(no subject)
May. 16th, 2020 10:11 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
the_rckAnother week of not posting and not really reading here. Sorry about that. I backread for some way today, but I probably won't ever get to where I left off.
I had a tele-visit with my primary care doctor this week. I had used the patient portal to request an epipen for the rosemary allergy because I'm concerned that, once eating out is a thing again, I'll end up at a family gathering in a restaurant that's currently (or recently) cooking with rosemary and then have breathing issues. Given that it's throat tightness rather than chest tightness, I'm thinking that this isn't something to be solved with an asthma inhaler.
At any rate, apparently something like that is both an instant prescription and a let's do an appointment as soon as possible.
She also now thinks that the rash on my face might be rosacea. Having looked up the Mayo Clinic's information page on rosacea, I suspect she's right. At the very least, it's a thing to try given that topical hydrocortizone and triamcinolone have failed to do much of anything.
I'm kind of pissed off that rosacea wasn't mentioned when I saw her back in January. Ocular rosacea seems to describe exactly what I had been experiencing for months. The photosensitivity and the issues I had with very cold or very hot air and with wind at any temperature fit, too.
Diagnosing dermatological conditions via a tele-visit doesn't seem even remotely ideal, though. I suspect that she had a hard time seeing everything. Against it being rosacea is the fact that all of my current issues are around the periphery of my face and down my neck and arms. I won't be able to see anyone in dermatology for quite a long time since it is unpleasant/uncomfortable but in no way worth the risk of a bus ride.
Scott picked up the medication for rosacea while he was grocery shopping. I hope that this is, in fact, rosacea because having a treatment would be amazing.
I have an allergy appointment for late June. I made it at Domino Farms and then discovered that the city bus isn't currently going to the commuter lot where I'd need to switch to the university bus. The walk from the nearest city bus stop isn't long, but it requires crossing a highway entrance ramp. I'm not sure that's a thing I'm willing to do, even to save $40 cab fare. (I need to check that the cabs are even operating. Maybe the ARide is; that would be much cheaper but also awkward because of the fact that the pickup and drop off windows are so long and imprecise.)
I'm angry at my gastroenterologist right now. Last Saturday, the pharmacy told us that, due to recalls, they can't refill my ranitidine and don't expect to be able to any time in the next several months. My gastroenterologist and I had discussed other options when I saw her in March, but she said that those are becoming hard to come by due to people switching from ranitidine. I sent her a patient portal message Sunday evening that included a note that I would run out of the medication after this Thursday's dose.
I called on Thursday. The receptionist said that the message was with the doctor and that she would send up a reminder for me. I still haven't heard anything at all. I managed last night by not eating at all for eight hours before bed, but that's not sustainable because it leaves me very hungry by bedtime and extremely wobbly in the morning.
Cordelia turns 17 tomorrow. We're planning to order delivery of some sort. She's still debating what she wants because she's not sure whether she prefers something she hasn't had in a while that won't give her leftovers versus something that she's had once a week for a while that will give her 2-4 additional meals.
Scott bought cheesecake and small (individual sized) peach pies while he was out. Cordelia couldn't make up her mind which she preferred, and we wanted to cover the bases.
I had a tele-visit with my primary care doctor this week. I had used the patient portal to request an epipen for the rosemary allergy because I'm concerned that, once eating out is a thing again, I'll end up at a family gathering in a restaurant that's currently (or recently) cooking with rosemary and then have breathing issues. Given that it's throat tightness rather than chest tightness, I'm thinking that this isn't something to be solved with an asthma inhaler.
At any rate, apparently something like that is both an instant prescription and a let's do an appointment as soon as possible.
She also now thinks that the rash on my face might be rosacea. Having looked up the Mayo Clinic's information page on rosacea, I suspect she's right. At the very least, it's a thing to try given that topical hydrocortizone and triamcinolone have failed to do much of anything.
I'm kind of pissed off that rosacea wasn't mentioned when I saw her back in January. Ocular rosacea seems to describe exactly what I had been experiencing for months. The photosensitivity and the issues I had with very cold or very hot air and with wind at any temperature fit, too.
Diagnosing dermatological conditions via a tele-visit doesn't seem even remotely ideal, though. I suspect that she had a hard time seeing everything. Against it being rosacea is the fact that all of my current issues are around the periphery of my face and down my neck and arms. I won't be able to see anyone in dermatology for quite a long time since it is unpleasant/uncomfortable but in no way worth the risk of a bus ride.
Scott picked up the medication for rosacea while he was grocery shopping. I hope that this is, in fact, rosacea because having a treatment would be amazing.
I have an allergy appointment for late June. I made it at Domino Farms and then discovered that the city bus isn't currently going to the commuter lot where I'd need to switch to the university bus. The walk from the nearest city bus stop isn't long, but it requires crossing a highway entrance ramp. I'm not sure that's a thing I'm willing to do, even to save $40 cab fare. (I need to check that the cabs are even operating. Maybe the ARide is; that would be much cheaper but also awkward because of the fact that the pickup and drop off windows are so long and imprecise.)
I'm angry at my gastroenterologist right now. Last Saturday, the pharmacy told us that, due to recalls, they can't refill my ranitidine and don't expect to be able to any time in the next several months. My gastroenterologist and I had discussed other options when I saw her in March, but she said that those are becoming hard to come by due to people switching from ranitidine. I sent her a patient portal message Sunday evening that included a note that I would run out of the medication after this Thursday's dose.
I called on Thursday. The receptionist said that the message was with the doctor and that she would send up a reminder for me. I still haven't heard anything at all. I managed last night by not eating at all for eight hours before bed, but that's not sustainable because it leaves me very hungry by bedtime and extremely wobbly in the morning.
Cordelia turns 17 tomorrow. We're planning to order delivery of some sort. She's still debating what she wants because she's not sure whether she prefers something she hasn't had in a while that won't give her leftovers versus something that she's had once a week for a while that will give her 2-4 additional meals.
Scott bought cheesecake and small (individual sized) peach pies while he was out. Cordelia couldn't make up her mind which she preferred, and we wanted to cover the bases.
no subject
Date: 2020-05-17 03:25 am (UTC)I have a friend with rosacea who was told to treat it by taking iodine, and she did, and it all went away. I don't know if that works for all rosacea, or how much iodine, or anything else about whether this is even a legitimate treatment, but it might be worth googling, if it sounds like something that could potentially be helpful.
Happy Birthday to Cordelia!!
no subject
Date: 2020-05-17 07:25 am (UTC)I'm sorry docs are giving you trouble.
I hope it is rosacea, if only because it does get under control nicely. (I have it - don't hesitate to ask if you have questions about it.)
no subject
Date: 2020-05-17 11:54 am (UTC)no subject
Date: 2020-05-17 06:31 pm (UTC)Anyway, please send me an email, melitakennedy, gmail. It's about some ranitidine I have.
no subject
Date: 2020-05-17 10:21 pm (UTC)I'm not reading much and commenting rarely. I have to protect my hands.
no subject
Date: 2020-05-28 07:20 pm (UTC)