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I'm feeling cranky as hell today and kind of want to scream at the entire medical profession. When a doctor suggests 'lifestyle changes' and I say, "I have barriers x, y, and z. How do I address them?" that is, in fact, still me needing medical help. I wouldn't bring things up as barriers if they weren't, in actual fact, problems I don't know how to solve. I know that my problems don't fit any neat boxes and that having the usual solutions be unworkable is frustrating. I know that. I really do.

But the usual solutions being unworkable means I need more help not less. I suppose that the real answer is that my doctors aren't going to tell me that my problems could be solved by having twice the income we do, and I'm pretty sure that that's the only effective fix.

Cut for a certain amount of bleakness )

When I say I have anxiety about going outside, this is what I mean (31 overlapping points) )

Most of the stuff under the cut is me venting and me tracking this stuff for my own use. Somehow, I don't think any of these issues can be helped by exposure therapy.
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Scott and I have received our absentee ballots. I had been a little worried. The election isn't until the first week of August, but I want time to research. For most local offices, the primary is the deciding election, and I want to make an informed choice. I also want time to take long breaks between each bit of marking I have to do. Holding a pen well enough to control it hurts like hell, and it gets worse the longer I keep going. Fourteen sections will take a while.

I'm seriously considering asking either Scott or Cordelia to help me with the marking of my ballot, but that will involve extra paperwork in terms of documenting who they are, how they're related to me, and that they really and truly did exactly what I told them to do.

I had three face to face medical appointments in June. One was my mammogram, and the other two involved tests that also couldn't be done remotely (allergy and urology). The mammogram follow up with the cancer center clinician was done remotely. I understand why, but I'm unhappy about it because, five years ago, the lump didn't show on mammogram or ultrasound but could be found manually.

I need to schedule another allergy thing later in the year, but it's going to be difficult because I need two appointments, about 48 hours apart, and have no good way to get to the office. The nearest in-service bus stop is two miles away, and most of the distance doesn't have sidewalks (and is otherwise pedestrian unfriendly). I don't know when those buses will start running again.

The allergist said that three days between the appointments was too long as I might have serious adverse reaction to one or more of the patches. The testing that we were able to do at the appointment was the scratch test stuff which I didn't much feel that I needed but that my current doctors felt I did. My last test results were from the late 80s and are too difficult to retrieve even though I'm still in the same medical system. These results were exactly what I told them they'd be-- cats, trees, ragweed, mold, dust mites. In practice, I'm allergic to other mammals in addition to cats, but I don't react as quickly or as badly to dogs or mice or whatever.

The allergist mentioned the possibility that my occasional breathing difficulties in response to things like rosemary might be mild (mild in as much as I never cease being able to breathe; I just have difficulty) laryngospasms rather than an unexpected resurgence of my asthma or any sort of anaphylaxis. Since I have GERD, laryngospasms wouldn't be unexpected. What would be unexpected is them lasting for hours which these issues do. There's also apparently damn all that I can do about them beyond what I normally do for GERD.

The urology appointment ended with a referral for pelvic floor PT that is on hold until the after the current crisis. Part of that is transportation, and part of that is that the problem is something I've lived with for years. I would like to resolve it, but I won't be harmed by waiting. If I was going to go out for PT or OT, it would be for my hands, and I'm not going out for them, so.

Cut for urology details )

The buses are running reduced routes and only one bus per route per hour. They cap the riders at 15 people because they can't seat more than that with social distancing. If someone's at a stop and there are already 15 riders, that person will have to wait an hour for another bus that might have space. I took the bus home after my urology appointment, and I got the next to last seat.

I used the ARide for my mammogram, but that meant being prepared for pickup more than an hour and a half before I had to be at my appointment. ARide service is limited, too, right now, but is a better option than the bus since at least one knows whether or not a particular trip is even possible. I try not to use the ARide, generally, as it's meant for people who are unable to use the fixed route buses due to disability. Most of the time I can take the regular bus and do.

I last used the ARide regularly when I was recovering after radiation. At that point, I wasn't sure of my ability to walk to and from bus stops. For a while after that, I used regular cabs off and on, mostly for going to appointments from which I'd then take the bus home. Going somewhere is much harder than the trip home. Stepping out the door is often hardest because, once I'm out the door, I don't let myself think or feel much of anything.

I talked to our dentist's office yesterday. I had an appointment on the 20th but have put it off since I don't know if I'll have a good way to get there and home again. They're conveniently close to a bus line, but that doesn't help right now. Also, given that I'm not currently having trouble with my teeth, being in that space seems like an extraordinarily high risk undertaking.

The receptionist told me that they're quite busy due to many people trying to get in for cleanings that were due while the office was closed. I understand that the staff there are being careful and are really in need of getting paid, but... Routine dental care seems unwise right now.
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This whole thing is kind of one long anxiety meltdown )

Scott's sister insisted on a socially distanced gathering to celebrate our niece's high school graduation. We sat in their backyard in four clumps, one for each household involved. I found it very uncomfortable, but I was also feeling exhausted from having not slept the last couple of night while trying to finish an exchange fic before the posting deadline. I want to tweak the story further before reveals because some bits don't flow the way I wanted them to, but that may or may not happen.

