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I'm going to try to update here more frequently and with something more than fic announcements and media logging (and I'm behind on the media logging). I think that part of me not posting has been me feeling like I have nothing to say that isn't depressing. Part of it is, also, very definitely, that writing about the things that stress me out makes me upset.

And not in the 'it will be better after I get it out' way.

Scott and I are fully vaccinated with the second dose having happened on the 7th of April. Cordelia has her second dose on the 1st of May.

Scott and I drove an hour each way, crossing state lines into Ohio, for our vaccine. The folks running the site said they were getting a lot of people doing that. The main drawback was that we had to photograph our vaccination cards and send the image to our doctors rather than having the vaccination site able to put it into our state's database.

Cordelia. End of senior year of high school and plans for college )

Cordelia's next try at the driver's license test will happen two days after her 18th birthday. I pushed for earlier, but she and Scott resisted both practicing and scheduling. I think that the scheduling actually happened when I pointed out that it would be better to pay for a license rather than for a state I.D. when she turns 18 and then a license later. She has to have one or the other for several things that we need to do before she goes to college.

The A-Ride people approved my card renewal. They also told me that, next time, I won't need to get the medical half of the form filled out. My disabilities are now clearly things that will only get worse rather than having the potential to change for the better. This is... Getting the medical half of the forms dealt with is a PITA, but I'm also unhappy to have to look directly at my increasing disability.

I know that it's there, and I've talked (very briefly) to Scott about it. We can't do much about it right now because I adamantly don't want to include Cordelia in the discussions. I don't want her to think there's a reason for her not to go away for college or that she will need to come back here afterward.

My physical health or, rather, lack thereof )

I've told Scott that we need to do some sort of couples counseling around how we deal with my disability because the ways we're currently handling it aren't emotionally sustainable for either of us. We just can't do it until either Cordelia moves out or we can go to appointments in person, leaving her at home. Some of the problem is communication styles (Scott was raised in ask communication whereas I was raised with offer), and some of the problem is how much of our life he's going to be carrying and how unfair it is to both of us. I don't think that any of that is stuff we can manage without help.
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We didn't do a lot over the weekend. Scott played some board games online and did the grocery shopping. We were late in considering Valentine's Day food delivery options, so we ended up not doing that and just ordering bubble tea for pick up.

I'm making steady progress on my LTD paperwork. I still need to call my psychiatrist about her portion of it and about how to get the forms to her. I've been waiting because my section needs to be done before I can hand the packet over, because I wasn't sure about my ability to sign my name, and because I have no idea how we'll manage the hand off. We don't have time for mailing, not when that might take weeks, and I can't get downtown unless Scott's home.

Scott has his birthday off, the 24th, but that's kind of a tighter turn around for the doctor's part of things than I would like to demand. The paperwork has to be in, mailed or faxed, by the 2nd of March.

I think the main reason I really managed to get things done on the paperwork last night was that I took an Ativan. A lot of what I'd already written had to be tossed because it was me panicking and babbling rather than answering the questions. Not that any of it wasn't true or even relevant, just that it wasn't what they asked for. Without the Ativan, I probably would have kept flailing.

A-Ride renewal related stuff )
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I wrote this the afternoon of the 10th and neglected to post it, so please mentally re-date 'today' references.

Hands/wrists )

Since it's February, I have to do the long term disability review to deal with. It's anxiety provoking and otherwise challenging. My brain's not working linearly, and I'm not sure I'm writing the right things in the right places. I'm not sure what I'll do with the bits that I have to sign. Right now, I can't possible manage that. Well, maybe with my left hand? I can sort of print with that hand.

I saw a neurologist the last week of January. This visit confirmed that whatever the hell is going on with my hands/wrists, it's not carpal tunnel. The doctor I saw was a resident who spent a lot of time with me. My assumption is that there aren't many patients coming in for face to face appointments.

A-Ride related stuff )

Cordelia had a choir concert last week. It was a big Zoom lecture set up and only ran about half an hour. Usually, the in person concerts run more than two hours, but each number in this concert represented many hours of work by the instructors to combine the audio recordings made by individual students.

(I think there are also copyright/performance and student privacy issues that are still being worked out about this sort of concert, issues that differ from what a high school choir doing an ephemeral performance would usually need to consider.)

Cordelia has auditioned for and gotten a solo for an upcoming Blues piece. It's not the solo she wanted most, but she's thrilled to have gotten one at all.

I haven't heard anything further from my mother about her prognosis or treatment options. I also haven't talked to her about anything beyond making sure she had the link for Cordelia's concert. I want to know what's going on, but I don't want to push too hard given that I can't offer help in any way that she would accept. Even if I was physically up to travel and such, I don't have the necessary i.d. for flying. I've been waiting to try to get a copy of my birth certificate because it doesn't feel important enough to ask somebody to commute to an office for that.

I suppose that, after a year, those offices must be functioning to some extent because people are still being born, dying, marrying, and divorcing, but... It seems like trying to get my birth certificate ought to be low priority since it's not really safe to fly right now anyway.
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I'm still having trouble walking today. I didn't expect that because, usually, even when I do that much walking, the pain doesn't last this long. My feet are aching when I put weight on them, and my calf muscles are still cramping.

