the_rck: (Default)
We didn't do a lot over the weekend. Scott played some board games online and did the grocery shopping. We were late in considering Valentine's Day food delivery options, so we ended up not doing that and just ordering bubble tea for pick up.

I'm making steady progress on my LTD paperwork. I still need to call my psychiatrist about her portion of it and about how to get the forms to her. I've been waiting because my section needs to be done before I can hand the packet over, because I wasn't sure about my ability to sign my name, and because I have no idea how we'll manage the hand off. We don't have time for mailing, not when that might take weeks, and I can't get downtown unless Scott's home.

Scott has his birthday off, the 24th, but that's kind of a tighter turn around for the doctor's part of things than I would like to demand. The paperwork has to be in, mailed or faxed, by the 2nd of March.

I think the main reason I really managed to get things done on the paperwork last night was that I took an Ativan. A lot of what I'd already written had to be tossed because it was me panicking and babbling rather than answering the questions. Not that any of it wasn't true or even relevant, just that it wasn't what they asked for. Without the Ativan, I probably would have kept flailing.

A-Ride renewal related stuff )
the_rck: (Default)
I have passed the LTD paperwork to my psychiatrist. She says she should have it done tomorrow and be able to send it in then. My mother suggested that the doctor send another copy of the letter she wrote last fall that states that she considers me disabled. At this point, I've done as much as I can.

I've got a longish to-do list in terms of things that I just couldn't cope with while I was working on the LTD questionnaire.

I've been having occasional moments when I feel weepy. I can't tell if it's hormones (the menopause clock is at 4 months; we'll see) or if I'm too stressed about the LTD and our finances. It just hits sometimes, and then I feel utterly exhausted.

I forgot to call or text my stepfather for his birthday yesterday. I feel bad about that. Of course, my record on birthday greetings will remain better than his unless we both live more than another 30 years.

I've scheduled PT for my left knee. I'm waiting to try to do anything else because all the options will require being able to walk. The knee stuff will start next week.

I ordered Scott's birthday presents today, one from me and one from Cordelia. We've still got twelve days, so they'll certainly arrive in time.

To-do list for my own reference )
the_rck: (Default)
I saw a doctor at UHS on Tuesday. I have referrals for PT for my wrist and my knee. This doctor actually put the words 'generalized joint hypermobility' under the diagnoses and promised to talk to my pcp about the ways in which that problem requires a different approach than what everyone's been taking so far. He did say that it's kind of too late to help me much because my joints have 50+ years of damage.

He recommended trying to find someone outside of the UM system who does more generalized physical therapy and who has experience with hypermobility. He said that I'm not going to find anyone in the UM system who isn't specialized in some small portion of the human body because most PT is aimed at limited issues rather than full body ones.

I haven't tried to schedule PT or to track down other options yet. I couldn't deal with that while I was trying to deal with the LTD paperwork. I still haven't gotten that to my psychiatrist. I've done my part, so it's a matter of getting downtown to her office to pass it along.

There's been a good portion of the last week when I simply couldn't deal with anything but reading fic. I've got two library books that are due tomorrow and that I'd very much like to return. I've got Overdrive books that will expire soon, and I've done nothing with them this week.

At any rate, I'm not reading here reliably. I'm not reading Discord reliably. I'm not planning to sign up for any exchanges for a while. I don't think I'll be able to cope with that sort of commitment until I know what's happening with this year's LTD review. If I have to spend the next ten months fighting again, I'd rather be able to put my energy into that. I want very much to write, but my brain isn't cooperating.
the_rck: (Default)
We’re at Scott’s parents’ place now. There were 12 of us at the table. We’ll have pie later, but I’m not sure if we’ll have anything I’m interested in eating. Needing to avoid cloves and to be cautious about cinnamon makes pies fraught especially as Scott’s mother can’t have nutmeg.

I’ll have to make some dressing this weekend. It’s my one essential food for Thanksgiving. They served it but told me that it wasn’t safe for me to have any. The turkey was okay, and Scott made mashed potatoes with butternut squash. That was good. Nothing else was to my taste.

I still don’t know what’s going on with my aunt’s funeral. I had too much going on yesterday to find the resources to call my cousin. Scott’s making plans for the weekend as if this weren’t a thing to consider which makes me feel like knowing the timing won’t matter. I think he’s forgotten about my aunt having died. He only met her about half a dozen times in the 26 years we’ve been married.

