the reading shouldn't take too long. They'll have a panel discussion afterwards. Cordelia's really looking forward to it. She'll be reading the book. I'm not sure if she'll be part of the panel or not. I don't know if any of the kids are out as trans, but with forty to eighty kids in each grade and nine grades, there's pretty sure to be a kid or three somewhere in the school who is trans even if they're not out. My guess is that the reason for having only 4th through 8th is a combination of space limitations and the attention span for the panel discussion and probably also that explanations that suit five year olds aren't going to work for thirteen year olds. That last probably could be dealt with by an experienced presenter, but this is all kids ages eleven to fourteen who've never done anything of the sort before.
the_rck: (Default)
Pretty much all venting )

The chores I did yesterday were enough to make the tendinitis act up again, so I'm not looking forward to the walking I'll have to do today. Right now, my plan is to take a cab to UHS, get lunch somewhere nearby after the appointment, hang out somewhere (Espresso Royale, probably) until about 2:00 and then get the bus to the hospital. PT is 2:45 to 3:45, so I'll just wait for Scott to be able to pick me up after work. I really ought to make a lunch and take it with me, but I don't want to deal with that.

I've tried ice on the tendon. That hurts all the way up my leg. Right now, I'm applying heat. That's making my calf muscle ache, too, but I'm hoping it will loosen the dratted thing up enough that I can stretch it properly.

My left elbow has started giving me trouble. The pain is at the back of the joint and fairly pinpoint. It is, sadly, probably more tendinitis. I think it's stress from trying to compensate for not using my hands in the ways I normally would.

I didn't go with Scott and Cordelia to Cordelia's PT appointment yesterday. I was so very, very tired that I thought that staying home was a good idea. I haven't generally had the option, so that was nice.

Scott's avoiding pork products now. I'm not sure if he's going to try one more time to make sure that he didn't just have a bug last weekend or if he's just cutting all of that permanently. I think that, if it is an allergy, one more exposure won't make it suddenly as bad as the beef allergy, but I know that such things get worse with more exposure, so this isn't going to be something he can indulge in occasionally.

I'm working on clearing out all of the frozen stuff we've got that contains pork. Scott buys potstickers and spring rolls frequently, and he never looks to see what's in them as long as they don't say 'beef' on the front. It's resulted a few times in me not having easy options for feeding Cordelia's Muslim friends, so I've learned to check the freezer ahead of when I expect to have them over to see if I need to make Scott go out and buy something that will be okay.
the_rck: (Default)
Good news on the hysterosonogram-- No fibroids, no polyps. Things aren't quite right in ways that the doctors put down to the Tamoxifen, so they want me to have another scan (not clear if another hysterosonogram is needed or if a uterine ultrasound would be enough) in three or four months. I've got moderate sized (about 2 cm) simple ovarian cysts on both sides. If I understand correctly, because of my age and the size of the cysts, those will have to be rechecked every year unless they go away.

There's some confusion about the appointment I have scheduled for Wednesday morning. UHS's system doesn't show any such appointment ever existing, but the patient portal still shows me that I've got an appointment there at 10:50 Wednesday morning. It popped up with instructions for the appointment last night, and I still have the upcoming appointment reminder I got a few days back and the appointment scheduled message. I would rather not need to go to UHS Wednesday morning, but I also don't want to deal with a missed appointment fee or not go if the doctor has something to say.

I crashed hard yesterday at about 4:30. I don't think I slept, but I also wasn't awake. I lay in bed and didn't move much at all for about three hours until it was absolutely necessary for me to eat something and take my dinner time medications. After that, I ended up staying up until my normal bedtime.

I got a response from my email to Interlochen. They do have accessible cabins, and they supply golf carts for campers who can't manage all of the necessary walking (there's a lot of walking. Certainly more than Cordelia could manage day after day on crutches). My impression from what the contact person said is that they put in temporary ramps for whichever cabins need them, but I could be completely wrong.