I think that I'm going to have to drop out of the WIP Big Bang. I want to write the story, but my brain isn't focusing right for it just now.

I'm trying to get larger pill organizer boxes. The multivitamins and calcium supplements I've got won't fit in the current ones. The bigger boxes won't fit so nicely in a pocket, but they will help me make sure I take those supplements. Right now, I'm prone to forgetting. Sadly, I've only been able to get six of them because the only place I can find that's selling them is capping how many a single person can buy (I got three, and Scott got three). I think they assume that nobody has a reasonable use for more than one of these at a time, but I use one for each day of the week. Right now, I take meds at six different times every day, so a seven box organizer isn't a 7-day thing for me.

I'm probably going to ask my SIL to order me another two organizers. That way, I have an extra if I lose one or break one. I don't want to try to get buy with only six of them because that will throw off my routine for when I fill them and will make it harder for me to track when I need to request renewals (this is mainly an issue for prescriptions that need renewing since I need more lead time on them. It's bad to discover that I'm out and can't refill on a Friday night or a Saturday morning or even a Sunday. There's a reason I fill my organizers on Thursdays).

I'm trying to figure out some good ways to help myself calm down (especially when I don't realize that I'm starting to freak out). I don't really have any ideas since most things that other people seem to find helpful have negative effects on me, either increasing my stress or increasing my pain (and therefore increasing my stress).

Writing isn't happening. Reading is just kind of masking the problem. I don't know. It's hard to reach out when everything in here feels like it's on fire.
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Scott and I are both very low on sleep after the last couple of days. Yesterday and today, we had things going on in the morning that meant that we really couldn't go back to sleep after Cordelia left and so were running on about 4 hours of sleep each night. I attempted to nap this evening, even took a half tablet of Halcion and used my c-pap, but didn't manage to fall asleep.

Scott is liking some parts of working 2nd shift quite a bit. His coworkers there treat him a bit like he has magic powers because 25 years of experience means he can figure out problems and repairs for things that would normally halt production. I think that, if it weren't for Cordelia, he'd really want to stay with this shift. Working 1st shift means working with people who all have more experience than he does and who tend to assume that he should be able to do everything faster and better than is reasonable. (Of course, if those people have all been there longer than 25 years, that likely means that they're all going to retire in close proximity to each other. Won't that be fun?)

I still have zero solid ideas for how to get Cordelia to and from her school obligations this month. Bus fare for her is $0.75 (free for me). Cab fare is about $20. Uber and/or Lyft aren't going to reduce the price enough to bring it into the affordable range. I would need the price to be less than $5 to even consider it.

We have some friends who live out near the school (not in walking distance because of the highway) who might be able to help once or twice. They could at least get her to a place where catching the bus doesn't require risk to life and limb. Cordelia feels weird about having our friends give her rides because they're in that category of embarrassing adults that also includes us.

I might be able to get Scott's parents to help once or twice, but they live an hour away and don't like being on the road between 4 p.m. and 6 p.m., and Scott's father no longer knows his way around Ann Arbor. I'm not sure they're up to it. They're both over 75 now.

I had hoped that Cordelia could get at least some rides with her one friend in choir, but that's the friend who got in the car accident yesterday morning. I don't know that she'll have a car to drive or be allowed to drive with a passenger after it gets dark (or after dark at all). I seem to recall that the rules on passengers are less strict around transportation to and from official school events, but I don't know how that interacts with having had a recent accident.

Of course, there's also the chance that the bus company website is lying about lack of service to the school. The ride planner has always had some glitches in terms of not registering potential transfer connections. It has improved on some things (no longer telling me that I need to go downtown and catch the same bus route outbound in order to get to the grocery store, for example), but it's still lying to me about possible routes for getting to one of the other high schools. It says I have to walk to a place where I can catch the bus that goes there even though there's a bus that stops near me that goes to a location in the middle of the other bus's route. Seriously, they both stop at the University of Michigan's Pierpont Commons. It's not a difficult transfer.

The bus website also says I couldn't possibly have gotten a bus home from Cordelia's school back in September after meeting with her guidance counselor. That might mean the schedule's changed. That might mean the schedule is lying or has the information I need filed in such a way that I need to search for it in Greek or Sumerian or some such.
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The weather has gotten very nasty today. One of Cordelia's friends got into an accident while driving to school (I'm pretty sure that the other girl has zero experience with snow because she just moved north this year). Scott left for work half an hour early and arrived late anyway.

Cordelia's school let out twenty minutes early which I think was meant to help keep the buses more or less on schedule for the middle school students and then the elementary school students as the same buses transport all three age groups, just at different times of day. I'm not sure if the early release gained the buses much time. Cordelia didn't reach her stop particularly early relative to the normal arrival time.

I'm not sure what the weather is going to look like tomorrow. I have an appointment with the LTD vocational counselor at 10:30, but if the roads are still bad, he may opt not to drive to Ann Arbor. My benefits run out on the 24th, and the only reason we're meeting is so that I'm compliant enough to keep them. I don't pay him; the LTD insurance management company does.