I had to make a trip to Kroger today (I needed eggs, and we only had one), and I wanted to do more walking around. I even planned it so as to have manageable bits, even with the aches and cramps, but the bus was detoured. There was a train broken down and blocking the only connecting road, so the bus just skipped a big chunk of its route.

I had intended to get off by the Traverwood library, return some things, and then walk the rest of the way to Kroger. The detour meant that I was carrying the full library bag through my entire shopping expedition. By the time I was done shopping, they'd cleared the train, so I walked to the library and emptied that bag, but it wasn't a happy trip because I had a bag of groceries, a bag of library stuff, my purse, my water bottle, and still another bag with just the carton of eggs.

Fortunately, I only had to wait about five minutes for the bus home from the library. I just wished that my holds were at Traverwood. I still have to go downtown for those at some point this week. I have PT on Thursday, but I wouldn't normally go downtown after that. Whether or not I do will likely depend on how I feel after the appointment. I want to carry the equipment that I use for my daily exercises with me to the appointment, and I don't much want to add library things for the return trip.
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I overdid yesterday. If it hadn't been Thursday, I'd have been okay. If it hadn't started pouring as I got off the bus near Arborland, I might still have been okay. I didn't have an umbrella because I'd been out of the house for hours at that point. I don't habitually carry one because of the weight.

All of the stuff I needed to get done before I left for my appointment took longer than I expected it to, and there were always half a dozen things that needed doing with no clear priority as to which were more important.

I got to my appointment with plenty of time to spare, and they saw me on time. At that point, I walked up to the Mott bus stop and caught the Washtenaw bus to get to Arborland. I've not taken the bus that way since before Cordelia was born, so I wasn't sure exactly where the stops were or where the crosswalks were. I got off the bus earlier than I probably needed to.

After I got my glasses, it was past 1:00, and I needed to eat something. I didn't want to have to cross Washtenaw twice, so I limited myself to considering what was on the side of the street where I'd need to be to catch the bus back. I ended up getting a burger a couple of doors down from the glasses place. I considered Noodles & Company and a sandwich place, but the former tends not to have great options for, and the latter was across a pretty big parking lot. I didn't consider Chili's for more than about two seconds because I'm pretty sure they have zero things on the menu that are me-safe without major modifications.

The burger wasn't terrible, but it also wasn't spectacular. I didn't get fries because they had big signs saying they fried in pure peanut oil. I considered stopping at Coldstone Creamery after that, but I was still soaked and chilled and needed to catch a bus home.

There are multiple buses running along Washtenaw, and I didn't care which one I got as long as I could connect to one of the two buses that pass near our house. I ended up on one that took a longish route to get to the downtown transit center, so it's possible that I could have gotten home sooner if I'd waited. It was also chilly on both buses on the way home.

I discovered that the awnings at the Blake Transit Center actually leak at the seams and are really weirdly placed. They cover the parts of their driveway where the buses park but not the sidewalk where people stand while waiting or walk while going to a different bus.

The cleaning lady was here when I got home at 3:30. I kind of really wanted to shower in order to warm up and also wanted to sleep for a week. She was cleaning the bathroom, however, so I couldn't get in there until after 5:00. Dinner and a Gatorade woke me considerably, enough so that I had trouble falling asleep at bedtime.

My right calf muscle has been cramping since around the time I got to my appointment yesterday. I've taken naproxen which has helped, but I don't want to do much walking right now. Which is inconvenient because it would be very useful if I'd managed to get myself out to Kroger as we've run out of a few things. It's a little late for me to do it now without Scott having to make an extra trip to bring me and the groceries home.

The next bus there would get me there near 5:00 which is when Scott leaves work. He might hit Ann Arbor as early as 5:30 or as late as 6:00, so it's still possible. I just don't want to.
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I have an appointment at 3:30 this afternoon. The timing is awkward because getting the bus home from medical campus after 4 p.m. means either squeezing onto a bus that's barely got standing room or going downtown and catching a different bus home. The former is much faster, a lot faster.

If it's warm and not raining, I might just walk home. Intersecting with the other bus line without going downtown is iffy and might have me standing at a stop for half an hour if I'm unlucky. None of the stops I can walk to have a bench, and there's only one bus every 30 minutes.

I have two goals for today. The first is canon review for one of my two projects. The second is changing our sheets. I figure there's at least a chance that the missing library CD is somewhere in our bed.

Cordelia's English class will be reading The Catcher in the Rye. I'm not sure what else is on the syllabus.
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Scott took yesterday as a vacation day. He started out by getting the oil changed while I did some cleaning. I stripped the bed and swept and mopped parts of the bedroom. There are still bits that are very dusty, and I need to see about getting the bins out from under the bed so that I can make a list of what's there.

I wore a dust mask, and that seems to have helped. I was exhausted after the cleaning, but I didn't have an allergy attack.

We went out to run errands after that, but we'd forgotten that the bank would be closed, so we weren't able to manage the bit that I particularly wanted to accomplish. We got the grocery shopping done anyway.

I started a migraine around the time we got home. We had planned to go out for lunch, but Scott was very reluctant to go downtown. We ended up at Zoup which was okay but not what I was hoping for. We tried to stop at Wendy's after to pick up some burgers that I could put in the freezer, but the drive-thru line was quite long and the indoor section was closed.