Scott and I finished filling out most of the forms last night. There's one more that we need to get Cordelia's doctor to sign before we turn it in, but that one doesn't need to go in until June. I had been under the impression that it wasn't mandatory, but apparently it is. It's a permission slip for giving Cordelia specific OTC medications as needed. The form says they'll only do it twice a month without specific other forms from the doctor filled out for each occasion which seems kind of silly for something like, say, ibuprofen for menstrual cramps.

I need to do some laundry today, and the trash needs to go out. I've already done several minor chores, so I'm resting a bit. I kind of want a nap, but I think I need water more than I need sleep because I had very little water yesterday.

I have some ideas for things I can add onto my Fandom5K to make it work better. My first reader pointed out that there's a good bit of time between the deadline Saturday and the reveal, so I can edit if I come up with more text or change things or whatever. I'm very used to thinking of posting deadlines as the end. One of the changes I should make will be painful because it will involve changing POV for some events and losing a few lines that I love. I don't usually have to do the killing my darlings thing, but this time, I need to.

The OT yesterday showed me some hand flexibility exercises. She also showed me some massage techniques for my hand and then told me that I can't do them because the pressure required would be bad for the thumb on the hand doing the massage. Given that, I'm not quite sure what the point of showing me was. I've got a short list of (hopefully) not too expensive things that might help with the exercises or with tasks that I need to do.

She had a pen that she thought might be easier for me to use. Sadly, I couldn't even get it all the way to the paper. It was too long for me to hold it the way I was supposed to, and the way I need to rest my hand to deal with the tremor was an issue, too. Basically, the things I do to work around the tremor actively conflict with the things I should do for the osteoarthritis. Since I can't write at all without dealing with the tremor and can cope with the osteoarthritis long enough to, say, address an envelope, the tremor coping techniques win.

She also showed me their pain scale which doesn't even remotely match mine. For me, pain bad enough to provoke swearing is a six or a seven. Pain bad enough to want to take medication and/or to be constantly aware of it is a three. For them, swearing is a nine, and medication/awareness is a five to a six. I kind of looked at the chart and thought that it was really for people who don't normally experience pain. It basically stretches out the lower end and has no room at the top for severe pain. I've always assumed that anything that hurt enough to rate a ten would kill me because my body couldn't handle it and that a nine meant pain so bad I passed out or mentally checked out in some other way.

ETA: And the nurse from the gynecology clinic just called to say that, oh, she was wrong and I do have an appointment tomorrow. She thinks I should keep it, and I think her reasoning is sound. If nothing else, I can get clarification about what additional scans I need when and see about scheduling anything that needs doing soon. I think that I would also like the gynecologist to talk to the oncology folks. The pain issues had inclined me heavily toward not going back to the Tamoxifen, and I think this is more on that side of the scale. I'm also kind of curious as to why the radiology report said I was post-menopausal when everyone else keeps saying that I'm not there yet (all of them use 'perimenopausal' except my primary care doctor who hates the term while still acknowledging it as a stage of life. I think she considers it too medically imprecise to be useful).
the_rck: (Default)
I’m feeling really really terrible right now. I don’t know if it’s some sort of post-stress thing or if the fact that I won’t have results from yesterday’s test until Monday at the earliest is smacking me hard. I woke with a headache that started heading very definitely migraine-ward with nausea and a desire for complete silence.

I took a cab to PT, and that meant that I really didn’t have much pain until I was walking back out of the hospital. I guess that from the entrance of the hospital back to the PT office is the distance I can walk without setting things off. The therapist taped things again, but that only held until evening before friction between my leg and the couch rolled the tape beyond remedy.

Scott’s sister picked me up about twenty minutes after my appointment, and we went to the Syrian place for lunch. They didn’t have the cauliflower salad that I love. The woman behind the counter said that it’s because cauliflower is too expensive just now, about $5 a head. She said she tries to buy local, from the Farmer’s Market. She said that a head of cauliflower makes about 1/2 pound of salad, so that she’d have to charge about $20 a pound.