Stressing about future paperwork )

UCon game writing related babble )

ETA: And there will be no school tomorrow, so I can put off deciding about which FAFSA information session to attend.
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This morning started with a migraine. I got somewhere between 4 and 5 hours of sleep before I woke and couldn't manage to fall asleep again after. I was in that weird state of being too near to sleep to be able to get up to do anything about the headache but also hurting too much to manage sleep. I've been functioning at less than 50% mentally all day.

Thursday evening, there was a choir thing at Cordelia's high school, a parents' meeting for information about a trip to Spain that she doesn't intend to go on. I dithered a lot about whether or not I should try to go. It was fairly cold out, and with the meeting starting at 7:30, I expected a bus once an hour which might mean sitting at the bus stop for a very long time before being able to get into the building or after the meeting.

I wanted a better idea of the timing, so I looked at the bus website. The ride planner told me that I couldn't get to the school between 3:14 p.m. and 8:00 p.m. unless I walked a considerable distance (estimated as 20 minutes). I'm very nearly certain that it is possible to get there by bus between those times, but I wasn't willing to risk it. I also wasn't keen on spending between $30 and $40 to attend a meeting about something that Cordelia doesn't want and that we really couldn't afford if she did want.

I ended up sending the school board an email about the accessibility issues of having evening events at the school. The nearest bus stops are on the other side of the highway from the school. The highway exit ramps let out on traffic circles. The lighting is lousy, and there aren't sidewalks or any allowances for pedestrian traffic. It's not a safe walk in full daylight. I wouldn't want to do it at 7 p.m. which is full dark here at this time of year.

I pointed out that I can't possibly be the only parent who doesn't have access to a car all of the time and/or can't drive. I also can't possibly be the only one who considers cabs/Uber/Lyft prohibitively expensive for anything that's not life essential. The school has been there more than a decade, and the district and city have done damn all to make it safe for pedestrians to get there. 90% of the city of Ann Arbor is on the other side of the highway from the school, and the city is zoned for three high schools, so most of the students live on the other side of the highway, too.

One of the main barriers for Cordelia in doing extracurriculars is transportation. All of the kids who stay for those have to get on one city bus. She was pretty constantly stressed about whether or not everyone would fit and what would happen to people who couldn't get on or who missed the bus. School policy is that the kids can't wait in the building without adult supervision. There's a lot of emphasis on penalties for being in the wrong place.

This is the same school that made her think that they were going to close the building and kick all the kids out into the parking lot in a snowstorm to find their own way home. Cordelia doesn't trust them.

At any rate, even though it was around 7 p.m. when I sent the message, I got an email from the superintendent of schools less than two hours later. She said they're going to try to figure out a solution. I'm not sure what they can do, but I hope that this eventually goes somewhere. I've been meaning to complain the last 2.5 years, so it's past time that I did. I pointed out that the access issues most strongly affect poor families and parents with disabilities. I think I actually said 'ADA.'

I also finally sent an email to our representative in the state house to ask why Michigan law doesn't penalize bad faith by insurance companies. I don't know that that will go anywhere, but it definitely wasn't going anywhere without me asking.

I've made more progress on my UCon games. I think the space scenario is only going to need about another hour of work. A lot of what I want to happen in the game doesn't need to be in the character sheets or the setting material. I'd probably have gotten it done today if I'd had a reasonable amount of sleep. The superhero scenario will need quite a lot more than that, but I'm more optimistic about getting it done.

I have no idea why I'm still awake now. Hopefully tonight will be better than last night and tomorrow better than today.
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Please assume that I haven't read anything here in the last ten or so days. My brain has been refusing to deal with DW recently.

I've had about ten days of just not being able to cope with everything I needed to do. Appointment after family thing after paperwork after chores after choir thing... And on and on. At this point, I've lost track of what I did when.

I have given up my driver's license. I hadn't driven in more than 20 years, and it had been more than a decade before that occasion since I last drove.

I've printed the paperwork for me and Scott get certified copies of our birth certificates. We need them in order to get i.d. that will let us fly once the laws about acceptable i.d. change next year. I expect to need to fly some time in the next few years as my father and his wife are both in their mid-70s and in New Mexico. My mother is in the same age range with my stepfather just shy of 65. Neither of us has yet filled out the paperwork yet.

Cordelia turned 16 on the 17th. We went out to lunch at Red Lobster the next day because she wanted crab. We went early enough that I was able to have shrimp scampi without ill effects. I didn't order crab legs because I don't think my hands are up to the task any more.

Scott ordered a four place setting set of Corelle tableware. We're in the process of rearranging our storage to accommodate that. Scott's more willing to go with moving things to the basement than his is to go with throwing anything out. I'm not convinced that saving the cost of replacing a box of plastic spoons is enough to justify storing that box in the kitchen cupboard for a decade. They don't go bad, and we use a few every year, but... The basement is a compromise.

My mother and stepfather got a local rental for three nights and went home this morning. They found a place that allowed dogs. They attended Cordelia's choir concert last night and went back to Lawton this morning. Scott's parents are attending tonight's concert.