An Amerge got my stomach a bit settled. Scott put sheets on the bed so that I could lie down if I wanted. I didn't because I was afraid that I'd start sneezing. I had a doctor's appointment at 2:30, and allergies would have made that miserable because the staff would have made me wear a mask.

Scott and I talked a bit about how our differing communication styles give us problems. We didn't reach any useful conclusions about how to manage it. It's very obviously hurting both of us. Scott feels like I'm trying to make him feel guilty, and I feel like he's not paying any attention to what I'm saying.

I'm pretty sure that the discussion was a big reason for my migraine.

The appointment went well, but I need to go back in December for a skin biopsy. I texted Scott to tell him that I was done. He didn't reply for quite some time. I told him where I was, and he didn't tell me what he was going to do, so I walked toward the bus stop. When he got back to me again, I thought he hadn't even left home, and it was three minutes until the bus was due at the stop nearby, so I told him not to come.

Then I got on the wrong bus. Once I got off that, I texted Scott again. I didn't hear back from him for quite some time, so I had gotten almost all the way back to the bus route I needed by the time I heard from him. I was facing a difficult street crossing, so having Scott come and get me was easier.

He didn't understand what I told him about where I was because I used the street name. It's a very complicated intersection with about five different streets colliding with each other. I was halfway through the crossings I needed (I'd done two of four) but had to cross back after Scott arrived because he ignored the street name (apparently he didn't know which street I was talking about. We drive on it every time we go to the library, but he's never learned the name) and used Life360. Traffic was heavy.

Scott made waffles for dinner. That was nice.

I'm going to make a shared Gdoc that lists all of the things that we need to do that I need Scott's help with. He feels ambushed when he has a day off or a weekend and I tell him we have things we need to get done. I really don't understand that because it's predictable. There are things that need to get done that I can't do.
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I managed to mismanage my time yesterday afternoon. I got a lot of chores done in the morning-- three loads of laundry and changing the sheets. The mismanaging part started with me intending to pack some sort of protein-ish thing that I could eat while out. I hoped to buy something downtown, but I meant to pack some almonds or something to have a backup.

Part of that was me dithering about when to leave and whether or not to wait for Scott and let him drive. As it turns out, I should have waited because he left work at 4:00 and really could have gotten me there by the time I had hoped to arrive.

I got downtown and started looking for where I wanted to get food. Then Scott's sister texted me to ask about the surgeon I had for my lumpectomy. Scott's mother saw the same guy yesterday. I ended up going to Starbucks and buying a coffee and a cheese danish which wasn't really what I needed, but I wasn't quite sure where else to go to talk to Scott's sister.

We ended up talking awhile. It sounds like the plans are set for Scott's mother's treatment-- lumpectomy, surgical biopsy of another site that they think is just scar tissue (pathologist in the OR), then radiation. They don't plan to check lymph nodes. Scott's sister had the impression that it was because of her mother's age. I'm a little puzzled by that; I could see asking her if she wanted the checking done or not based on the odds of finding anything and the repercussions of that part of the surgery and of whether or not she'd be up to dealing with chemo if they found something. Unilaterally deciding not to check seems weird unless there's some other reason.

At any rate, the 20-30 minutes of talking to Scott's sister threw me, not so much the time involved as everything else. I set out to try to intersect the bus going to Skyline but was off by about 10 minutes in terms of how long it would take me to get to where I meant to do it. That bus is so crowded that I wanted to get on as far out as I could, and I ended up missing it. The next bus actually going to the school wouldn't have gotten me there until 5:30, and Scott was actually at the school by a few minutes after 5:00, so he came and got me.

The meal part of Music and a Meal was pancakes, turkey sausage patties, and applesauce. I didn't dare touch anything but the pancakes, and I really desperately needed something that wasn't pure carbohydrates. They had coffee, but I decided against because it wouldn't have been a particularly good substitute for the protein I wanted/needed.

There were small musical performances at either end of the cafeteria between 5:00 and 7:15(ish). We could only hear bits even though we were sitting pretty close to one of the performance areas. Cordelia only participated in one set, at about 7:30 with all of the choirs together. We were all able to hear that, and they sounded good.

I liked not being trapped in the auditorium, and the set up gave families more flexibility about when parents arrived, but sitting at the lunch tables for two plus hours wasn't great. Last year's set up meant that late arrivals didn't get food because they stopped serving at the point when the performances started. Last year's event also ran longer.

I started feeling more functional after I got home last night and was able to eat some almonds.

I've got a moderate sized to-do list, but some items on it will expand to fill as much space as I let them. My current plan is to knock off some of the things that can be done more quickly-- filling and running the dishwasher, getting the trash/recycling to the curb, a phone call. Of the more time consuming things, I'm planning to start with my absentee ballot. I know how I'm voting on some things, so I'll fill those out and then start researching the others. Michigan no longer allows straight ticket voting, so I'll have to manage to fill everything out without that short cut to save my hands.
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Scott has been very sick all weekend so far. He wasn't able to do the grocery shopping yesterday, and it's up in the air as to whether or not he'll be up to driving me to the store today so that I can do it or even up to sitting next to Cordelia so that she can drive us all to the store to do it. Cordelia's expressing her worry about Scott being sick as concern that we'll run out of food.

