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Somehow, today got away from me. Well, I know how, mostly. I slept really badly last night due to various physical aches and then kept thinking I should lie down and nap and kept having other things distract me. Then I started rereading a long fic and kept thinking that I'd read a little more. At this point, I've got the edges of a headache that tells me that I've been awake too long for the amount of sleep I got last night.

Scott will be working tomorrow, so we're all heading for bed now. Really, he should have gone to bed sooner, but... He never does, not when it's just him needing to.

Cordelia's current plan for tomorrow is to go dress shopping with a friend. I'm hoping that comes together properly because it would be nice for her to have something to do. I will have to decide whether or not to head to the library by bus. If Scott gets off work on time, he can drive me down there, but he may not and won't know until late enough that, while I could get there, getting home again would be challenging.

Yesterday morning, [personal profile] evalerie drove me to Kroger to pick up my prescriptions. I'm grateful for that because it was pouring rain and really not weather for standing at a bus stop.

I was certain yesterday that I was getting Scott's cold. I still don't feel 100%, but the humidity from the c-PAP actually helped my throat a lot. At this point, it's just a bit of not-quite-right in my throat that doesn't hurt or make me cough or anything. We'll see what tomorrow brings. If I do get the dratted thing, I'm hoping for it to hit hard tomorrow and then be gone. I suppose colds progress in accordance with Murphy's Law, too.
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Cordelia's having some pain at the hinge of her jaw, so Scott and I will be taking her to the dentist tomorrow afternoon. She also says her teeth are cold sensitive. I suspect that she's clenching and/or grinding at night since that's generally what gives me that sort of trouble.

I like Scott being awake and energetic in the evenings, so that's a positive for working third shift. The negative is that I have to be super quiet all day so as not to risk waking him. I'm even hesitating to make tea because of the noise of the whistle.

My left elbow is hurting a lot. Even when I'm not using the arm or hand, it sometimes hurts enough to make me mutter. The doctor recommended cold packs, but those hurt worse while I'm applying them and don't make things better after, so I'm wondering if I should try heat. That will be a bit harder because Scott moved my rice pack, and I'll have to find it. The elbow is bad enough to wake me if I move wrong, but I discovered this morning that, if I lie on my right side with a pillow between my arm and my body, the damned thing doesn't hurt. It's not ideal because I'm still feeling too warm most of the time and because the rest of my body doesn't like staying in that position, but it's better than nothing.

I have pulled out my sling. It can be useful in reminding me not to try to pick things up with that hand, but it also seems to make things worse in the long term. There's something about the angle and about how close in to my body the sling is that just doesn't work right. Possibly, I need a sling that holds the arm about three inches out from my torso.

I think that I have a solution to the problem of my c-PAP headgear sliding off-- I loosened the straps just a tiny bit, and now the dratted thing stays in place better. It's counterintuitive, but I've had it that way for two or three nights now, and it is better.

Sleep is still not great. Halcion has an effect, but it's not what my doctor said it would do. The stuff is supposed to be very short acting and hit me like a ton of bricks. It doesn't make me more immediately sleepy, but I am tending to stay asleep longer before I wake up to pee. The downside of that is that I'm getting up for that too close to when I have to get up for the day to be able to sleep again. When that's ten minutes, it's not such a big deal. When it's more than an hour... That's enough to matter.
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I managed to get myself signed up to run events at UCon. A two hour Sentinels of the Multiverse game and a four hour rpg. The rpg plot is still very squishy in my head. I know where and how it starts, and I've got character ideas, but I still have to hammer out details.

I'm also waiting to hear from Cordelia how going to Skyline just for choir has worked. There was some stress about because the choir teacher never responded yesterday. That left Cordelia going to Skyline without a clear idea of what would happen. I don't know, at this point, if she'll be getting a ride in with someone or if she'll be rushing to catch the bus. I promised her that, if she misses the bus, I'll call Community to let them know that she'll be late.

After she gets to Community for the day, I'm probably going to try to nap. I have to meet Cordelia downtown after school's over. She has a 4:15 appointment down that way.

I woke this morning with a headache. Sugar and caffeine killed it, but it was fairly nasty before that. I'm pretty sure it's fallout from me not sleeping much Monday night and from me walking too far yesterday. (Cordelia's comment was, "Mom, you know that never ends well.")

My appointment at the sleep disorders clinic went pretty well. I saw a doctor rather than the PA I was expecting. I really have lost track of who I'm supposed to be seeing there. The doctor was pleased by my numbers as recorded by the c-PAP. I'm having a lot of 'episodes' during the period while I'm wearing the gear but not yet asleep. If I get up after an hour of being awake, the machine generally says I've had between 7 and 10 episodes in that time. By the next morning, it will give me an average between 1 and 2.5, depending on how long I used it and getting lower the longer I did, so I'm assuming that most of those are while I'm still awake with pretty much nothing while I'm sleeping. The doctor seemed to think that was the case too (the card recorded me having many events clustered early and then nothing much later, so).

The current mask/headgear is much better than the nasal pillows except for one thing. The strap around the back of my head that anchors everything won't stay. When I'm asleep, it gradually migrates up so that everything else starts to fall off. I have to manage to wake enough to move the strap back to where it's supposed to be. I will call Medequip and ask about it, but the doctor thought that they wouldn't have a solution. Her suggestion was a hat of some sort to provide more friction. Clips in my hair aren't an option because those will slide right out.