Cordelia had a half day of school yesterday, so she and I and my parents went to Totoro for lunch. The ladies there gave us free edamame with our meal.

I stepped back the PT that the doctor I saw on the 3rd suggested. I think that it may have caused the ongoing headache I had the following week. I'll be seeing a physical therapist I trust on the 6th. I also had one session with a psychologist who specializes in pain management. I'm not putting a lot of reliance on her coming up with anything helpful, but I'm willing to find out.

The psychologist appointment was exhausting because I made two mistakes with the bus trip. I got off too early on the way there (and walked down a deadend that I thought went through) and made a mistake about the route of the bus home that meant I had to walk quite a lot farther than I expected before I found a bus stop.

I found my curvy back thingy still in one of the suitcases in the basement. My guess is that I took it to UCon and didn't get it out of the suitcase before Scott closed it up and stuck it in the basement. I'm finding it helpful, but we're having trouble figuring out where/how to store it because it's an inconvenient shape.

I've gotten nice recipient comments on my two recently posted exchange fics. Both exchanges are still anonymous, though, so I can't yet link to them. I think author reveals are late on Sunday for both exchanges, so I'll likely announce the stories here on Monday.
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Health related TMI, mostly venting )

I want to snarl at the universe just to regain some feeling of having any agency in the face of all of this.
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PT went well yesterday. It was nice outside, so I walked around the hospital garden between getting off the bus and checking in for my appointment (I got there about 45 minutes early). After, I walked slowly from the main hospital down to Plymouth Rd.

There's a diner right there, so Cordelia and I met there and had a meal then took the bus home. I think she enjoyed it, too.

The PT person thinks that my elbow problem is caused by a particular muscle not doing its job, so she's given me some exercises. I'm to do those three times a week and gradually work my way up to doing them more often and with more weight. All four are wrist movement things. I'm doing them empty handed now and will move to one pound weights later. I'm still working out the best way to do them in terms of how my elbow is relative to my wrists. I may need to look online as the sheet explaining the exercises doesn't seem to say.

I melted down a little last night over the way that the next several weeks look with regard to scheduling and Things That Must Be Done. There isn't anything Scott can do to help because the problem appointments are all dead in the middle of the day. Getting me to and from an hour long 2 p.m. or 3 p.m. appointment means missing a lot of work.

I'm working on an email to ask my mother, MIL, and SIL if they can help, but right now it keeps devolving into a rant about how impossible it all is with a long list of the other things going on close enough to drain the resources to make it impossible.

The one week when I thought I had elbow room for the two big errands turns out to be Art Fair which makes everything those days vastly more complicated. Cordelia and I need to go to the Secretary of State's office that week, and we need to go to the bus headquarters that week. Cordelia doesn't see why she should have to go along for the latter, but I think it will be a lot easier for me if she comes along. She's old enough now and responsible enough to help my agoraphobia a bit rather than make me more hypervigilant while we're out.

Art Fair is an issue because every bus route detours and runs wildly off schedule and because Blake Transit Center, the downtown transfer point, is in the heart of the crowds. We have to go there, both ways for each trip, because the bus system is set up with spokes that don't generally interconnect.
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We had a relatively laid back holiday. Scott built a fire in the portable fire pit in mid-afternoon so that I could have a 'smore. I've been watching him and Cordelia make them in the evenings, when I can't eat such things, for weeks now, so I was pleased to get the chance. It was horrifically hot for a fire, though, so we were only out there as long as was necessary for safety.

We got carry out Chinese food for dinner because Cordelia's guest had had pizza too recently. Also, getting pizza would have meant me needing to scrounge for other food. Pizza cheese tends to make my reflux act up. Normal cheese doesn't, so I don't know if it's the blend or something they're adding on top (even though I tell them no seasonings but salt). Pizza after 2 p.m. is just not a wise thing for me.

I finished a reasonable draft of a second pinch hit for the Nonconathon. I'm still looking for a beta reader for it, but I think it will be acceptable without, just better with.

I have changed the sheets on our bed. The dirty sheets are washing. One of the new fitted sheets is seeing its first use (the second is still in packaging as it's easier to store that way).

I still need to deal with a few things in the kitchen before the cleaning lady comes. I'm going to do those in short bursts because it's very hot in there with no air movement at all. I just can't tolerate it long.

Cordelia's friend from middle school visited yesterday and stayed until quite late. They watched Marvel movies with Scott (he has a tradition of watching Captain America: The First Avenger every year on the 4th). Then, about 10, they went out with the friend's parents to drive around to see if they could spot any fireworks (this is apparently their family tradition). Cordelia got home about 11:40, so I got to bed after midnight.

The decreased dose of Halcion is leading to me waking more frequently in the night and having pretty constant anxiety dreams. I was still pretty exhausted when I got up at 9:00 and felt like I needed more sleep. I just also knew that I needed time for the pre-cleaning lady chores. I'll be seeing my psychiatrist next week, and I'll ask her about the Halcion. I think I sleep better with it, but I also know that it's the sort of thing that rings warning bells in doctor's heads when they see it on my medication list.