If I'd thought to, I could have gone out there by bus yesterday, done the shopping, and then come home by cab. Today, the bus I would take to get there only goes part of the way there. On Sundays, the route ends at a stop that's further from the Kroger than our house is. There's another route I could take for getting there, but it involves crossing busy streets where there is construction around the bus stops on the side I'd be getting off. I suppose I could ride the bus to the end of the route and then back and get off on the Kroger side of the street.

Scott feels guilty about the idea of me doing the shopping tomorrow. More guilty about that than about Cordelia worrying that we'll run out of food. I'm not sure how to address that one.

We need to return some library items today, one of which can't be renewed. None of my holds expire until the end of the day on Tuesday, but if I take the bus downtown to return that one DVD, I might as well return everything else and pick up my holds. The Traverwood branch of the library is out near Kroger (but not served by a bus route on Sundays), so I could return things there if we all go to Kroger. It wouldn't be a major detour by car (it's a 15-20 minute walk for me from the library to Kroger, but I don't walk very fast).

Tomorrow, I need to be at Skyline at 5 p.m. for a performing arts fundraiser. It's a pancake supper with kids performing 'informally' during the meal. I'm hoping that Scott will be well enough to attend. We've already paid, so it's not so much a question of whether or not the choir gets our money as whether or not Cordelia gets to have her parents physically present to support her.

Tomorrow is also when Scott's mother will see someone at the cancer center about their recommendations for her course of treatment. I'm not sure what time that appointment will be, and we're all kind of on edge about what happens after.

Maybe, if they're in town anyway, I could have them drive me home from grocery shopping? Them dropping me off at the school is a non-starter because of timing and because of the location of the school. I really don't want to arrive there earlier than 4:45, and I'd rather arrive at 5:15 than 4:45.
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Yesterday's plans got changed not long after I posted. I had a neurology appointment scheduled for next June to look into my hand tremors, and they called this morning to ask if I could make it at 1 p.m. yesterday. I decided that that was likely to be more important than the parent-teacher conferences and that it was possible I'd still be able to manage the conferences anyway.

Cut for length more than for TMI )

After the appointment, I caught the university shuttle to the hospital. I didn't realize how long that would take. I'd been under the impression that it was just out and back, but this one meandered through several different far flung university properties. I didn't get downtown until 3 p.m.

A bit after that, while I was trying to figure out which bus I needed for getting to Skyline, my phone died with no warning. Fortunately, I had a charger with me and was able to get it back, but it had been at 50% less than half an hour before. Playing Ingress depletes battery charge, but it doesn't eat through it *that* fast.

At any rate, I stopped at the Starbucks on Main St and got coffee because I was cold. I'd left home without a jacket because I hadn't realized how bad the wind was. I'm normally good with short sleeves down to at least 50F, but yesterday was unpleasant.

The city bus company's online ride planner was broken. It wouldn't accept anything I put in as starting point or destination. I'd had problems with it earlier in the day but had hoped that it would be fixed. At any rate, I resorted to Google for route planning which... was not a rousing success. It told me to get the Miller bus at Main and Huron, but when I got there, I couldn't see a sign for a bus stop. The signs are tiny, and the stop could have been anywhere within half a block of the intersection.

I ended up walking on to Miller and trying the route planning again. At that point, it told me I'd missed the bus I wanted and would have to wait 25 minutes for another one. I decided to walk up Miller for that time because I'd have frozen if I'd stayed at a stop that long. Also, standing hurts more than walking for the same duration.

The bus I finally got was packed. No one was standing, but there were only about three empty seats. It went to the commuter lot first, and everybody got off but me and the driver. Then it went to Skyline. I was a little surprised to be the only person going there, given parent-teacher conferences, but I was.

I got to Skyline a bit after 5 p.m. I saw Cordelia's science teacher (no line) and math teacher (long line) before Scott arrived from work. All of Cordelia's teachers this trimester are women.

Scott and I went on to talk to Cordelia's English teacher (who really, really loved the idea of a book club) and choir teacher and psychology teacher.

Then we went home, and I fell over, and Scott and Cordelia went to Kroger to pick up prescriptions.

I'm now two weeks behind on The Good Place, but I can't think well enough to watch it and appreciate it.
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Generally speaking, looking at the summary for Yuletide signups depresses me in terms of the vast number of things that I can't write and/or don't even recognize. There are things that I know well (such as the Georgette Heyer books) but don't dare offer because I'm not reliably able to write for canons that lack some sort of speculative or fantasy elements. Things that I can write and know I'd be really enthusiastic about writing tend to get many, many more offers than requests.

I will certainly offer those fandoms anyway. I'm mostly dithering about offering things that nobody's asked for and offering things that have been requested but that might be challenging in one way or another-- having to buy a DVD, having to reread several books or to rewatch seasons of a TV show, having to figure out which character is which for a music video when the nomination/request relies on the writer knowing the musician's names to associate with the characters, or canon having a particular tone/voice that I'm not sure I can match.

