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Aug. 25th, 2018 11:22 pmMy body is being thoroughly uncooperative. I haven't had a period this bad since the first one or two after I got off the Tamoxifen last year. I'm pretty sure that part of the problem is that I didn't plan my food properly in terms of having access to what I needed actually in our room. I kind of ran out of spoons on the planning side, and most of what I planned needed a freezer or a can opener.
Scott keeps running aground, regarding my food needs/scheduling, on the fact that I'm still figuring out what works and what doesn't and on the fact that my needs change depending on other factors like where I am in my cycle and what I expect to need to do in the next few hours and what time of day it is. I told the extended family that I'd manage my own meals because there really is no way anybody but me can track everything I can't have.
Last night, my sister-in-law (the one from Seattle, not the local one) took great pains to try to cook a meal I could eat. She just didn't ask me and therefore had an out of date list. Everything was cooked with oil. I ate it for breakfast this morning. Dinner for me was instant oatmeal and some shredded chicken with ranch dressing (not the oatmeal and the chicken together). Everyone else had roasted potatoes, grilled salmon, stir fried pea pods, and grilled asparagus. There were portions of each for me seasoned just with salt and rosemary.
Sadly, there was olive oil even on the veggies. Salmon would be a risk at dinner time, but without the oil, I could have microwaved the veggies a bit and eaten those. There were carrot sticks and celery sticks on the table, but they were jumbled in together. I've discovered this week that carrots that have been stored in the same container as celery make me sick.
Scott set aside yesterday afternoon for me, but I was too sick to do much. I slept a lot of the day. We went for a brief walk after dinner. It was sprinkling when we started and raining moderately hard when we headed back about fifteen minutes later. It wasn't much of a walk, but it was very nice to get some time out. I'd have liked to walk longer.
Scott's brother's family flies out of an airport half an hour away at about 5 a.m. tomorrow. They'll be taking our 16 year old niece's car and leaving it at the airport to be picked up at a saner time of morning. We all have to be out of here at 10.
Scott and I have had a couple of talks. I'm not sure that he completely understands that the underlying issue isn't my health so much as the ways that my disabilities mean that I'm dependent on him and on other people. He doesn't notice it because it's alien to his experience and because working full time eats his time and energy.
I think he and I need to have some talks. It's just hard to do when we have zero privacy at home. This is not something that can happen when Cordelia is around, and I don't see it working well when we're strolling through our neighborhood or any of the other out of the house options. I'd opt for text, but Scott has a very difficult time with writing due to a learning disability. He's fine with reading, but he takes a paragraph or two. I'd be monologuing.
I might be monologuing anyway. We don't have the same approaches to figuring things out. Writing/talking and finding things through that is my approach. He's more prone to fixing on something as The Problem and fixing that. If the problem isn't concrete, he can't address it. Fix one thing then go on to the next. If something can't be fixed, everything breaks down because he doesn't have a script for how to deal with that.
Scott keeps running aground, regarding my food needs/scheduling, on the fact that I'm still figuring out what works and what doesn't and on the fact that my needs change depending on other factors like where I am in my cycle and what I expect to need to do in the next few hours and what time of day it is. I told the extended family that I'd manage my own meals because there really is no way anybody but me can track everything I can't have.
Last night, my sister-in-law (the one from Seattle, not the local one) took great pains to try to cook a meal I could eat. She just didn't ask me and therefore had an out of date list. Everything was cooked with oil. I ate it for breakfast this morning. Dinner for me was instant oatmeal and some shredded chicken with ranch dressing (not the oatmeal and the chicken together). Everyone else had roasted potatoes, grilled salmon, stir fried pea pods, and grilled asparagus. There were portions of each for me seasoned just with salt and rosemary.
Sadly, there was olive oil even on the veggies. Salmon would be a risk at dinner time, but without the oil, I could have microwaved the veggies a bit and eaten those. There were carrot sticks and celery sticks on the table, but they were jumbled in together. I've discovered this week that carrots that have been stored in the same container as celery make me sick.
Scott set aside yesterday afternoon for me, but I was too sick to do much. I slept a lot of the day. We went for a brief walk after dinner. It was sprinkling when we started and raining moderately hard when we headed back about fifteen minutes later. It wasn't much of a walk, but it was very nice to get some time out. I'd have liked to walk longer.
Scott's brother's family flies out of an airport half an hour away at about 5 a.m. tomorrow. They'll be taking our 16 year old niece's car and leaving it at the airport to be picked up at a saner time of morning. We all have to be out of here at 10.
Scott and I have had a couple of talks. I'm not sure that he completely understands that the underlying issue isn't my health so much as the ways that my disabilities mean that I'm dependent on him and on other people. He doesn't notice it because it's alien to his experience and because working full time eats his time and energy.
I think he and I need to have some talks. It's just hard to do when we have zero privacy at home. This is not something that can happen when Cordelia is around, and I don't see it working well when we're strolling through our neighborhood or any of the other out of the house options. I'd opt for text, but Scott has a very difficult time with writing due to a learning disability. He's fine with reading, but he takes a paragraph or two. I'd be monologuing.
I might be monologuing anyway. We don't have the same approaches to figuring things out. Writing/talking and finding things through that is my approach. He's more prone to fixing on something as The Problem and fixing that. If the problem isn't concrete, he can't address it. Fix one thing then go on to the next. If something can't be fixed, everything breaks down because he doesn't have a script for how to deal with that.