I'm also not sure that our school year schedule is something I'll ever be able to handle without sleeping medication. A single school night with me waking several times or spending a long time trying to fall asleep would leave me not functioning at even the necessary basic levels for the rest of the week.

Of course, maybe having the option to take something, after Scott and Cordelia leave, in order to sleep more might mitigate that.

My shoulder is doing better, pain-wise, but my elbow is doing worse. I'd prefer that it go the other way around, and I think the exercise that's helping the shoulder is aggravating the elbow. I'll see the PT person tomorrow. Maybe she'll have ideas for things I can do at home to help the elbow. I'm pretty sure that the exercises my doctor gave me last year are aimed at the wrong things because they all hurt a lot to do.

Cordelia driving stuff )

I need to arrange to have some cash on hand so that using the A-Ride is actually feasible. The last time I used it, I needed exact change and couldn't use a credit card. That's a really huge burden on me because I almost never have cash and, if I do, usually have a twenty and no options for breaking it.

Back when I was using the A-Ride regularly, it was always a scramble to make sure I had the right money-- $3 for me each way plus $1.50 for Cordelia each way-- to be able to pay, even when we knew exactly when I'd need it. The prices haven't changed in the last five years, so there's that. There's an option for 'Scrip ticket,' but that's not defined in the handbook, and I suspect it's not something I can order online or even by phone which means a trip to wherever they sell it.
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Cordelia's 7 a.m. drive this morning got rescheduled (this time with advance notice) to the 13th at noon. They still haven't rescheduled the missed class session which is a problem since the last normal session is tonight.

Technically, I could sleep in until 8 a.m. today, but Scott's final leave-the-house-now alarm woke me at 7:10. It's very loud and irritating, and it repeated several times before he shut it off.

At that point, it had been long enough since I last ate that I had a headache, so I just hauled myself out of bed. The only thing that treats that morning headache is a combination of sugar and caffeine (one without the other doesn't do the entire job. Two teaspoons of honey and zero caffeine does considerably more than normal levels of caffeine with just stevia). Medications don't help at all until after I've gotten some sugar in.

I'm pretty sure that this is some degree of hypoglycemia. I've had problems for years any time I sleep late (so weekends mostly), but I think that the amount of time I can fast is decreasing. The problem is that the amount of time I need between when I eat dinner and when I lie down is increasing. Well, I can eat very, very simple carbohydrates near to bedtime. I don't know that that's a thing that could help.

I suspect that what I need to do is to shift when I take my thyroid medicine and to take it earlier in the day so that I can eat between 6 p.m. and 7 p.m. I can handle very lean meat or protein fortified oatmeal that far from bedtime.

I had PT again today. My left elbow was acting up the the therapist poked at it a little and told me I had several trigger points there. She used some sort of machine to loosen those which decreased the pain level considerably.

I took the shorter trip for getting home from the hospital, and I probably should have spent the extra 30-45 minutes for the long way because I almost didn't make it up the hill from the bus stop. It's hot and humid, and the hill is quite steep. I had a full water bottle, but it didn't help much.

The next five weeks are going to be really, really exhausting. Every week has at least one appointment, and most have three or four. Then I'll have a week of nothing much followed by a week on vacation with Scott's family (which I expect to be bad along a couple of different health angles). Then... more appointments, including getting out to Skyline for Cordelia to register. September only currently has two appointments. I kind of expect that to change, though.
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The laptop needs to go back Fedex. Scott said he'd drop it off during his lunch hour, but it's still on the kitchen table. There are two Fedex stores I can get to by cab, but I'm worried that I can't carry the package. (I'm not sure of my status because I've only just gotten up and am still working on breakfast. I may be less wobbly after. Or not.) I really don't want to wait for Scott to send it back tomorrow because that adds another day to my time without a laptop.

There's no school today because it's an election day (school millage, possibly other things. I need to check and usually would have by now. The last six weeks have kind of driven that out of my head). Cordelia's is leaving around 10 a.m. to go bowling. If she wasn't, I'd ask her to help me with the package. I don't think, right now, that we could make the timing work. She's not yet up, and we'd need at least an hour and a half to get a cab, get there, send the package, and get home by bus.

I'm poking at the Fedex website and trying to figure out if there's a way to get them to pick the damned thing up and how much that might cost. If it's under $11, it would be cheaper than a cab, but damned if I can find it on their website. Everything I'm seeing is aimed at business customers with pre-existing accounts. I really don't have the wherewithal to make a phone call right now.

On the plus side, one of the buses back from either Fedex location stops right by the polling place. I'd only have to figure out getting home after voting (half an hour between buses and a distance walking home that I'd normally consider within my range but that isn't now).
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I've been draggingly tired all day today. I'm not sure why because I slept pretty well last night. The only thing I can think of is that having gotten yesterday's appointment over with is letting my body relax a bit. (It wasn't the appointment that was stressing me out as much as it was the leaving the house bit of things.)

Cordelia and I had lunch at Totoro yesterday afternoon. I had an 11:30 appointment downtown. When it was done, a bit after noon, I called and asked her if she wanted to meet take the bus in and meet me, and she said, "Why not?"