I'm trying to get myself to wake up enough to start in on The Things That Must Get Done. The cleaning lady comes today, so there's a long list of stuff I need to do for that. It's also parent-teacher conference night, and Scott will get back to Ann Arbor in time to pick me up after, but he's not likely to make any part of it. The conferences start at 5 p.m. and involve waiting in lines to see each teacher. I don't feel a burning need to talk to the choir teacher, so I only need to deal with four teachers and their lines, but it's not much fun. I'd like to take a chair with me, but I don't want to carry it on the bus, and taking the bus makes sense for a lot of logistical reasons.

Dithering about dinner and transportation options )

It occurred to me when I woke this morning that the dreams I keep having about trying desperately to find food and being constantly frustrated by circumstances really strongly resemble the dreams that I have about trying desperately to find a bathroom and thus might arise from a similar conflict between my need to sleep and my need to deal with other bodily imperatives.
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So far this morning, I'm feeling pretty good. I might still end up with a headache later, but right now, that bit of me doesn't hurt. (Though I'm wondering if I can give myself a headache from stressing about potentially getting a headache in the same way that people can have panic attacks out of fear of having a panic attack. The situations would seem analogous.)

Medical appointments and irritation. Very little medical detail )

After I had rescheduled, I took my pre-breakfast meds. One of them has to be taken 30 minutes before food (I had leftover ginger chicken that Scott had made and some carrots and a Dr Pepper). I wanted to eat before I tried getting the bus. There's a ban on eating and drinking on the bus (not unreasonable), so eating during the trip wasn't going to work. So I set an alarm for 30 minutes and started walking around. I thought I'd circle the building.

What I failed to realize is that the place isn't set up for pedestrians. Each end of the building abuts pasture. The first of those had a clearly marked electrified fence. I didn't see such signs on the second, but I also wasn't nearly as close to the fence. I ended up taking an hour and a half to circle the building, and much of that was added on time because of having to go around the pastures, too. There also weren't any sort of paths or sidewalks along the roads around the pastures, so I worried a good bit about traffic in places.

The Ingress stat for distance walked ticked over from 910 km to 915 km. Some of that may have been either on the bus trip home or the drive there, but most of it was probably me walking. I hacked and/or captured a bunch of new-to-me portals. There were some I could see and considered pursuing, but I really needed a restroom, and those portals would have taken me at least another ten minutes and were in the opposite direction from where I was certain I could find a bathroom.

The university bus stops at Domino Farms have no signs to indicate where they are. You have to ask or to already know. I asked the driver if there was a way for me to switch to the city bus, and he told me that he could stop at the park and ride lot out by 23. The bus I wanted stops there before turning back and heading into town, so that worked. I only had to wait about ten minutes, and the park and ride lot has a shelter with a bench. At 10:30 in the morning, no one else was waiting there.

The driver of the university bus reacted as if my question was unusual which surprises me. I suppose that there aren't that many people who want to make the switch that early in the route. Or maybe people don't generally ask the drivers about that sort of thing?

At any rate, being able to get the university bus from the park and ride lot makes using it more feasible than I had thought it was (my first look at the university bus route website left me with the impression that it didn't stop between the hospital and East Ann Arbor. Apparently I misunderstood). I'm not sure how long getting to the park and ride lot by city bus will take, but it shouldn't matter whether I get the A or the B route because both end there and both run their routes in the same length of time.

I spent a lot of time yesterday with the lights off because they made me feel worse. I took Tylenol then naproxen about three hours later. I also took both Amerge and Ativan. I suspect that the Ativan helped most. I also had some unsweetened black tea, just in case it was a caffeine problem.

Scott took Cordelia to choir registration. They were back much faster than I expected.
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I saw my doctor yesterday. She's not pleased with the endocrinologist because she thinks he's wrong. I pointed out that, even if she's right and he's wrong, there's damn all we can do about it. I eat the things I eat because I know that they don't make me sick in the short term (less than 24 hours). Most of the things she would like me to eat actually do make me sick or require preparation that I'm not physically able to manage.

She was a little astonished when I told her that beans are excellent (canned only) because that's completely against accepted information about IBS.

No advice on this, please. You're unlikely to come up with anything I haven't tried and can afford.

Getting home after the appointment was a serious PITA. I had to schedule an ultrasound before I could leave the building, and that took a very long time. I had, at that point, just barely enough time to get to the bus stop and then home to be able to eat and take my lunch meds. When I got to the stop, I saw that the street the bus would usually take to get to the street where the stop was was blocked. I checked the bus website to see if the bus was rerouted. Nothing. I looked for any signs in the vicinity to tell me there was a detour. Nothing.

Then I saw the bus I needed turning onto the street I was on from the next cross street down, bypassing the stop where I was completely. That bus is once every 30 minutes and takes about 15 minutes to get me all the way home. There's another bus that's every 15 minutes and takes about 25 to get me all the way home. I'd have had to walk about 10 minutes to get to a stop for that, so it wasn't going to help at all.

I realized that I was going to have to buy food out in order to be able to take my meds, so I walked from downtown to the diner that's about halfway home. I got there in about 20 minutes. Cordelia joined me for lunch. Then she caught a bus to the library, and I walked the rest of the way home.

Our cleaning lady had been panicking a bit over me not being there when she arrived and not having left a note (I should have told Cordelia to leave one. I didn't think to). The cleaning lady was afraid I was in the hospital again.
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We got home around 3:00 yesterday and more or less collapsed. I need to do a load of laundry, but I'm not sure we have enough laundry detergent for it.