I took a cab to the appointment because I was just that tired. I had to take the bus home because the cab company said it would be an hour and a half, minimum. I was too tired to climb the hill from that bus route, so I went downtown to catch the bus that stops at the top of the hill. I ended up with at fifteen minute wait downtown. Cordelia was kind of worried that I wasn't home when she got there even though I texted her about it.
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I feel about as tired now as I did when I went to bed. I'm a bit more alert and considerably less achy, but I still feel exhausted. I stayed up until midnight, and I got up about 9:00. I tried last night without either Ativan or Lunesta (and skipped the Zyrtec, going back to the Claritin instead). Potential medical TMI )

I'm also trying to find someone we know locally who might want the bottle of Zyrtec. Scott uses Allegra, and I really can't use the remaining 69 pills in the bottle. Scott got cranky and told me that he hadn't realized this was a test of whether or not I could take the stuff, that he wouldn't have bought the big, $25 bottle if he'd realized. I'm pretty sure that exactly what I said to him was, "My doctor wants me to try Zyrtec instead of Claritin. Please buy some." Well, exactly but with the doctor's name in place of 'my doctor.' He does the shopping, so he knows that I've been taking Claritin for years without trying anything else.

I can only assume that he's as exhausted as I am. He's working really long days, and family stuff (I'll talk about that under lock) is getting stressful enough that being at home isn't downtime.

Last night, some folks from the other side in Ingress came through and took down all of the science center portals. I'm going to try to haul myself over there to take them back, but the so, so tired side of things may win. I'm told by other players on our side that this was likely retaliation for people on our side of things having started to regularly go and take down certain areas where these players keep building things up. Which makes sense, but I'm still irritated that it happened while Scott was asleep (he's working 3 a.m. to 3 p.m. today) and couldn't help me try to hold onto anything.

I'm not happy with my Captive Audience story. I think it needs another 5000 to 10000 words in order to really be complete, but I don't have the time for it before the deadline, so I'm trying to get what I've got to the point that it's acceptable to post. If all goes well, I'll have time for editing and, possibly, expansion next week, after Cordelia starts school and before the reveal, but I really need a bus draft. Right at the moment, I'm dithering about whether or not to chapter the dratted thing. The natural breaks don't really lend themselves to equal chapters. There'd be one three times longer than the next longest. I thought there was a break in the middle of it, but at that point, each paragraph depends on the preceding one in order to make sense, so a chapter break would damage the flow.

I'm in less of a hurry about the tags and the blurb.
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I over did things yesterday. After I left Medequip at about 11:20, I walked for a bit more than an hour. This was more tiring than it would normally be because I had my c-PAP, my purse, and a bag with a book and my full water bottle. The c-PAP was mostly willing to stay hanging from my shoulder, but the other two kept slipping down. I have no idea how far I walked (Scott has been promising me a fit-bit equivalent for over a year. He says 'real soon,' but I don't believe him) because Ingress is very inexact on that. It counts in kilometer increments and includes any distance registered by the GPS as being at a possible walking pace rather than counting steps.

I was lucky in that a bus to downtown arrived less than two minutes after I got to the stop and that it got me downtown at a time when I didn't need to wait for the bus home.

I was so tired by the time I got home, though, that I didn't move much for the rest of the day.

I'm progressing on my Captive Audience story again. It's at 10K words now, and I have no idea how to end it or even exactly what I need to have happen first. I don't think I have Lima or Stockholm syndrome yet. It's very clearly going to happen, but it hasn't yet. I should have remembered that, while I like writing this sort of thing, I can't write it short. I have to have the story ready to post tomorrow. I fear that will mean no beta read (I may not even have the time to go over it for typos. I usually need a week between finishing writing and being able to see typos).

I'm not entirely sure that I can find the end of the damned story before the deadline.

I tried taking Zyrtec last night instead of Claritin (my primary care doctor suggested it). I've been a groggy zombie today, so I'm inclined to got back to Claritin. She thought Zyrtec might be more effective than the Claritin has been in dealing with the occasional problems I've been having with sinus irritation from the c-PAP. The other-- and more major thing-- against continuing to take the Zyrtec is that it's apparently a very bad combination with Lunesta. I told my pcp that I was likely to take Lunesta, but I'm not sure I mentioned the Zyrtec to my psychiatrist the next day, and my pcp pretty clearly wanted me to be taking something else than Lunesta. I think she somehow didn't understand that things that make me more tired and less able to think during the day are not things I will continue to take, not unless stopping will kill me.

My hope is to try the Lunesta at a very low dose tonight and see how it affects me.

The new c-PAP mask is much more comfortable and less anxiety inducing than the old one. The hose attaches at the top of my head now, so I don't have to try to hold onto it in order to keep the bit on my nose from shifting to a point that I can't breathe properly. The part that goes over my nose just covers the whole thing instead of needing to be placed with the right bits in each nostril. I guess we'll see how it goes. I'm pretty sure I slept better last night than I have any other time with a c-PAP.
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I ended up taking a cab down to check in for the Anomaly because I missed the bus I meant to take and then wasn't likely to make the next bus. I asked in the Slack channel if anyone could give me a ride, but no one answered before the cab came.