I picked up my library holds on the way from my appointment to Totoro because I knew I had plenty of time. I still got to the restaurant about ten minutes before Cordelia did.

When we finished, it was about two minutes too late for the bus I wanted to take home, the one that drops off at the top of the hill. I was willing to wait half an hour for the next bus, but Cordelia decided to take the other route, the one that lets off at the bottom of the hill, so she took off and left me behind.

She got home about ten minutes before I did because that bus takes longer to get near our house and, likely, also because it's a longer walk from the stop.

I should have spent another ten minutes at the restaurant before leaving myself because it was too wet for me to be able to sit at the bus stop. That meant I was exhausted and in pain by the time the bus finally came. Maybe that's why I'm so tired today. I don't know.

My new ATM card needs to be activated, and I can't do it by phone because we no longer have the number we had when we set up the account. Also, it's been long enough since I used the dratted thing that I don't remember the pin number. I know I changed it once by adding one and that I had to reset it again after. I just don't remember if the reset required changing the number; it might not have. If it did, though, I might have added one or subtracted one. That was a few years back.

Basically, I haven't done anything but teller transactions since Cordelia was born, and all of those have been about her savings account. Scott does ATM stuff, but me getting to an ATM would mean that he was with me, so there hasn't been a point, or I'd have made sure I could use the card already.
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We ended up not doing anything for Valentine's Day yesterday, so Scott bought a bunch of stuff on his way home today. I had to laugh because Cordelia goes back and forth about whether or not she likes chocolate. Sometimes, she really does, and other times, she really doesn't.

I have an appointment tomorrow morning. I'm probably taking a cab there and then the bus home. Well, the bus to downtown to home. I'm not going to be able to take the direct bus because I don't want to risk not making it up the hill from the stop. If I take the bus into town, I might stop for lunch. I also might not.
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Okay. Today is fired. I'm pretty sure that Scott agrees.

I had a wedged in appointment scheduled with my doctor at 3:15. The cleaning lady arrived at 2:00. We always talk a bit, so I didn't call for a cab at 2:00 when I normally would have.

At 2:16, the cab company dispatcher said, "I'm sorry. I can't get you a cab."

At 2:20, I was out the door to get the bus. I was feeling tired and wobbly to begin with (by this late in the week, I'm running on fumes), and I deal really badly with abrupt changes in plans.

It took me about 12 minutes to get to the bus stop. I just tried not to look around too much because that was really going to make me freak out (agoraphobia does that). I'd had just enough time to check the expected arrival time of the next bus (6 minutes 37 seconds) when Cordelia texted me to say she thought she had the flu because she felt awful and was afraid the nausea would turn into something else before she got home.

She was already on the school bus home. Scott was a half hour from getting off work. I was 85% sure I couldn't make it back up that hill without sitting somewhere for at least ten minutes first. It was 22F with a windchill of 16F. Therefore, I was definitely getting on that bus.

So I was frantically texting when the bus pulled up. I got on and kept frantically texting. I can't hear to talk on the phone when riding the bus. Something about the rumble does it (clothes driers have had the same effect on me for at least 32 years. I don't understand how Scott can listen to audiobooks in the car. I miss a lot when he's got stuff while I'm riding with him).

I got off the bus at 2:55 and got to the clinic a tiny bit after 3:00. When they took me back for my vitals twenty minutes later, I was shaky and light headed. My blood pressure was way high for me. I'm usually around 100/70 these days, but this afternoon, I was 145/85.

I managed to get a message to Scott while I was waiting, and he managed to get out of his after shift stuff to go straight home. He got home while I was talking to the doctor, so I missed his texts about Cordelia not having a fever and saying she wanted food.

I have lost 20 pounds, unintentionally, since September. It may be a bit more, but I'm not dedicated enough to weigh by boots (which are hiking boots that double as snow boots). That, combined with the exhaustion, is enough that my doctor wants a cortisol blood test. That needs to be done in the morning, so we'll do it Saturday at the same clinic as last week's blood draw.

The problem is that I'm 50, so my body is kind of expected to be doing any subset of an apparently infinite list of perimenopausal crap. I don't think there's anything I've had happen in the last decade, apart from the broken foot and cancer in 2015, that isn't of the lists of possible perimenopausl symptoms (and for the broken foot, I had to have a bone density check because of perimenopause). We can't do anything at all that will mess with my hormones because the breast cancer was hormone positive, very strongly so. This includes any herbal remedies anyone may want to suggest.

There are at least half a dozen separate things that changed in late August/early September that could be having an effect here. Two new medications. The c-PAP. Changing my sleep schedule. Changing my medication schedule. Changing my meal schedule. Cordelia suddenly being at a school that I need an hour of advance notice to get to.

My doctor took my blood pressure again, and it had gone down to 120/80. I had also nearly stopped shaking. I was still light headed/exhausted.