I had planned to try to do the grocery shopping today and to time it so that Scott could pick me up on his way home from work, but apparently things blew up over the course of the last week, and he's going to be staying until it's done every night this week. I don't want to do it by bus because we need distilled water, laundry detergent, and almond milk. I could carry one of those three but not two. I think I'm going to have to ask around to see if anyone local can help out.

The week is going to be busy. I had to go to the credit union today because our first payment on the home equity line of credit was due and Chase's payment portal hadn't been willing to have the UMCU as a payment destination. I've got it set up now, but I'll have to go down there again if the monthly payment goes up more than about $10 a month (which it might after the garage roof payment).

Wednesday is Skyline's makeup registration day for those who couldn't go in last week. I don't expect the registration to take very long at all, so my current plan is for me and Cordelia to go downtown for lunch and then take the city bus to Skyline.

Thursday morning, I have a doctor's appointment. I don't think that will be a big deal because it's my primary care doctor. That's an easy bus ride both ways.

I just placed an Amazon order. I needed more Gel-Kam and then added a few things from my wishlists and from Cordelia's. I shouldn't have spent the money, but I really wanted to do something nice for myself.

I managed to do some writing last night, the first since the 11th. That's my longest dry spell this year. I'm pretty sure August is going to be my lowest word count month this year. I'd need to more than double what I currently have in order to equal February's count.

Last night's writing was meant to be part of my Iddy Iddy Bang Bang story, but it took a left turn at Albuquerque to create yet another branch of Not Ready to Swallow Oblivion. I finished that story this afternoon which means that my IIBB story is still not working right and that I have another 3K word story to edit and post. The new thing is, at least, something easier to find a beta reader for than the IIBB story.

(I'm probably not even going to try to find a beta for the IIBB story. The whole needing to read 100K of other stories first combined with Yuletide sized fandom and darkfic and explicitness and... I don't need a pony. I need a unicorn.)

I only got about five hours of sleep last night because I couldn't fall asleep to begin with and because I couldn't get back to sleep after Scott got up. It was just too difficult to find a position to lie in that didn't start hurting just as I was about to fall asleep. The result is me having trouble with basic arithmetic for things like bus schedules. For some reason, when I got done at the credit union, I looked at the time and somehow subtracted 35 from 48 (the outbound bus leaves the transit center at :18 and :48) and got 8 instead of 13.

I checked the time more than once as I walked to the stop and never spotted the error. That left me kind of panicked when the bus didn't come right after I got to the stop because I knew I took more than 5 minutes to get there and because it's only three blocks from the transit center to that stop.
the_rck: (Default)
I hurt more after PT than I had before. The PT had managed to get some of the tension out of my neck and shoulders, but that hurt, too, just differently. She said that my top rib on the right was pulled up again.

Cordelia and I met at the library to return books (I couldn't carry all of them, so she had a bag, and I had a bag). Then we walked to Totoro and had lunch. After that, we went back to the library separately because she gets impatient walking with me at my pace.

I picked up my holds but couldn't fit all of them into my bag. I considered leaving some to pick up later, but I didn't want to accidentally leave something that was about to expire and was rushing to catch a bus. I didn't want to have to wait another half an hour for that.

I took the #3 bus from Blake to St Joe's. It wasn't a trip I'd made before. There was another bus I could have taken (the #64, I think), but it would have taken ten minutes longer to get there and left at the same time. Both buses were once every half hour, so the #3 was really the better choice.

My SIL looked really exhausted. Our BIL did, too. Nobody's been able to persuade him to leave the hospital to go and sleep, so he's been catnapping in chairs since Friday. While I was there, they moved her from the surgical ICU to a ward with a lower level of instant intervention capability because they felt she was recovering as she should.

Our BIL just texted to say that she might be allowed water today. I really hope so. Her hemoglobin levels are holding steady, so she's probably not bleeding internally any more. They had her walking a little bit yesterday with someone next to her, just a few feet out and back.

Scott's parents gave me a ride home from the hospital. They were on their way home and trying to figure out the best route for missing the heavy traffic on 23 at that time of day.

We have the big family vacation scheduled to start on the 19th of August. Normally, my SIL would be a big organizing force for making sure people kept busy and meals were properly planned. The location is pretty much only good for hiking and for water activities. I don't think she's going to be up to any of that, not three weeks out from major abdominal surgery. I don't know if she'll even be good to be away from her doctors for that long.

I'm trying to figure out if there's some of this that Cordelia and I can help with. I'm not touching the outdoor activity planning because I have (and had) no intention of participating. Given my phobia, the water activities side would be a form of hell. The meal planning part... I was assuming that I'd be preparing my own food and eating on my own schedule because what I need is opposite from what everyone else expects/needs. If I'm doing that, then people can eat normal food at dinner time rather than trying to season things only with salt.

I suppose the first step on that is to make a Gdoc and share it. If anybody else has already done that, I'm not aware of it.

I think I remember Scott saying that there's a grocery store not too far from where we'll be staying. I hope I'm remembering right because that would make things massively easier for me. For everyone really.

Hm. It looks like there's a small store in walking distance and like everything else will require driving. Less convenient. Quite a lot less convenient given that I can't drive.