I drank forty ounces of water between when Scott’s sister dropped me back at the hospital and when they called me back for my scan. I met [personal profile] evalerie upstairs about twenty minutes before the appointment, and we headed downstairs into the maze of corridors. The signage was adequate, so we didn't quite get lost, but my heel was hurting a lot by the time we made it to the right clinic.

I didn't feel like my bladder was full when they called me back, but apparently it was full enough because the technician said everything was good. The entire procedure took an hour because there were three different scans. The second and third would only work if my bladder was empty which, well, forty ounces of water. The third bit was a two person job with a physician doing part of it. That was painful, not beyond bearing but unpleasant.

They didn't tell me anything about what the scans showed, just said they'd send the results to my doctor and that they should be there by my appointment on Wednesday. I'm not happy about this because the doctor saw the scans. Technicians aren't allowed to say anything at all about what they see even if they know what they're seeing, but doctors are. I really don't want to wait until Wednesday.

In the evening, I got a message from the patient portal that test results were in. I was pretty cranky when I discovered that it was the completely unsurprising negative result on the mandatory pregnancy test they had me pee in a cup for before the third scan.

The appointment running so long meant that [personal profile] evalerie would be cutting things uncomfortably close if she tried to take me home before going to pick up her youngest. I ended up waiting about half an hour for Scott instead. That wasn't a big deal except that my phone was nearly out of charge. I was really angry when I realized that the dratted thing was downloading app updates when it had a 20% charge. It wouldn't let me stop the updates, either. By the time Scott arrived, I was at 10% and the phone was complaining about everything I did with it (just texts to Scott to tell him where I was, texts from Scott to let me know when he'd arrive, and an occasional check of the time). I had turned off the wifi connection to prevent it from starting any other downloads or from using charge maintaining the connection.

Scott wanted to go to the local March for Science, but what with things that have to be done and me feeling really, really terrible, there was no way to make it work. The Ann Arbor march started almost an hour ago. There's a march in Ypsilanti at 3:00, but I kind of suspect he won't make it to that, either.
the_rck: (Default)
I’ve got half an hour until the point when the A-Ride cab might arrive. I think I’ve gotten the absolutely essential pre-cleaning lady chores done. I hope so because I’m probably not going to have time between when I get home and when she arrives.

After PT yesterday, [personal profile] evalerie and I had lunch at Juicy Kitchen which is a hole in the wall vegetarian place out on Maple Road. The menu is small and leans heavily on eggs, so there were a lot things I just couldn’t eat. I had a dish with mushrooms, sweet potatoes, kale, and quinoa in some sort of vinegar that I quite enjoyed.

I did six loads of laundry yesterday. Today, I think I’ll get away with three, and one’s drying while a second is washing.

We only had one person over last night. Two of the other people were sick, and the third had something going on for the older of his two kids and Science Olympiad. I tried to go to bed at 9:00, but Cordelia kept checking on me until she went to bed at 10:00. I didn’t actually sleep until after Scott came to bed and (finally!) shut down his laptop.

I slept pretty soundly. When Scott’s alarm went off, my lower back was hurting, and I’m not sure why. It has to have been the position I slept in or the level of inflation of my side of the bed.

I have two appointments today— OT at a new location with, I hope, someone who actually does what I need. Then, I need to get to central campus to see my primary care doctor. I’m kind of spacing out on what I should talk to my PCP about. When I made the appointment in February, I was wanting PT for my Achille’s tendon and OT for my hands.