I can't actually say that I enjoyed the Anomaly. It wasn't horrible or anything. It just wasn't fun. I think that it would have been if I'd been with people I knew. As it was, I ended up listening to a lot of conversations that I couldn't contribute to because I vehemently disagreed with the positions everyone else agreed on (parenting issues, mostly). Our team captain did a good job, but the ops folks didn't hold to what they'd promised us-- Our group was supposed to stay within a two block area, but they marched us all over.

Scott and Cordelia picked me up about an hour and a half before the thing ended. I was ready to drop. I left a lot of my gear with the group, so I now really, really need to get out and hack portals in order to replenish things. I don't know that that's going to happen unless I nag Scott over it. Maybe if I go with him for grocery shopping, he'll be willing to trade a bit of driving around so I can hack things. Of course, the place I'd like to go is a bit of a drive and requires a lot of getting out of the car and walking.

Scott and Cordelia went out for ice cream after dinner, but I was too tired to manage it. I ended up sleeping very badly last night. I had stress related reflux which calmed after I took an Ativan but still cost me an hour of sleep. I only managed the c-PAP for a couple of hours before I started feeling like the air flow was choking me. I was up and down a lot. I really, really want a nap now. I just don't know that I have either the time or the ability to relax enough to sleep.

I had a headache when I got up this morning, so I experimented-- I had one hard candy to see if sugar would help. That hard candy almost entirely killed the headache, so I'm now almost entirely sure that what helps my morning headaches is the sugar content of my morning tea/coffee rather than the caffeine content. That's actually bad news because I'm supposed to be trying to cut the sugar.

I'll be seeing my primary care doctor tomorrow, so I need to go back through the last few months of this journal to see the patterns that I want to discuss with her. I'll see my psychiatrist on Tuesday.

Incomplete list of things to discuss with my doctor )
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We ended up eating out last night. I'm not convinced it was a great idea, but we realized relatively late in the day that we had nothing thawed. There's a whole chicken in the freezer in the basement, but thawing that is going to take a few days. We went to Evergreen again because Scott really wanted to (Cordelia and I have both eaten there twice in the last four weeks) and because we happened to be out that way to visit a bakery that Cordelia was interested in. We all ended up with enough leftovers for a second meal, so there's that.

I used the c-PAP for three and a half hours last night. I'm not entirely sure why I didn't put it back on after I got up to visit the bathroom, but I didn't. My dreams were semi-anxiety dreams with lots of circling back to redo things.

I woke with a headache this morning. Caffeine and food seems to have killed it (it wasn't quite bad enough for me to take an Amerge. I only have two left. I might be able to get more during the next week, but I might have to wait until I see my doctor on the 28th).

I think I'm going to be spending a lot of time in the bedroom this weekend. Scott's watching The Defenders, and I don't want to listen to it because that's not much better than having to watch all the violence.

Our cleaning lady moved around all of the stuff I'd put aside to get rid of. I'm sure she thought that putting all of the clothing together made sense, but some of that stuff is wearable, and some isn't. The stuff that isn't has to go to a completely different place. The stuff that is wearable can go to the same place as the non-clothing stuff, and that's how I had it all sorted.

Today's goal is to finish filling out the various forms that we need to take to high school registration on Monday. A number of them are things that I need to consult with Scott and Cordelia about because they involve spending money on things that Cordelia may or may not actually have any interest in or on things that I know we want (like the yearbook and school pictures) but that we need to decide which version to get.
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Scott and I set out about 9:30, and we got home with Cordelia a bit after 8:00. It was a really long drive. Scott and I listened to podcasts and an audiobook on the way up. The Hamilton soundtrack played the entire way back because Cordelia finds it soothing and because Scott and Cordelia both sing along with the whole thing.

We got to the area near Interlochen about an hour before we were to pick Cordelia up, so we got lunch at the only restaurant we could find. It wasn't terrible. It also wasn't great. I finished my meal still feeling hungry and without any options for more food.

The Interlochen campus is really nice. I'd have liked to look around more (and the unclaimed Ingress portals only had a little bit to do with it), but Cordelia was really eager to get out of there.

Scott's parents invited us to stop by on our way home, and we did. The timing worked out that we arrived a little after 6:00, so they fed us dinner-- chicken, asparagus, mashed potatoes, and salad.

I dropped my Ativan tablet last night and couldn't find it (those things are tiny!), so I slept without it. I was exhausted enough that I slept soundly until Scott's alarm. After he got up, I didn't get back to sleep until he left. That wasn't because of him. It was me feeling too warm then too cold then having my neck hurt then... Well, on and on.

My allergy trouble hasn't come back. I'm hoping it won't, but the cleaning lady coming today may set me off again because the various cleaning products cause me problems breathing (one of the big reasons we have her come in).
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I'll be going to Medequip tomorrow to try on some different masks. The idea is to find something that won't irritate my sinuses to the point of days of sneezing. The current one doesn't provoke that all of the time.

I want to nap, but my sinuses are still in rebellion. I'm not sure if it's the c-PAP or the ragweed or the dust from cleaning. It might be all three. I used my neti pot (I don't very often, just when I'm worried that something like dust or pollen might be setting me off).