I'm going to have to figure out reasonable storage for food during the drive from here to there because there are certain specific things from specific brands that I know are safe. I can't be sure of finding them at a random store four hours from home and can't tell from looking at ingredient lists whether or not something unknown is safe. A lot of things that make me sick fall under 'natural flavors' or 'spices' on ingredient lists.
the_rck: (Default)
I got better sleep last night than I expected to which is good because the day got stressful in ways I didn't expect. Scott's sister called me about 9:15 to say that she was waiting to hear from her doctor about whether or not she needed x-rays for her neck.

I was out the door on my way to my appointment not long after. The appointment was at 1:00, but I thought I would be better off getting out there early and then buying lunch (searching the fridge and cupboard yielded very little in the way of portable foods-- crackers, bagels, almonds, chocolate chips. We're out of safe-for-me lunchmeat and of all jams/jellies and almond butter. I could have gone with margarine and/or cheese on a bagel, but I didn't think I'd be able to swallow that).

I ended up having lunch at Olive Garden. I got off the bus before Wolverine Tower. The route went through a commuter lot a good way back from the intersection of State and Eisenhower, and I got off there because it occurred to me that I'd be better off walking from there rather than walking equally far and still having to cross both streets.

The restaurant where I hoped to have lunch turned out not to be there any longer, so Olive Garden was my best option without crossing the streets anyway. It wasn't a great option because I ended up with basil in my food. Three hours later, it's still haunting me. I'm just hoping it will be gone by bedtime.

The appointment was largely me talking to the OT to figure out what we need to focus on. The next step is getting some photos of how I sit and what options I have in that direction. I also need photographs of how I lie when I'm trying to sleep.

She's pretty sure that the finger/hand numbness is referred sensation from tension in a couple of specific neck muscles. She showed me a map of what they do, and where they are. I think she's likely right because none of the nerves that might be pinched would do quite what's happening here.

She suspects, based on what helps and what doesn't, that my hand tremors are due to muscle weakness. All of the weighted and extra large handled stuff makes my problems worse, and that's not consistent with what usually causes tremors that look like mine. The way she put it was that the various muscle groups that ought to be working together to give me fine control are playing hot potato with responsibility for doing the work.

After the appointment, I walked toward Main Street. [personal profile] evalerie texted me after I'd been walking a bit, and she came and picked me up. I'd been thinking that I'd catch an inbound bus eventually as there are some through there. It's just that none of the stops are shaded, and if I was going to be in the sun, I wanted to walk rather than stand. Standing five minutes is much, much harder than walking for an hour.
the_rck: (Default)
I survived the CT scan. I have no idea when I'll get a report on it. The first available appointment with the gastroenterologist is the day after Christmas. I had some difficulty convincing the scheduler that, no, really, I couldn't see the doctor at her other office, half an hour away. I think I had to repeat myself three or four times about the not being able to drive.

They had me drink water instead of the contrast solution. Water didn't make me sick, but I'm not sure what purpose it actually served since it was mostly out of my body by the time they actually did the scan.

They used an IV iodine contrast, so I now know that I didn't inherit the allergy to it that runs in my father's family. Getting the IV set up was difficult. The technician (nurse?) who did it rejected the veins at my elbow, tried one in my hand that didn't work, then wrapped my forearm in a warm blanket for five minutes and set me up with an IV midway down my forearm. I didn't know they could do that. It hurt so very much less, and I could bend my arm and use my hand. If they'd had any reason to take my blood pressure, the IV would have been well out of the way of the cuff. I shall request forearm IVs when I need them in the future.

(They can only use my right arm for blood pressure, injections, and IVs because I've had lymph nodes out on the left.)

I tried sleeping last night without any Halcion, and I think I shouldn't have. I tossed and turned and was acutely aware of every twinge of pain. I slept for about an hour before Scott's alarm went off, and it was all very intense dreams (multiples dreams in a very short time). I haven't been back to sleep yet because all of this resulted in a migraine.

I've taken Amerge for the migraine and have eaten a bit. I'm going to see about showering and doing the preparation for the cleaning lady. Then, I'll have about four hours in which I might be able to sleep. Possibly. Maybe. My body has certain rhythms that require me being awake between about 8 a.m. and 11 a.m., and the cleaning lady comes at 2 p.m.

Cordelia now has her learner's permit. The wait at the Secretary of State's office was long enough that I took the bus home after the CT scan and spent nearly an hour chatting with neighbors on the walk from the bus stop and still got home before they did. I'd been hoping that they'd be able to pick me up after, but it was not to be. It's just that the bus past the hospital is only once every half hour after 6 p.m., so I had a very long wait. I watched about eight university buses go by and got cranky that none of them were going anywhere remotely useful to me.

Cordelia thinks I should find a different coping strategy for anxiety than getting cranky. She thinks it's counterproductive. I have pointed out that it lets me do a lot of things that I really, really need to do and doesn't stop me from getting other things done. It's just not necessarily the most pleasant thing for people around me.
the_rck: (Default)
I was up with Scott today so that I could get a bus to the hospital for PT. I got there 45 minutes before my appointment, but that was the last run of that bus until late afternoon, so I really didn't have a better option. I consider taking the #23 a worse option at that time of day.