I asked Scott to come and pick me up from UHS because I didn't think I'd make it home by bus. On the way home, Scott said, "What about Lyft? Why didn't you try that when you couldn't get a cab." I gave him serious stinkeye because he's only known me-- what? --30 years. Trying to deal with something new when pushing a deadline to get somewhere would have been a dozen times more upsetting than going for the bus because I know how to ride that bus line. I know that there's a bus every fifteen minutes and that getting to central campus takes about fifteen minutes.

I'd still have been kind of freaked out if Cordelia hadn't suddenly dumped worry about her having the flu on my head.

I shouldn't make appointments on Thursdays. The fact that the cleaning lady comes always has me stressed to begin with (she's a really nice person. It's not that).

But, of course, next week, I have an appointment on Thursday at 2:00. Why did I do that?
the_rck: (Default)
I managed two fics for Fandom Stocking. Timing's been bad this year. The first message about needy stockings came the day that I started a stretch of several days with no time/energy for writing. The second one... Well, I commented on the post around the time Cordelia left for school and said that I had writing time for the next eight hours. Eight and a half hours later...

At any rate, one story is in a fandom I've written before, and the other is something new to me. The latter... I'm worried that I made some obvious canonical errors, but that's the one I started this morning and finished around noon.

I finally called to try to set up PT for my elbow and was informed that the university medical system considers elbows to be hands. Hands don't get PT; they get OT. All of the possible locations are massively inconvenient, so I'm looking at going outside of the university system. The place where Scott went last year isn't very far. It's at that awkward distance where I can't actually walk that far but would feel ridiculous taking the bus because I'd ride for less than half of the distance (from one stop to the very next one) I need to cover to get there. Walking to the stop to catch the bus and from the next stop to the PT clinic would cover as much ground as (more actually) as the bus did, and I feel ridiculous contemplating it.

I also scheduled an appointment to get my eyes checked. That's two weeks from now. I think I will have to give in and get progressives. I really don't want to deal with them, but having reading and distance glasses is awkward, and I'm almost certain my vision's getting worse, distance and middle range vision, anyway. I haven't really done much in close.

I'm going to crash as early tonight as I can because my eyeballs ache and have been doing so for hours. I only need to be up another 50 minutes.

I'm also having weird cravings for salt. Not specific salty foods, just salt in the could pour some into my hand and eat it sense. My general assumption when I get very specific cravings (like, say, for chicken liver or spinach) is that there's something lacking in my diet and that, if there's not a reason not to, I should just go ahead, but salt? There should be more than enough salt in my diet already. My blood pressure has always been on the very low end of the normal range, so I'm not worried about extra salt from that direction, at least.

I added salt to my coffee this morning. Enough salt to taste but not, apparently, enough to taste bad.
the_rck: (Default)
Yesterday, I took a cab in and had it drop me at the library so that I could return a few things. I wanted to stop at the post office a block away and in between the library and my appointment, but stopping there to pay the cabbie would have been considerably less convenient. There's a drive next to the library, running between 5th Ave and Division, that's there partly for access to the lot next door and partly for people to be able to wait while someone else runs in for a minute to return something. Staying there long enough for the cabbie to run my credit card didn't block traffic or risk upsetting people.

I only had to wait about thirty seconds at the post office. Oddly, the clerk tried to close my order without dealing with the package I'd laid on the counter (I also sent a certified letter). My guess is that, in dealing with the paperwork for the letter, he lost track of there being anything else even though the dratted thing was clearly visible.

Many of the portals around the library and post office were unclaimed. I didn't have the resonators to fill them out completely, but I captured all I could (and then, while I was at my appointment, someone else came through and captured them so that I was able to take them back again for more points). After my appointment, I walked up William to State and had lunch at Totoro. Then I walked back down Liberty to Division and caught the bus home. I might have had time to get the three blocks to Blake in time to catch the bus there, but I didn't want to risk being stuck for another half an hour.

Today's entire agenda (apart from a few short chores) is writing and more writing. I'm worried that I don't have a strong grasp of one of my characters and that I may be going down a false path in the story right now, but the damned thing needs to be done today if I'm going to edit or even proofread at all. I'm hoping to limit my cat waxing because I just don't have time for it. Sometimes, it helps me to think, but not today.

I've written a lot less this month than I'd hoped to. Scott's vacation and issues with Cordelia have pretty much killed my time and energy. I'm trying to finish this story without resorting to junk food to keep my brain working while I write. We don't have much in the house that fits the description, so I'd have to ask Scott to buy it for me.

I called Mom last night to see how they're dealing with the weather. They're in Baton Rouge, so it's much less bad than in coastal Texas, and they live in the highest part of the city. Mom said that it's a very, very good thing that this hurricane didn't and probably won't hit New Orleans hard because many of the pumps there aren't working so that the flooding would be beyond horrific.

I'm currently trying to figure out my best course for the Medequip appointment tomorrow. Medequip is (according to Google) 0.1 miles from Shar Instruments, the place to which I need to return Cordelia's rented viola. I think that, if I get it back tomorrow, I won't have to pay for September. I need to check when they bill me as we might still have some time, but if they bill on the 1st, that's Friday.