The orientation session last night was a bit overwhelming. Too many people, no AC, and lots of stairs.

All of the staff members specified their pronouns. None of them used anything but the he set or the she set, but I'm glad they did it because it's entirely possible that there were kids in the audience who needed reassurance that their pronouns will be respected.

We found someone who wants the Legos that I washed/bleached on Sunday. Scott's sister's SIL's church can use them. She's willing to pick them up. We still have a few other things to give away/donate.

My mother has sent me a url for the parts we need to repair the love seat and chair in the basement. I just need to measure the pieces of the support straps we've still got to make sure we order the right things. I don't know how long it will be before Scott has time to do the work, but getting the parts is the first step.

I'm really done in. If you've sent me something in last few days that requires thought, I might manage it tomorrow, but it's not going to happen today.
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I wore myself out completely yesterday, what with dealing with spraying Cordelia's clothes and sorting the crap from the basement. I had to ask Scott to go get me a Wendy's burger in order to be able to think and to stave off a headache that was heading migraine-wards. Two loads of laundry got done, too, but Scott and Cordelia did parts of that.

Scott went out to the Games Library Day in Ypsilanti. I had to ask him to leave early because I used up all of the anti-tick spray for Cordelia's clothing before I got the sweatshirt and the single pair of long pants she's taking. I got all of the t-shirts and shorts.

I started sneezing last night around 9 p.m. and haven't really stopped. I wasn't able to use the c-PAP because of it. I've got the AC cranked just in case it's a ragweed thing (which it might be because it's been cool enough recently for the AC not to run).

We have the meeting for Cordelia's camp orientation tonight at 6:00. I hope there will be signs because telling us to meet 'in the choir room' isn't actually much help with a building that size that none of us know. Cordelia and I have been searching desperately for a set of dress shoes that fit her. We have a single shoe from two different sets (one of which she swears had both shoes in her suitcase two days ago). The second available shoe is navy instead of the required black but will probably pass well enough if I can find the other.

I got a germ of an idea for my UCon game scenario last night, but I'm not sure yet what direction to take it. I'm going to call it a 'home rules' system, though, probably with a note that I'll be mostly using percentile dice.

I have my Darkest Night assignment. I'm going to have to think about it for a little while. I'm confident I can write the fandom and make it dark. I'm just not sure I can use more than one of the freeforms (this is a request that came in after I signed up and that I was sufficiently comfortable with not to run to change my sign up. If it had been there before, I might have tried to avoid it, but I also might not have). Strictly speaking, I only have to use one freeform, but... I like to do better than that.

Given that my Captive Audience story is stalled, I'll be focusing on getting that moving again before I do anything else. I was right that I did almost no writing last week while Scott was home. I think it came to 700 words, all on Saturday right at bedtime.
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I only managed about four and a half hours with the c-PAP last night. At that point, I started sneezing and just couldn't keep the nasal pillows in place.

Yesterday, Cordelia and I got our hair trimmed. I had to shower after because they sprayed my hair with something scented to get it wet, and that stuff dried sticky and made my nose itch. The hair place is a couple of doors down from a Starbucks, so we all got something there. Then we went to Target to get a couple of things Cordelia needs for camp. We ended up buying a bunch of DVDs, too. Some things Cordelia wanted desperately, a copy of Moana for me, and several things that were about $5 each and seemed worth that much.

I'm kind of puzzled as to why I can watch and enjoy Moana when most things involving sea/ocean travel set off my anxiety incredibly strongly due to my phobia of deep water. Maybe it's because the ocean seems self aware and more or less friendly?

We picked up food at Zoup on the way home. I like their food, but there's a problem in that I probably ought to switch to a different soup than my fallback but can't find any other options that I can eat safely. Avoiding tomatoes and peppers and anything heavily creamy makes that really hard. I got a side soup and a half sized salad. Scott got a side soup and a half sandwich. Cordelia got a sandwich.

I discovered, after we got home, that our current loaf of bread had started to grow mold, so Scott will have to go out and get a replacement today. He wants to go to the Games Library Day which starts soon, but there are several things I need him to do first. We have to go to the library. I need him to bring up a box or three from the basement for me to sort. He has to put up a cloths line outside so that we can put anti-tick spray on Cordelia's camp clothing. That goes on wet and is supposed to air dry outside. I really want to get as much sprayed today as we can.
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I saw the nutritionist yesterday. She suggested that it might be helpful for me to see a nutritionist attached to one of the specialty clinics. She specifically mentioned two, but gastroenterology is the only one I remember. The other one made sense, too, but I can't for the life of me remember. The primary thing I need help with is dealing with fatigue and inability to sleep properly due to family realities. I spend a lot of time eating to stay awake or to stay able to think even when staying awake isn't a problem.

A lot of the advice for how I should eat also runs aground on anxiety related problems in terms of how my body responds to food. Both the reflux and the IBS are vastly dependent on my anxiety levels, not immediately but over days, weeks, and months. One bad day is trivial. One good day is also trivial. When I'm having a lot of anxiety, I don't dare eat much in the way of fruits or vegetables because they all spike the IBS. The things that are safe are things like plain potatoes, white rice, some types of bread, oatmeal, and plain pasta.