Medequip called yesterday, but I was on my way to PT, so I couldn’t even think about scheduling. They’re not willing to see me at any point when Scott would be available. I will have to dig up a phone number for them and try to call them later. (They called me from a generic number that all parts of the UMHS use to mask their real phone number. One can’t actually get anywhere by calling it back.)
the_rck: (Default)
Cordelia’s PT yesterday involved a lot of exercise rather than just stretching and loosening the muscles in her thigh. Her PT homework is also aimed more at strengthening this time than at stretching. The therapist asked her where she stands on surgery. She says she hasn’t decided yet but that she very much doesn’t want this to happen again. She is pretty adamant that she doesn’t want the more extreme surgery, but I think that, if her aunt says it’s a good idea, we might talk Cordelia into it.

The insurance company tells us that our out of pocket for the basic surgery will be $1000. If we do the more extreme version, it will be $2000. We’re not telling Cordelia that because she will panic. Right now, we’re thinking to draw the money out of an investment account that Scott’s parents set up for Cordelia when she was born. I don’t know how much is in there or what the penalties will be for pulling money out before she’s of age, but… This really needs doing.

I’m still waiting to hear back from the choir teacher at Skyline about potential accommodations at Interlochen camp if Cordelia’s on zero weight bearing or even just using crutches when camp time arrives. Not being able to bend her leg will likely be a transportation issue as it’s unlikely that the buses they’ll be using have seats that will allow for that without her either sticking her leg into the aisle or taking up multiple seats. It’s a four hour-ish drive up to camp, so I’m not willing to ask Scott’s parents to drive her up and back (and they are often out of state during August anyway).

One nice thing— The forms for camp specifically say that cabins will be assigned by a child’s ‘consistently asserted gender identity,’ and there’s an option to request a gender neutral cabin. I’m more than a bit off put by the other cabin options because ‘all biologically’ male or female sounds exclusionary. Does that mean that trans and agender and so on kids are only allowed in gender neutral cabins? But the form asks about gender identity with a fill in the blank and doesn’t ask if the child is trans. Cordelia checked no preference on the cabin options. She says she won’t be fussed unless she’s stuck with only boys.

I’m pretty sure I didn’t check off all of my dailies on Habitica yesterday. I haven’t opened the site to look yet. I think, if I did miss, it would be two dailies and not more than that.

I’m making slow progress on deleting my LJ entries (I’ve promised not to delete entirely until mid-May). I’ve just got 2016 and 2017 left, but that’s more than nine hundred posts.

I’m now scheduled for OT again, starting tomorrow morning. The location isn’t particularly convenient, but I should be able to get the A-Ride for it because it’s definitely not on the #22 or #23 route. It’s on the other side of town entirely. I’m not sure what that particular bus route is called now; it used to be the #6. My current plan for tomorrow is the A-Ride to OT then walking two blocks to the stop for the AAATA shuttle that runs from Wolverine Tower to central campus. My appointment at UHS is two hours after my OT appointment is scheduled to end, so even if I have to deal with bureaucratic nonsense afterward, I should have more than enough time. I’ll pack a lunch to carry with me so that I can eat while I wait for the bus.

Okay. Time to call and schedule the A-Ride. They should be open for business now.
the_rck: (Default)
I’m now over 3000 words on my Fandom5K story. I think I’ve finished the backstory/set up. I just have to find the right transition to move forward.

The folks at oncology have told me to go ahead and stop the tamoxifen for a few weeks to see if that changes things. If it doesn’t change my pain levels, I can start it up again without hurting the course of treatment. If it does help, well, I almost certainly won’t start it up again.

We’ve firmed up plans for Easter dinner. We’re bringing a green salad and a serving of some sort of meat that I can eat. We might or might not bring something else. We’re to be there 2:00 or a little later. The hosts will get home around 12:30 and thought 2:00 was reasonable in terms of them having some time.

The library will be closed on Sunday, so we don’t have to work around that. We’ll likely go in on Saturday because there’s a hold Scott wants that expires then.

I’ve got ten minutes before I need to leave for PT. My plan is to try the bus, just to see how walking to the stop affects my tendinitis. I’m hoping it will be a minor thing because the bus is free and doesn’t require someone else carving out time to transport me. [personal profile] evalerie has expressed willingness to help as she can, but this is every day with two appointments some days.