I will be carrying my entire c-PAP, too. From a timing POV, going to Shar after my appointment makes more sense since I don't know how long Shar will take. It might be five minutes. It might be longer if they're busy. Shar only opens an hour before my appointment, and my arrival time is kind of unpredictable

From a carrying crap POV, however, going to Shar first makes sense. I'd take the A-Ride there and only have to carry my c-PAP during the section that I'll be walking. It's just that the A-Ride is so unreliable about timing. Shar opens at 10, an hour before my appointment, so I can't possibly have more than an hour for turning things in and getting to Medequip. Also, the A-Ride folks will tell me that I should ask for a pick up at 9 if I want to be certain to arrive by 10:30, but that's very likely to leave me sitting on the ground outside for forty five minutes until they open. Except when it doesn't. One or two rides out of every ten involve long delays to either pick up or arrival.

I need to look at what I'll be carrying and at how much space it will take. The A-Ride has restrictions on that because they want to be able to fit three people in the back seat if necessary. That might be an argument for going to Medequip first and only going to Shar if the cabbie tells me that we won't be picking up other people on the way (and if the cab isn't filled when it arrives here). I haven't always had shared rides, but it's not at all rare, maybe thirty to forty percent of the time. I've only been in a cab with four total passengers (plus the driver) once.

My current plan is to take the bus home after. Going home by bus is easier, anxiety wise, than going out by bus. This is probably because I'm heading toward perceived safety and because the alternative is staying where I am which is unacceptable to the anxiety brainweasels.

Okay, time to make my decision and call the A-Ride people. Or maybe I should shower first and then call?
the_rck: (Default)
Tomorrow, Cordelia has a dental appointment at 4:15, and Scott has one at 5:00. I'm dithering about whether or not to gamble on Scott getting home in time to drive us there for Cordelia's appointment. If she and I are taking the bus, we need to leave at 3:15 which is after Scott's shift technically ends but before he's ever able to leave. Scott would need to get out of work by about 3:40 in order for us to make it to the appointment, and that would be pushing things.

Part of me wants to play it safe and take the bus, but it would be so very nice not to have to. The inbound bus at that time of day tends to be pretty empty, well, probably not much more than half full which is empty for that route (the outbound bus on that route is terrible any time after 3:00 because it services a lot of park and ride lots as well as both central campus and the medical campus).

My dental appointment is the following week, but that's easier to deal with because it's at 11. There's no chance at all Scott will be home, so I don't have to decide anything at all. It's the bus all the way. Well, actually, I'll have to decide whether or not I want to buy myself lunch while I'm in town. It would make some sense to, but it means spending money, so... maybe not.

I should cancel the appointment I've got with my primary care doctor on the 20th. I'm set to see her again in late August, after some blood tests. I've been holding onto the earlier appointment because it's really hard to get in to see her. I wasn't sure that I wouldn't have something else come up that made seeing her sooner necessary, but that appointment is during Art Fair, and UHS is challenging to reach by bus during Art Fair.
the_rck: (Default)
I did a little writing last night, less than 300 words. I was just too tired to focus.

When I tried to call a cab for getting to my appointment yesterday, I discovered that the company's phone was out of service. I used it nine days ago for getting to UHS, so it's a very recent development. I was at a point in time when I really couldn't afford to call around to see if any of the other companies I found listed on Google actually still exist (at least one listing was for a company that I know absolutely doesn't), so I ran for the bus.

I got lucky in that the bus was only about half full. I'd expected it to be packed at that time of day (around 8:30 in the morning) because that bus links commuter lots to the university medical center/hospital and to central campus. Possibly the fact that the students are gone made the difference, but I'm used to every bus before 9:30 being standing room only and not letting anyone on for the last three stops before the hospital. (We're four or five stops back, a couple of miles away.)

The clinician I saw agreed that, if I feel worse and am not sleeping using the c-PAP, that it's not actually helping. She prescribed a different mask, just in case that will help. The main reason, if I understand correctly, is that this mask and headgear shift where the hose is so that it may not cause me so much anxiety. Otherwise, we're going to hold off until after I see my psychiatrist on the 20th. The hope is that she can prescribe something, other than Ativan, that I can take at night so that I sleep more deeply. I have no idea what that might be. Benadryl doesn't make me sleepy. Melatonin gives me headaches that last for days. Ambien is off the table entirely because of my genetics being a terrible match for it.

After the appointment was over, I wandered around the medical center a bit, doing Ingress. Then I took the bus downtown, doing more Ingress along the way. About ten minutes after I got off the bus, I reached level 10 in Ingress. I had been hoping to do that on my birthday, but I was so sick that day and the next that it wasn't even remotely an option.

After that, [personal profile] evalerie and I met at Jerusalem Garden for lunch. I got a chicken shwarma sandwich that proved spicier than I wanted to be. I also got fries which the menu said would have sumac on them, but the waitress told me, when she brought them, that they don't put sumac on any more, just a pre-mixed salt and pepper (including cayenne) blend. I wouldn't have ordered them at all if it hadn't been for the promise of sumac, so I was disappointed.

Cordelia ended up eating my leftovers, half the sandwich and a lot of fries, when she got home. She complained about the spice in the sandwich but ate it anyway.

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