People keep saying, "Why don't you just sleep in a different room?" and then I laugh. The only available 'other room' is the partially finished basement which has no emergency egress and is therefore illegal for that purpose. Also, when you're down there, you can still hear everything happening upstairs. Someone just walking around is enough to keep sounder sleepers than I am awake (friends and relatives have complained about it).

Earplugs don't help, nor do masks over my eyes to keep out the light. The real problem is-- How to put it? Activation might be the best word, I think. I need to know that Scott and Cordelia are okay and in bed before my brain will let me settle. The only way to get around that is a lot of practice, possibly months before it takes, or medication.

I exchanged emails with the sleep disorders clinician I've been seeing. She says that she's got an idea for a different mask that might decrease my problems with coughing/sneezing from using the c-PAP. She doesn't think the one she originally prescribed to replace the nasal pillows is the right choice. I do think I might do better with a mask than with the nasal pillows because those keep moving out of place. I woke about three times in the early morning today because the weight of the hose had pulled the pillows sideways (I was on my back) enough that one was no longer anywhere near the right place. The machine still thought I had a good seal, so I have no idea how it measures that.
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I spent most of yesterday writing up a document for out of town Ingress people who are coming to the anomaly in Ann Arbor at the end of the month. The hotels for our side are in a part of town that I know well, so I started off talking about the bus options from there to downtown and/or central campus and then got into parking and how the parts of the University of Michigan fit into the town and the food options out by the hotels and as one heads into town. I also mentioned publicly accessible bathrooms (the coffee shops are the best options but wheelchair/scooter access may vary).

I ended up with thirteen pages of babbling. Someone else caught an error that I've now corrected-- I used 'Westland' (the town where Scott works) instead of 'Westgate' (the shopping mall out Jackson Road near 94).

Somehow, that ate all of the time I'd meant to use for other things.

Around 8 p.m., Scott and I went out to a place we hadn't been before for some Ingress. I'd spotted a cluster of about a dozen portals in a cemetery when we drove by a few months back, but somehow, we never got around to going out there before now. It was about a ten minute drive. We didn't end up keeping the portals long, but they were new for both of us. I let Scott capture most of them because he's close to leveling up, needing about 250K points while I need 1.5 million points.

There are more portals further out that road, but I'm not sure there's another cluster that large.

He and I both need a lot of specific bits of equipment for the anomaly. I have no idea how we're going to be able to get it all given the lack of available time. Well, I theoretically have time. I just don't have the stamina or the access to visit a lot of portals. I'm also going to have to ditch all my keys. I don't want to, but I don't see us paying for any equipment like key lockers. I suppose I should look and see how much they cost, but I really don't think it's a justifiable expense.

I'm worried about the anomaly because of my mobility and stamina issues. I've explained them to the organizers, but I'm not sure they actually understood. When I say that an hour to an hour and a half of walking very slowly is a hard limit, I really do mean it. If I do that much, I'm not going to be doing anything else that day. They put me (and Scott so we can be together) on a 'slow moving team,' but the anomaly will last about four hours. I really, really can't manage that.

And that's without the possibility that Scott might not make it until two hours into the dratted thing due to having to work. We won't know about work until the day before, so it's not something we can plan for.

They also want us to install several communications apps on our phones, and I'm dubious about it. I really don't want anything that will eat up my battery that way, and I try not to install apps unless I'm certain I'm going to use them a lot. Ingress, Feedly, Life360, Wunderlist, and Habitica are the extra apps that I actually use a lot. I have one game besides Ingress, and that's FluidMonkey which is good for when my brain has dribbled out my ears. I don't use it often.

The list is zello, ingress intel, maps, slack, and glympse. I have no idea what zello and glympse are. Ingress intel makes sense, but I had the impression from something Scott said a while back that it wasn't available to me. Guess I'll check. I've looking into the Slack app, and everything I read about it makes it sound like something I don't want within six miles of any device of mine.

I suppose I can install apps the day before and delete them immediately after. There are apps on my phone that I really, really don't want but can't delete because they're bundled into the OS.

We watched a movie after we got back and somehow lost track of time so that we didn't turn off the light until midnight. I once again couldn't sleep because I was too warm. That led to spiraling anxiety about all the things I need to get done and how I won't be able to on so very little sleep. I ended up with about four hours of fitful sleep, all without the c-PAP. (I took it off before I fell asleep, about an hour and a half after I put it on. At that point, it claimed that I was averaging seven prolonged stoppages of breathing per hour. This seems to be a trend. That is, if I'm awake with the stupid thing running, it registers lots of problems, but if I fall asleep quickly, it registers almost none.

I think the Ativan is working less well in terms of helping me relax to sleep. I'm not sure how much of that is the way that Scott being on nights for two weeks and then on vacation this week has thrown off my routines and how much is anxiety about getting Cordelia ready for camp next week and high school starting after Labor Day. Right now, our plan for getting Cordelia to Skyline for camp departure is for Scott to drop her off before he heads to work. She says she doesn't want/need me there, but I'm not sure whether or not she'll stick to that.