After PT, I took the bus into town to visit the credit union. They claim the problem's fixed, and I was able to log into our account there, but I still couldn't do it from home. That meant I needed to call them to ask them what was going on. This is twice that I've had to go in to 'fix' the problem without it actually being fixed. I think it's okay now, but I really didn't want to have to call.

I have to call to make some appointments, too. I don't want to, but it's necessary. Cordelia's annual check up will be a serious PITA. There's no way to do it before school starts, so we'll have to figure out transportation for that.

I stopped at the library and returned some things and picked up my holds. I got lunch at Which Wich and did a lot of Ingress. I think I spent too much time out and about because I'm feeling pretty sick now. I don't have to do much tomorrow until late in the afternoon, though, so hopefully, I'll have time to recover.

I'm trying to call the A-Ride number to ask about purchasing scrip, but weird things are happening with the number in the guide PDF. I get a connection and then completely dead air. I let it go a minute and a half one time. As far as I can tell, I'm not on hold. The number connects to something. Damned if I know.
the_rck: (Default)
Scott and I went out and looked at bus stop locations yesterday evening. I concluded that, for getting to and from OT, it makes more sense to go to Wolverine Tower and to walk from there. The bus trip is shorter, and the necessary walking is much the same as from the stop that's technically closer.

One of the three ladies who was supposed to come for the write-in yesterday had a family emergency, so there were only three of us. I wrote about 500 words on another one of those projects that I'm adamantly not working on.

I have three fics in the Nonconathon collection (which opened last night) and have received comments from two of the three recipients. I'm getting hits on all three but not many kudos. I'm not sure if it's just that this set is misfiring or if it's that the people who'll enjoy them haven't found them yet. Who knows?

I'm not sure there will be writing this week. I have an appointment Tuesday, two on Thursday, and one on Friday. We're spending today with Scott's parents, and I'm kind of exhausted. I don't know how tomorrow will go.
the_rck: (Default)
We had a relatively laid back holiday. Scott built a fire in the portable fire pit in mid-afternoon so that I could have a 'smore. I've been watching him and Cordelia make them in the evenings, when I can't eat such things, for weeks now, so I was pleased to get the chance. It was horrifically hot for a fire, though, so we were only out there as long as was necessary for safety.

We got carry out Chinese food for dinner because Cordelia's guest had had pizza too recently. Also, getting pizza would have meant me needing to scrounge for other food. Pizza cheese tends to make my reflux act up. Normal cheese doesn't, so I don't know if it's the blend or something they're adding on top (even though I tell them no seasonings but salt). Pizza after 2 p.m. is just not a wise thing for me.

I finished a reasonable draft of a second pinch hit for the Nonconathon. I'm still looking for a beta reader for it, but I think it will be acceptable without, just better with.

I have changed the sheets on our bed. The dirty sheets are washing. One of the new fitted sheets is seeing its first use (the second is still in packaging as it's easier to store that way).

I still need to deal with a few things in the kitchen before the cleaning lady comes. I'm going to do those in short bursts because it's very hot in there with no air movement at all. I just can't tolerate it long.

Cordelia's friend from middle school visited yesterday and stayed until quite late. They watched Marvel movies with Scott (he has a tradition of watching Captain America: The First Avenger every year on the 4th). Then, about 10, they went out with the friend's parents to drive around to see if they could spot any fireworks (this is apparently their family tradition). Cordelia got home about 11:40, so I got to bed after midnight.

The decreased dose of Halcion is leading to me waking more frequently in the night and having pretty constant anxiety dreams. I was still pretty exhausted when I got up at 9:00 and felt like I needed more sleep. I just also knew that I needed time for the pre-cleaning lady chores. I'll be seeing my psychiatrist next week, and I'll ask her about the Halcion. I think I sleep better with it, but I also know that it's the sort of thing that rings warning bells in doctor's heads when they see it on my medication list.

I'm also not sure that our school year schedule is something I'll ever be able to handle without sleeping medication. A single school night with me waking several times or spending a long time trying to fall asleep would leave me not functioning at even the necessary basic levels for the rest of the week.

Of course, maybe having the option to take something, after Scott and Cordelia leave, in order to sleep more might mitigate that.

My shoulder is doing better, pain-wise, but my elbow is doing worse. I'd prefer that it go the other way around, and I think the exercise that's helping the shoulder is aggravating the elbow. I'll see the PT person tomorrow. Maybe she'll have ideas for things I can do at home to help the elbow. I'm pretty sure that the exercises my doctor gave me last year are aimed at the wrong things because they all hurt a lot to do.

Cordelia driving stuff )

I need to arrange to have some cash on hand so that using the A-Ride is actually feasible. The last time I used it, I needed exact change and couldn't use a credit card. That's a really huge burden on me because I almost never have cash and, if I do, usually have a twenty and no options for breaking it.

Back when I was using the A-Ride regularly, it was always a scramble to make sure I had the right money-- $3 for me each way plus $1.50 for Cordelia each way-- to be able to pay, even when we knew exactly when I'd need it. The prices haven't changed in the last five years, so there's that. There's an option for 'Scrip ticket,' but that's not defined in the handbook, and I suspect it's not something I can order online or even by phone which means a trip to wherever they sell it.

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