Apr. 19th, 2017

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Cordelia’s PT yesterday involved a lot of exercise rather than just stretching and loosening the muscles in her thigh. Her PT homework is also aimed more at strengthening this time than at stretching. The therapist asked her where she stands on surgery. She says she hasn’t decided yet but that she very much doesn’t want this to happen again. She is pretty adamant that she doesn’t want the more extreme surgery, but I think that, if her aunt says it’s a good idea, we might talk Cordelia into it.

The insurance company tells us that our out of pocket for the basic surgery will be $1000. If we do the more extreme version, it will be $2000. We’re not telling Cordelia that because she will panic. Right now, we’re thinking to draw the money out of an investment account that Scott’s parents set up for Cordelia when she was born. I don’t know how much is in there or what the penalties will be for pulling money out before she’s of age, but… This really needs doing.

I’m still waiting to hear back from the choir teacher at Skyline about potential accommodations at Interlochen camp if Cordelia’s on zero weight bearing or even just using crutches when camp time arrives. Not being able to bend her leg will likely be a transportation issue as it’s unlikely that the buses they’ll be using have seats that will allow for that without her either sticking her leg into the aisle or taking up multiple seats. It’s a four hour-ish drive up to camp, so I’m not willing to ask Scott’s parents to drive her up and back (and they are often out of state during August anyway).

One nice thing— The forms for camp specifically say that cabins will be assigned by a child’s ‘consistently asserted gender identity,’ and there’s an option to request a gender neutral cabin. I’m more than a bit off put by the other cabin options because ‘all biologically’ male or female sounds exclusionary. Does that mean that trans and agender and so on kids are only allowed in gender neutral cabins? But the form asks about gender identity with a fill in the blank and doesn’t ask if the child is trans. Cordelia checked no preference on the cabin options. She says she won’t be fussed unless she’s stuck with only boys.

I’m pretty sure I didn’t check off all of my dailies on Habitica yesterday. I haven’t opened the site to look yet. I think, if I did miss, it would be two dailies and not more than that.

I’m making slow progress on deleting my LJ entries (I’ve promised not to delete entirely until mid-May). I’ve just got 2016 and 2017 left, but that’s more than nine hundred posts.

I’m now scheduled for OT again, starting tomorrow morning. The location isn’t particularly convenient, but I should be able to get the A-Ride for it because it’s definitely not on the #22 or #23 route. It’s on the other side of town entirely. I’m not sure what that particular bus route is called now; it used to be the #6. My current plan for tomorrow is the A-Ride to OT then walking two blocks to the stop for the AAATA shuttle that runs from Wolverine Tower to central campus. My appointment at UHS is two hours after my OT appointment is scheduled to end, so even if I have to deal with bureaucratic nonsense afterward, I should have more than enough time. I’ll pack a lunch to carry with me so that I can eat while I wait for the bus.

Okay. Time to call and schedule the A-Ride. They should be open for business now.

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