Cordelia's supposed to by there at 7 a.m. for an 8 a.m. bus departure. If we deal with a cab, we would need to call at 6 a.m. in order to be sure of getting there by 7. That would likely mean us getting to the school by 6:30. At that point, it kind of makes sense for Scott to drop us (or just Cordelia) off before heading to work. It would mean getting there at 6:15 unless he gets permission from work to be a little late (which he says he's going to request). If he's able to be there until Cordelia can get into the building, I'd be willing to stay home. I just don't want her sitting, alone, outside the school for forty five minutes.

Cordelia's never been away for anything like this long. The closest was four or five days with Scott's sister when she was seven and I had my gallbladder removed. I think that it will be a good experience for her, but there's going to be anxiety for all three of us until we settle into it.
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I slept eight hours last night, all of it with the c-PAP, but it was very light and not very restful sleep because I still feel like I've been flattened and desperately want to go back to bed. My elbows hurt when I lie on my back for too long (I'm pretty sure that the joints are hyperextending) because there isn't a way I can keep my arms bent without making other things hurt even more.

My parents arrived here about 11:30, and we ended up going to the same Chinese place we went to the last time they came. I had really wanted to go to Totoro which is downtown, but losing that half an hour made it just not really feasible.

My mother texted me around 5:00 to say that the procedure went well and that they were already back in Lawton (two hours away).

Around 3:20, Cordelia, who was at the downtown library, called me to tell me that her best friend had hit her head while volunteering at the same camp where Cordelia did last week. This is the girl who had the bad concussion at the end of May and then needed another ER trip for a relapse two weeks later. I woke Scott and he drove over to get her because we didn't want her to have to wait there or to have to walk up that steep hill in the heat. Cordelia got home about thirty seconds after Scott got her friend here, and the two of them went into Cordelia's room and seemed to be happy. (We'd been kind of worried because the other girl looked kind of out of it and wouldn't talk to either of us.)

I had tried calling the other girl's mother and texting her mother while Scott was getting her but failed to reach her. She called us on the landline about fifteen minutes after her daughter got here. It took her another half an hour to get here because she had to take the bus. The girl said she'd called Cordelia because she didn't have any other numbers for our family, and her mother said she'd correct that oversight as she (the mother) has my cell, Scott's cell, and our landline numbers.

The last I heard, the other girl was doing okay, but that was last night. I kind of suspect that she's not at camp today, but I don't know.

Monday is going to suck hugely. I need to be up for Cordelia at 6:30 and do a fasting blood draw sometime after 8:30 or 9:00 (need to check when UHS opens) which probably means getting down there by bus. At 1:00 I have a uterine ultrasound, also at UHS. In the evening, we need to take Cordelia out to East Ann Arbor for a blood draw.

I wanted to do Cordelia's last night since the place was open until 7:30 (only until 5:30 today and so utterly impossible unless Scott was willing to do it before going to bed which he wasn't). Scott thought that we ought to give Cordelia at least a day's notice. I disagreed strongly, but he went ahead and told her right before he left for work last night. She spent the next hour having something approaching a panic attack and blaming me for it. I am decidedly unhappy with Scott about this.

Also, doing it last night would have made it more likely that, if she needs vitamin supplements or thyroid medication we could still manage to get the camp permission slips for those signed and turned in before departure. Cordelia's pediatrician requires a two day turnaround for those things, so Thursday is the absolute latest we can turn them in and still have them for the orientation meeting the following Monday evening (departure is at 8 a.m. on Tuesday with Cordelia needing to be there at 7 a.m. which is going to be vastly fun given that going by cab means a choice between risking being late and being almost certain to have a half an hour to sit outside the building before they let us in).

I talked to one of the camp organizers Wednesday afternoon about medications and such. She clarified that, although all the forms say that prescriptions need to be held and dispensed by either the nurse or the cabin counselor, prescription topical acne medications are not included under that. I'd have thought, given the age group, that those medications would be common enough to merit some sort of mention of them being an exception.

One of Cordelia's prescriptions has changed dosage, and the bottle is too full for us to be able to get a new one with the new dosing information. The camp is completely inflexible on that. They will administer medications exactly according to label no matter what other documentation you have.
the_rck: (Default)
I got about seven hours of sleep last night, all with the c-PAP. I'm noticing that I sleep more lightly during the second half of the night when I use the c-PAP all night. My guess is that the Ativan is wearing off and that I'm still not quite beyond the anxiety freak out stage of wearing the gear. I'm very, very tired today. I feel like I shouldn't be because I did sleep, but I really am.

Cordelia had an appointment at 9:45 this morning. I tried to get it earlier so that Scott would be home and in bed earlier, but the doctor simply wasn't available. Still, that's early enough that a lot of parking structures downtown (where the appointment was) limit parking severely to discourage commuters.

I've got one call I must make today and a second that I really should make today. I don't want to deal with either, and being tired makes it all that much harder. As a way of indicating how much I don't want to make the calls, I've been filling out forms in preference.

Cordelia needs to be in bed earlyish tonight because she has a volunteer shift at the downtown library at 9 a.m. Scott will likely be able to drive her in before he goes to bed, but I'd like her to take the bus if she can so that he doesn't have to stay up an extra hour.

My step-father is scheduled for his eye procedure at 1:30 tomorrow afternoon. Mom suggested we all (except Scott) get lunch beforehand. Since Cordelia's volunteer shift will end at 11:00, I suspect that we'll end up meeting her downtown right about then. I need to come up with a list of options because just wandering around to find something that looks good would use up our time rapidly. There are so very many restaurants in that general area, three or four a block.

