(no subject)
Mar. 26th, 2016 10:14 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
the_rckI’m annoyed with myself. Last night, around 2:00, I was half to three quarters asleep and somehow got the idea that Cordelia no longer needed painkillers, so I deleted all the alarms on my cell phone that would tell me what to give her when. Fortunately, I woke up further before we’d gotten much past when she was due for the next dose, but… That could have been bad. And I had to recreate all of the alarms. The times are easy enough; it’s remembering whether this particular dose should be ibuprofen or Tylenol that’s hard.
Also, when I got up to give Cordelia medicine at 7:00, my left ankle (so not the one I injured last year) hurt a good bit. That kept me from getting back to sleep between then and when Cordelia needed me to help her get to the bathroom. It mostly is hurting at rest and doesn’t seem to be worse when I put weight on it, but it feels like it should hurt more when I put weight on it, if that makes sense. I’ve wrapped it to see if that helps at all.
Cordelia’s pediatrician’s office sent me an electronic copy of the form for the school so that they’ll give Cordelia medication in the middle of the day. Unfortunately, there were two problems. The first was that the dose was wildly wrong. It said 4 milliliters when it should have said either 20 milliliters or 4 teaspoons. The second problem was that the words 'Error! Reference not found.' covered the bottom of the first page, obscuring the text that was supposed to be there. I have asked them to correct and resend, but I’m not sure when they’ll get to it.
Cordelia’s friends persuaded her to sit at the dining room table for a couple of hours, playing games. We used a stool with a folded blanket on it to prop up her leg since having it hang down hurts a lot. They played Apples to Apples, either Jr or Disney (I wasn’t paying attention to that) and Pandemic. They actually won the Pandemic game.
Cordelia tried to go out the front door yesterday afternoon with me behind her and her friend in front of her, but she got too scared that she’d fall and didn’t make it even onto the porch. There’s a step down from both the front door and the back door to their respective porches. I haven’t measured, but my best guess is between two and four inches. I’m pretty sure that Cordelia will feel safer doing this with Scott because she knows that he can carry her if he has to. Scott spent a good bit of time last night, after we were in our bedroom, looking at instructional videos online to find out how to use crutches on stairs.
I emailed Cordelia’s teachers and principal to ask if we could have a meeting before Cordelia faces a full day at school. Cordelia has asked for that, and I think it’s reasonable and shouldn’t take very long. She just wants to talk to her two main teachers (or even just her advisory teacher) to be sure that we have a plan for things like where she’ll sit in each class and who’ll carry her stuff from class to class and whether or not she gets an elevator key, and, if not, how she will reach the person who needs to give her access to the elevator when she needs him. Cordelia thought we could do the meeting before school on Wednesday, but I also suggested after school on Tuesday. The teachers may not go for after school because they’ll be coming off of the over night field trip, but if they’re willing, I think it would be better not to have the deadline of school starting hanging over the conversation.
Also, when I got up to give Cordelia medicine at 7:00, my left ankle (so not the one I injured last year) hurt a good bit. That kept me from getting back to sleep between then and when Cordelia needed me to help her get to the bathroom. It mostly is hurting at rest and doesn’t seem to be worse when I put weight on it, but it feels like it should hurt more when I put weight on it, if that makes sense. I’ve wrapped it to see if that helps at all.
Cordelia’s pediatrician’s office sent me an electronic copy of the form for the school so that they’ll give Cordelia medication in the middle of the day. Unfortunately, there were two problems. The first was that the dose was wildly wrong. It said 4 milliliters when it should have said either 20 milliliters or 4 teaspoons. The second problem was that the words 'Error! Reference not found.' covered the bottom of the first page, obscuring the text that was supposed to be there. I have asked them to correct and resend, but I’m not sure when they’ll get to it.
Cordelia’s friends persuaded her to sit at the dining room table for a couple of hours, playing games. We used a stool with a folded blanket on it to prop up her leg since having it hang down hurts a lot. They played Apples to Apples, either Jr or Disney (I wasn’t paying attention to that) and Pandemic. They actually won the Pandemic game.
Cordelia tried to go out the front door yesterday afternoon with me behind her and her friend in front of her, but she got too scared that she’d fall and didn’t make it even onto the porch. There’s a step down from both the front door and the back door to their respective porches. I haven’t measured, but my best guess is between two and four inches. I’m pretty sure that Cordelia will feel safer doing this with Scott because she knows that he can carry her if he has to. Scott spent a good bit of time last night, after we were in our bedroom, looking at instructional videos online to find out how to use crutches on stairs.
I emailed Cordelia’s teachers and principal to ask if we could have a meeting before Cordelia faces a full day at school. Cordelia has asked for that, and I think it’s reasonable and shouldn’t take very long. She just wants to talk to her two main teachers (or even just her advisory teacher) to be sure that we have a plan for things like where she’ll sit in each class and who’ll carry her stuff from class to class and whether or not she gets an elevator key, and, if not, how she will reach the person who needs to give her access to the elevator when she needs him. Cordelia thought we could do the meeting before school on Wednesday, but I also suggested after school on Tuesday. The teachers may not go for after school because they’ll be coming off of the over night field trip, but if they’re willing, I think it would be better not to have the deadline of school starting hanging over the conversation.
Re: Separately, the stairs.
Date: 2016-03-27 05:31 pm (UTC)Our school PICKUP was exactly a mile from the house for a kindergartener, who went to a magnet school, so the district rule was to pick up at "local" address- and because we were at the mile limit, it was the school he should have attended-- BUT they insisted a parent or guardian be present at both pickup and dropoff.
I had a todder in tow. I have CP and waking issues. NOW major walking issues. So I was walking four MILES each day, and the school was NOT changing the pickup. I fought all the way up the state Ed ladder, bussing, calls to my representatives for a MONTH, but it was a permanent change in sites- to the church a block away from my house.
BUT-- AND I KID YOU NOT-- I could've had HIS site and bus temporarily changed due to an injury (like he broke a leg) inside a week. They had arrangements in place for that, but WOULD NOT renew after the temporary time limit expired.
BTW, tell Cordelia that this story is one the oldest dosn't WANT me to tell unless it's important. THIS is important. SHE is important, and I can picture you riding up the phone and email flags until you get what you need for her. Fortunately, BEING a temporary change may make this much simpler for you.
AND, not being in California.