I’m more upset about the loss than I thought I’d be. I’m nearly certain that it has more to do with breaking my ability to pretend that everyone up north is fine and somehow exists in a protective bubble. My father and mother are both older than my aunt was. My stepmother is too. My stepfather is younger but only by about 5 years.

My LTD insurance grace period ended on the 24th. I’m not sure how long it will take for anything to happen with the legal appeal/lawsuit. Mom hasn’t told me to do anything else yet, but I assume there will be more eventually. I don’t think that we’re ready for the financial hit to our monthly budget. The vocational counselor didn’t suggest a single thing that I could actually manage.

I haven’t gotten far on my Yuletide story yet. I was hoping to get going this weekend and maybe to schedule a write-in. I’m just not in a position to do that until I know when the funeral is.

I went with Scott to his therapy appointment yesterday. I’m not truly comfortable with the guy because he’s making condescending in the ways that therapists often are. I’m not going into it assuming that he’s more knowledgeable than I am or that his view of reality overlaps with the world I live in.
I know from past experience that I can’t work with people who try to establish intellectual superiority or an aura of infallibility. When they do that I can’t accept anything they say as anything but dangerous bullshit.

It feels too damned much like being gaslit. They use the vocabulary and mannerisms that I’ve watched being weaponized as control mechanisms to force conformity. I’m not immune enough to realize what’s upsetting me in the moment; I won’t realize why I’m frightened because I’ll be busy trying to cover my vulnerabilities by getting angry.

My eyes have been giving me trouble for a while. The skin around them has eczema and cracking and goes back and forth between itching and burning. My eyes look normal, and I can see as well as I expect to. My eyes are drier than normal because I don’t dare do the PT which involves heat and gentle massage; right now, I’m worried that I’ll rip the skin or get dirt in the existing cracks. I think I’m pretty sure that this is an allergic reaction of some sort, but I can’t figure out what I’m reacting to.

I’m experimenting with a different way of doing the PT which is logistically more difficult but (I hope) less potentiality damaging than not doing the PT at all. I’m also using a lot of Vaseline which seems to help and which my doctor once told me was safe there. I think it helps but also that nothing is going to change until I figure out the trigger.
the_rck: (Default)
I'm still having problems with light headedness and fatigue with occasional flickers of a tickle in my lungs. I have no idea what's going on that way.

Scott worked 12.5 hours yesterday and is currently at work. He has tomorrow off (meaning he can go to the fundraiser for Cordelia's choir). I really, really don't like how physically exhausted he is by the time he gets home, and I think that the three day run coming up later this week is going to be very bad.

Scott will also be off on Tuesday which has me wondering about my appointment with the vocational counselor. If Scott were working, I'd absolutely ask to reschedule because I don't think I'm safe to go downtown and get back home again after, but Scott's going to be around to provide transportation. Then again, I can't think very well, and I haven't been able to do much of anything the last two weeks because of being sick, so I'm not sure that actually meeting with the guy does anything but check off the 'yes, I'm still paying attention' box.

Which might be a thing that I actually need to do. I don't know. But last time we met, I was still having constant trouble breathing (day 2 of the prednisone) and he made a point of saying that rescheduling isn't a big deal.

I just keep feeling like there's something I'm going to do that will be a breakthrough that lets me think and function clearly again. Past experience suggests that I'm wrong, but I keep reacting to the fog as if it's something I'm going to recover from if I just rest. I would rather that it be so, but I think this may be the new normal.

I have discovered that using the donut pillow around my neck decreases my neck and shoulder pain considerably. It does more than anything else I've tried and more consistently. Remembering that is, however, oddly slippery because the thing is inconvenient, prone to slipping off, and not easy to clean. It's also really unpleasant when the house is at summer temperatures.

I really would like to be able to make an appointment with my primary care doctor about my hands/wrists because I think I might be having carpal-tunnel issues, but I really can't do it until the LTD stuff is resolved (even though this is likely pertinent).

I have written a little bit the last couple of days, but I'm struggling to make the words become story. I'll have a little time when things flow and when I can't imagine stopping writing, and then... it'll be gone again. Very frustrating.

Complaints about Ingress Prime )

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