My hands and my left elbow are still giving me a lot of trouble. I'm not sure what to do about it. I need to use them, but anything heavier than my cell phone is bad for my hands, and moving the elbow hurts even when my hand is empty, enough so that I'm thinking of digging out a sling to see if that helps.
the_rck: (Default)
My word count for July is the highest so far this year, 26171 words. It's the first time I've broken 20K words during any month this year. I hit 19K in February, but mostly, I've been around 15K or 16K each month.

I finally got around to getting a shingles vaccination yesterday. Since I'm 50, my insurance covered it entirely, so there was really no reason not to do it. Shingles is not something I want, and a reduction in risk and in likely severity if I'm unlucky enough to get it in spite of the vaccine is more than worth a needle in the arm.

We went to the bank and took care of the business we had there. The teller was very friendly which helped. We put the insurance claims into the mailbox outside the Green Road post office before we went to the bank because Scott thought that traffic in that direction was only going to get worse if we went later. When there isn't construction, the bank and the post office are only a minute or three apart, depending on whether or not one gets stopped at the light.

The sleep disorders people called and offered me an appointment in September instead of in December. I took it, of course. I'm not sure what will come of it, but at that point, I'll have been taking Ativan nightly for almost three months. Or, maybe, I'll reach the point of no longer needing the Ativan to be able to sleep with the c-PAP on. I don't know.

I didn't quite get seven hours of sleep last night, but all of it was with the c-PAP on. I'm tired enough right now that I'll probably lie down to nap later on, but right now, I'm waiting for [personal profile] evalerie to pick up some things that we want to donate. I also want to get a couple of household chores taken care of before I lie down.
the_rck: (Default)
I wrote about 1400 words yesterday and did a good bit of editing on the my Captive Audience fic because I figured out, fairly concretely, what one character is trying to do. One of the [community profile] pod_together fics has been recorded. I have to listen to it today (I'm going to wait until Scott's up so I can turn it up a bit. The ear buds I've got only work on one side). I haven't heard anything from the person who's doing the other fic, so I don't know what's going on with that. I expected them to ask for tweaks or even major edits, but I told them two weeks ago that the fic was done (and posted to AO3 but not yet revealed) and haven't heard a word.

I need to look up the due date for Captive Audience. I don't expect to have trouble meeting it, but it's better if I put it on my calendar. Also, there were a couple of treats I wanted to write, and knowing the due date will tell me if I have time.

I only managed the c-PAP for about four hours last night because, after I got up to take my thyroid medication, my nose started running. I'm still having a little trouble seven hours later. I'm hoping that the c-PAP is something my sinuses will eventually get used to and just stop acting up over.

Cordelia requested a trip to a particular sandwich place, Which Wich, as part of our Sunday library expedition. She ate there on her own a couple of weeks ago (the first time she'd done anything like that), and she really liked the sandwich she got then. The place is only a block from the library.

I have a lot of DVDs to watch this week, one three DVD set that can't be renewed and one two DVD set that can't be renewed. I think the second DVD for the latter is all extras that I may or may not want to watch. I've also got a movie that can be renewed and three remaining DVDs of a lecture series. I want to finish and return the lecture series because I have another that should come in this week. That one has a wait list, so I'll be needing all the time I can manage to power through it in four weeks.

Scott and I started listening to a short audiobook last night. Astrophysics for People in a Hurry by Neil DeGrasse Tyson, read by the author, only runs three and a half hours. Normally, Scott listens to audiobooks while driving, but we agreed that Tyson's voice might not be that helpful with the whole staying awake/alert while driving part of things. I'm not sure we're hitting much information that's new to either of us, but, at least for me, it's information I know but don't actually understand well. I keep hoping that, if I go over it one more time, I'll really get it.

My hands and left elbow hurt a lot yesterday, not as much as on Saturday but enough to make me reluctant to pick anything up.
the_rck: (Default)
I didn't get around to napping yesterday. I followed a link to an interesting sounding story that turned out to be 78K words and thought I'd just read a little to see if it was worth keeping the tab open. Then I kept reading. Just one more chapter!

And then Scott got up.

I tried to nap after Cordelia got home, but Scott somehow missed that I was trying to sleep and blasted Full Frontal monologues. He just wasn't paying attention. He apologized once I gave up and returned to the living room and asked him if he had done it deliberately.

Scott cooked the turkey breast while I tried to nap. That was a matter of checking if it had thawed, unwrapping it, and putting it in the instant pot.

I slept about ten hours last night, all with the c-PAP, and that helped a lot. Well, the sleep did. I still can't tell if the c-PAP is doing anything but annoying me.

I'm not sure what's going to happen today. Normally, Scott would go for groceries, but by the time he wakes, it may be too late. Saturdays, Kroger gets more and more crowded as it gets later in the day, and they run out of some things. Also, there are a couple of things that we want to do in the afternoon-- A friend offered to come over to play some board games, and Scott would really, really like that (I would really, really like a chance to see someone who isn't Scott or Cordelia). Cordelia wants to go downtown, to the Cupcake Factory. She's been talking about that off and on since Tuesday. I think that could reasonably wait until tomorrow when we go to the library.

