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May. 22nd, 2018 11:19 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
the_rckI feel really wiped out today. I've got a lot of chores that need doing, but maybe I'll be able to rest anyway.
I got the new shingles vaccine yesterday, my first dose, and I appear to be in the lucky 25% that gets chills, so I'm in bed and wrapped in blankets. I didn't sleep well last night because begin cold woke me an hour before my alarm. At that point, I seriously considered just getting up for the day because getting up to search for a blanket would wake Scott and not leave me with enough time to warm up, but getting up for the day would also have woken Scott, so I stayed and shivered.
I also started a new medication last night, but chills aren't listed anywhere as an expected side effect, so I'm going with the vaccine as the likely culprit. The medication has a list of seek-help-immediately things that basically looks like stuff that I just expect to happen most days and to get worse and better more or less randomly. I'm going to drop a message to my doctor about that because, if I went by those directions, I'd be in the ER about twice a day for as long as I stay on the medication. I'm pretty sure she'll say just to watch for 'unusual' levels of pain and fatigue and such, but I don't have neon line that say 'up to here is normal.'
I have a referral to the UMHS medical genetics department about the Ehler-Danlos. I don't expect that they'll be able to get me in for months given that nothing particularly terrible is likely to happen from me waiting.
I also have a PT referral for my neck, right shoulder, and left elbow. My doctor would like me to go to the Burlington Building for it, but that's out by Briarwood. That means using the A-Ride or the bus or begging for transportation. I'm going to see what's available at the hospital and at the non-UMHS practice that Scott goes to.
The latter is less appealing now than it was because Scott's new work hours mean me having to get there on my own most of the time. It's about three times as far from here as the stop for the bus that goes there is. I'd ride the bus for one stop and then have to walk the rest. I need to check the exact location of the bus stop relative to the crosswalk (it's a very busy street. I can't safely cross without a light). That might add enough walking that I might as well not deal with the bus at all.
My doctor offered to refer me to a neurologist for the tremor, but I thought that I couldn't handle that just now. I'm pretty sure it would mean going either to Domino Farms or to one of the offices by Briarwood, and the PT is quite frankly more urgent for me. Then again, it's likely to take months to get in to see someone. I've had tremor issues for about 45 years; it's just that they're worse now. They're pretty clearly (from my point of view) related to anxiety, fatigue, and low blood sugar levels, and I can sometimes decrease the hand/arm tremor by bouncing one leg up and down (Cordelia is more freaked out by me bouncing one leg while sitting on the couch than by my hands/arms shaking). That seems to be mostly when it's an anxiety thing.
My fingers don't tremble except in reaction to movement from my wrist and elbow. I can type just fine as long as I've got support for my palm/wrist. Writing by hand needs support for my hand, wrist, and forearm, but that's not new. I hold writing utensils as close to the writing bit as I can get because higher up means more tremors. Because of this, I very strongly prefer to get the slenderest pens and pencils that I can (this also applied to crochet hooks and knitting needles when I was still able to use those).
ETA: And now, three hours after I wrote the above, I've got a slight fever (101.2F), and everything aches. I've called my doctor. I'm still betting that it's the vaccine because the panic! now! bits of the medication information for the new med look like things that would take more than one dose.
I don't feel anything like as terrible as I did with the cellulitis, and I've checked my breast for that. It's not a recurrence of that, at least.
I got the new shingles vaccine yesterday, my first dose, and I appear to be in the lucky 25% that gets chills, so I'm in bed and wrapped in blankets. I didn't sleep well last night because begin cold woke me an hour before my alarm. At that point, I seriously considered just getting up for the day because getting up to search for a blanket would wake Scott and not leave me with enough time to warm up, but getting up for the day would also have woken Scott, so I stayed and shivered.
I also started a new medication last night, but chills aren't listed anywhere as an expected side effect, so I'm going with the vaccine as the likely culprit. The medication has a list of seek-help-immediately things that basically looks like stuff that I just expect to happen most days and to get worse and better more or less randomly. I'm going to drop a message to my doctor about that because, if I went by those directions, I'd be in the ER about twice a day for as long as I stay on the medication. I'm pretty sure she'll say just to watch for 'unusual' levels of pain and fatigue and such, but I don't have neon line that say 'up to here is normal.'
I have a referral to the UMHS medical genetics department about the Ehler-Danlos. I don't expect that they'll be able to get me in for months given that nothing particularly terrible is likely to happen from me waiting.
I also have a PT referral for my neck, right shoulder, and left elbow. My doctor would like me to go to the Burlington Building for it, but that's out by Briarwood. That means using the A-Ride or the bus or begging for transportation. I'm going to see what's available at the hospital and at the non-UMHS practice that Scott goes to.
The latter is less appealing now than it was because Scott's new work hours mean me having to get there on my own most of the time. It's about three times as far from here as the stop for the bus that goes there is. I'd ride the bus for one stop and then have to walk the rest. I need to check the exact location of the bus stop relative to the crosswalk (it's a very busy street. I can't safely cross without a light). That might add enough walking that I might as well not deal with the bus at all.
My doctor offered to refer me to a neurologist for the tremor, but I thought that I couldn't handle that just now. I'm pretty sure it would mean going either to Domino Farms or to one of the offices by Briarwood, and the PT is quite frankly more urgent for me. Then again, it's likely to take months to get in to see someone. I've had tremor issues for about 45 years; it's just that they're worse now. They're pretty clearly (from my point of view) related to anxiety, fatigue, and low blood sugar levels, and I can sometimes decrease the hand/arm tremor by bouncing one leg up and down (Cordelia is more freaked out by me bouncing one leg while sitting on the couch than by my hands/arms shaking). That seems to be mostly when it's an anxiety thing.
My fingers don't tremble except in reaction to movement from my wrist and elbow. I can type just fine as long as I've got support for my palm/wrist. Writing by hand needs support for my hand, wrist, and forearm, but that's not new. I hold writing utensils as close to the writing bit as I can get because higher up means more tremors. Because of this, I very strongly prefer to get the slenderest pens and pencils that I can (this also applied to crochet hooks and knitting needles when I was still able to use those).
ETA: And now, three hours after I wrote the above, I've got a slight fever (101.2F), and everything aches. I've called my doctor. I'm still betting that it's the vaccine because the panic! now! bits of the medication information for the new med look like things that would take more than one dose.
I don't feel anything like as terrible as I did with the cellulitis, and I've checked my breast for that. It's not a recurrence of that, at least.
