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Aug. 12th, 2017 10:53 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
the_rckI saw the nutritionist yesterday. She suggested that it might be helpful for me to see a nutritionist attached to one of the specialty clinics. She specifically mentioned two, but gastroenterology is the only one I remember. The other one made sense, too, but I can't for the life of me remember. The primary thing I need help with is dealing with fatigue and inability to sleep properly due to family realities. I spend a lot of time eating to stay awake or to stay able to think even when staying awake isn't a problem.
A lot of the advice for how I should eat also runs aground on anxiety related problems in terms of how my body responds to food. Both the reflux and the IBS are vastly dependent on my anxiety levels, not immediately but over days, weeks, and months. One bad day is trivial. One good day is also trivial. When I'm having a lot of anxiety, I don't dare eat much in the way of fruits or vegetables because they all spike the IBS. The things that are safe are things like plain potatoes, white rice, some types of bread, oatmeal, and plain pasta.
People keep saying, "Why don't you just sleep in a different room?" and then I laugh. The only available 'other room' is the partially finished basement which has no emergency egress and is therefore illegal for that purpose. Also, when you're down there, you can still hear everything happening upstairs. Someone just walking around is enough to keep sounder sleepers than I am awake (friends and relatives have complained about it).
Earplugs don't help, nor do masks over my eyes to keep out the light. The real problem is-- How to put it? Activation might be the best word, I think. I need to know that Scott and Cordelia are okay and in bed before my brain will let me settle. The only way to get around that is a lot of practice, possibly months before it takes, or medication.
I exchanged emails with the sleep disorders clinician I've been seeing. She says that she's got an idea for a different mask that might decrease my problems with coughing/sneezing from using the c-PAP. She doesn't think the one she originally prescribed to replace the nasal pillows is the right choice. I do think I might do better with a mask than with the nasal pillows because those keep moving out of place. I woke about three times in the early morning today because the weight of the hose had pulled the pillows sideways (I was on my back) enough that one was no longer anywhere near the right place. The machine still thought I had a good seal, so I have no idea how it measures that.
A lot of the advice for how I should eat also runs aground on anxiety related problems in terms of how my body responds to food. Both the reflux and the IBS are vastly dependent on my anxiety levels, not immediately but over days, weeks, and months. One bad day is trivial. One good day is also trivial. When I'm having a lot of anxiety, I don't dare eat much in the way of fruits or vegetables because they all spike the IBS. The things that are safe are things like plain potatoes, white rice, some types of bread, oatmeal, and plain pasta.
People keep saying, "Why don't you just sleep in a different room?" and then I laugh. The only available 'other room' is the partially finished basement which has no emergency egress and is therefore illegal for that purpose. Also, when you're down there, you can still hear everything happening upstairs. Someone just walking around is enough to keep sounder sleepers than I am awake (friends and relatives have complained about it).
Earplugs don't help, nor do masks over my eyes to keep out the light. The real problem is-- How to put it? Activation might be the best word, I think. I need to know that Scott and Cordelia are okay and in bed before my brain will let me settle. The only way to get around that is a lot of practice, possibly months before it takes, or medication.
I exchanged emails with the sleep disorders clinician I've been seeing. She says that she's got an idea for a different mask that might decrease my problems with coughing/sneezing from using the c-PAP. She doesn't think the one she originally prescribed to replace the nasal pillows is the right choice. I do think I might do better with a mask than with the nasal pillows because those keep moving out of place. I woke about three times in the early morning today because the weight of the hose had pulled the pillows sideways (I was on my back) enough that one was no longer anywhere near the right place. The machine still thought I had a good seal, so I have no idea how it measures that.
no subject
Date: 2017-08-13 01:34 pm (UTC)I hope you can get the CPAP figured out.
no subject
Date: 2017-08-13 01:36 pm (UTC)