I think I know how to start working around the plot hole in my Captive Audience story. Possibly. Actually being awake today is likely to help a lot, too.
the_rck: (Default)
I tried increasing the humidity on my c-PAP last night, and it turned out to be a mistake. I slept about two hours then got up to use the bathroom. At that point, I started sneezing uncontrollably, and my nose started running. I wasn't able to put the c-PAP back on and didn't sleep much the rest of the night because of the problems breathing (which are pretty much the same problems I had when I took the humidity down to 3). I guess 4 is where I need to be. It's not ideal, and still gives me some problems, but...

I'm probably going to lie down after I post this. I'm debating whether to try sleeping on the couch or to go in and join Scott in the bedroom. I've got about three hours before Cordelia gets home. If I sleep that long and am on the couch, I'll be where she can find me. If I'm in the bedroom, not so much.

Cordelia has stated that this working all day thing is hard but that she likes working with the little kids (five and six year olds). They all apparently think she's quite old, that fourteen isn't possible because it's too close to their ages.

I still haven't heard if my stepfather will be able to get treatment for his eye next week. I'm not sure that my mother will even think to tell me, so I should call this weekend and ask. I also want to find out if she'd like me to sit with her during the procedure (I might even be able to drag Cordelia along).

I'm hoping to cook a turkey breast in the instant pot tonight. I kind of suspect that it's not thawed all the way through yet, however, so it may have to wait another day or two. I have no idea what Scott will eat in that case. All we've got, leftover-wise, is the lentil soup that probably made Scott sick (He had hives, so there was some sort of allergen in there).

I'm making progress on my Captive Audience story, but I have a central motivation plot hole that I have to fill in somehow. There aren't any comments at all on the beta post for the exchange, so I can't go that route.
the_rck: (Default)
Cordelia stayed home from camp yesterday to go to lunch with my parents and brother. We ended up going to Evergreen since all of us were okay with it. My stepfather kept joking about going to Dairy Queen. Cordelia and I ended up ordering exactly the same thing-- shrimp with mixed vegetables, a spring roll, wonton soup, and white rice. My mother got an eggplant dish that I wanted to try until she realized there were green peppers and jalepeno peppers in it. (Garlic and ginger, too, but those would have been fine for me.) My brother got a lamb stew. My stepfather got some sort of vegetarian lunch. He specifically wanted to avoid garlic and such because he had a doctor's appointment in the early afternoon.

We spent a little time in the large Asian grocery next door to Evergreen after we finished lunch. Then my stepfather dropped me, Cordelia, and Mom at our house and went to his appointment. Once my brother got there, he and Mom took Cordelia to Book Bound (where she refused Mom's offer to buy her something) and for a walk along the river. Scott woke and showered while they were out. He came out of the bathroom about five minutes after they got back here.

Then we all sat around for quite a while and worried because my stepfather's appointment was at 2:00, and it was after 4:00. Then it was after 5:00, and the website for Kellogg says they close at 5:00. He called Mom at about 5:45 to say he was waiting to have at least one more test done and that he wouldn't be able to drive for 30 minutes after and didn't know yet if he was going to have to stay overnight, either at the hospital or at a hotel in town.

Mom was understandably more than a little freaked out. The appointment was about a tumor in one of his eyes (the found it about two weeks after my breast cancer surgery in 2015). The specialist he's been seeing in New Orleans wanted him to see a higher level specialist about it. That doctor suggested flying to Houston or Memphis but thought Kellogg would be great when my stepfather pointed out that he'd be spending the summer in Michigan.

There was some concern about their dogs. They'd left the dogs back in Lawton, about two hours away. They have a dog door, so the dogs could go in and out, but they didn't have food and water for another day alone. My brother, who lives in Kalamazoo, about twenty minutes away, said he could very easily go and feed the dogs after he drove home last night.

It ended up not being necessary. The doctors want my stepfather, insurance approval allowing, to come back next week for a procedure involving an injection and some sort of laser treatment. Wanting to get him in next week is largely a matter of his schedule as he needs to be back in Baton Rouge in time to prepare for classes before the semester starts. I'm pretty sure they need to leave around the 10th. If they can't get the procedure done before that, he'll have to fly back to Michigan later for it, either waiting until December or taking time off from teaching.

We ended up canceling our game session last night. By the time we got to 6:20, Scott was really drooping and needed another nap if he was going to be able to go to work. Fortunately, I was able to reach everyone by phone to tell them we had to cancel.

Scott and I need to work things out in terms of the changeover between him getting up and leaving and me going to bed. Each of us thought the other was going to turn off the living room and bathroom lights last night. I was actually in bed before he left with my c-PAP on and all that by about 10:00, but I'm pretty sure he didn't realize that I was. He needs to leave about 10:15 in order to get to work on time. I realized, when I was almost asleep in spite of the lights, that it was late enough that he had to have already left and therefore didn't need those lights (and wasn't going to turn them off for me), so I hauled myself out of bed and turned all the lights off. I was pretty cranky about it.

He's definitely working nights next week, too. Then he'll have a week of vacation to get back to the right schedule for working days again.

I used the c-PAP for about seven hours last night.

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