I have off loaded some of the phone calls that relate to Cordelia onto Scott. None of them should take very long. The only complication will be if we need Cordelia to sign a release in order for the surgeon's office to tell us the procedure codes for the possible surgeries, and we want to get her to sign a release anyway so that I can call and do things like ask what time her appointments are.

I'm going to hold off on scheduling anything with orthopedics until I find out how stopping the tamoxifen affects my hands. I'd really hate to jump into unnecessary surgery. The tamoxifen didn't cause the underlying osteoarthritis, but it may be making the pain levels worse. I'm not holding my breath that it will be a magical solution, but I might get lucky.
the_rck: (Default)
I’m feeling really overwhelmed right now. I’ve made the OT appointments, and they’re one a week for the next three weeks (including this one). They are, sadly, at Domino Farms, so I have limited options for getting there. I’m going to try to get my act together to see if the A-Ride does go there. My neighbor says that her mother has used it to get there, but that doesn’t mean that I can. I’m not supposed to be able to use it for anything on the Plymouth Road bus route, and someone being nasty might take the fact that the nearest stop is more than a mile away as insufficient to count the place as not being on that route. Domino Farms is right off of Plymouth Road. It’s just that the bus doesn’t go out that far.

The PT appointments are at the main hospital, and I definitely can’t use the A-Ride for getting there because the Plymouth Road bus stops right outside the main entrance. Scott will be able to get me home from two of the appointments at the hospital because they’re late enough in the day that I’ll be done around when he’d get back to town anyway.

I wrote about 1000 words last night. 940 of them were on the Fandom5K story, so I’m nearly halfway to minimum word count. My current goal is to get a bus draft as quickly as I can and then polish it as much as I have time for after I post it. Bad news about the various uterine tests would likely leave me with major problems making the deadline, depending on what treatment was recommended and how soon.

My mother emailed me this morning to let me know that her cell phone has been stolen. She mainly lost phone numbers because she’d been clinging to an ancient phone that could make calls and send texts and not do anything else at all. She’s hoping she can still avoid the smartphone trap.

Scott’s sister just called, and she can’t come to the hysterosonogram appointment with me. She can, however, take me to lunch in the 3.5 hour gap between PT and that appointment. I was mostly worried about being alone at the hospital for that time. After how I melted down before last year’s mammogram, I’m trying to make sure I have someone around in the time leading up to similar tests. (Which is why I’m so hugely grateful that [personal profile] evalerie was able to be there with me yesterday.)

My gynecologist sent me a message to say that my hormone blood tests show me as perimenopausal but not yet fully menopausal.

I really, really want a nap right now, but I think it will be Saturday before I can fit one in. Instead, I’m going to cat wax a bit by looking online for plastic storage bins that might fit under my bedside table. Amazon mostly seems to sell those in batches of six, and I only want/can use one, but having some specific names might help when going to Target or Meijer or wherever nearby.

I’m kind of hoping the Med-equip is its usual efficient self and doesn’t get back to me until some time in May. I really, really don’t have time or resources to try get out there for a c-PAP fitting and all that.
the_rck: (Default)
Health related stress )

Anyway, between this and having a fic to write, I probably won't be answering comments with any regularity until the end of the month or so.
the_rck: (Default)
It snowed yesterday and is still quite cold today. I don’t think any snow stuck, but it was kind of disconcerting for April. Also, the folks two houses down were having a very, very tall tree taken down yesterday, and I really felt sorry for the crew doing it because it was rotten weather for it.

Of course, the noise of the tree removal started well before Scott and I had planned to get up, so we were a little cranky about that.

The next three weeks look really unpleasant. Four medical appointments next week, four the following week, and three the week after that. And that assumes nothing else has to be scheduled. Of course, if I cancel the PT for my back, two appointments a week go away, and my back is a good bit better. I just want to make sure it doesn’t get bad again, and maybe I can get them to address my hands and my tendinitis. It’s still two weeks before I can see my doctor about those last two. I just don’t know if the PT people can address problems that aren’t part of the actual referral or if insurance won’t pay for that.

Scott, Cordelia, and Cordelia’s best friend are making the rounds of the local thrift stores. Scott has texted me that the girls are buying a lot of stuff. He’s looking mostly at furniture, but he also found me a replacement laptop cooling stand that might well work.

I got the dishes done and baked a carrot cake (from a mix) while they’ve been out, but I didn’t get to the DVD I wanted to finish. I’ve got about half an hour left on that one, and I’m pretty sure Scott and Cordelia will be against me having it on while they’re in the living room.
the_rck: (Default)
I started packing for my sleep clinic overnight tonight. Then the clinic called to ask if I could reschedule to Monday night and to a different location. I could, but it was sheer chance that it was possible. That is, if Scott weren’t on vacation all next week, it wouldn’t work at all. I’m hoping that the delay will give my back time to recover.

Expo was kind of tiring. I expected that, but I’d hoped there’d be ways of making it less so. Getting up and down the stairs was the hardest part. I wasn’t actually able to hear what Cordelia and the other two kids in her group were saying because there was a large table in the way of me getting closer and people in all the gaps where I might have gone around it.

The group had the battery they’d designed right next to their display about the Japanese internment during WWII. The bits of the presentation I heard didn’t go into the kind of depth that I’d expected. (I think my expectations were skewed by my having done a huge research paper on the topic during high school.) The kids didn’t address the fact that some of the internees weren’t US citizens and that that was because they weren’t allowed to naturalize. They didn’t talk about the internees losing all of their property or about several other things. I’m not sure if that’s because they had limited time or because they didn’t find that information.

On May 10th, the eighth graders will be visiting the high schools they expect to attend for about three hours of tours and what to expect talks. I can tell that I’m still cranky. I was irritated by the fact that the message about specifically mentions buses provided for the return trip but doesn’t say how the kids will get to the high schools. I’m also not happy that the plan is to have the kids eat lunch before they leave the school at 10:50 when their normal lunch period starts at 12:25. Cordelia’s usually very hungry by the time she gets home at 3:15, so I don’t much like adding an hour and a half to the time between opportunities to eat.

Scott had his annual check up today. He also has osteoarthritis in his hand. Right now, it’s only giving him trouble when he bumps it, but we’re not counting on that lasting.

I’m having persistent headache problems from spending so much time in bed. I thinks it’s part anxiety and part positional. It gets better when I sit or stand, but that makes my back worse.

iCal is still giving me problems. It crashes when I edit events. It eats events. Right now, it’s refusing to display any events at all and won’t let me click on anything or otherwise add events. I’ve quit and restarted the program twice. Restarting my entire laptop is the next option. Beyond that, I’ve lost a ton of information, some of it hard to replace.

ETA: Restarting worked. I'm just frustrated to have to do it so often.
the_rck: (Default)
UHS offered me two options: 2:15 which conflicts with Cordelia’s 2:30 PT appointment and 4:00 which is just barely possible if Scott actually gets off work on time. PT ends at 3:30, and it’s a ten to fifteen minute drive to UHS from the PT place at that time of day. I texted Scott, and he said he’s pretty sure he can get out of work on time. I worry because that hasn’t always been a reliable thing, but he’s more assertive about necessity for such things when it’s for me or Cordelia, so I’m giving it about a 90% chance. It’s about twenty miles for him to get back from work, so 3:30 is a likely arrival time if he leaves at 3:00.

Okay, I’m going to drink a lot of water and then lie down and listen to audiobooks for a while.

June 2017

S M T W T F S
     1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 2324
252627282930 

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jun. 23rd, 2017 10:30 pm
Powered by Dreamwidth Studios