(no subject)
Jun. 20th, 2018 08:43 amI tried to explain the feeling of losing my thoughts to Scott and to the medical folks Monday night. They didn't get it, but my sister did when I told her yesterday morning. It's as if I'm losing myself in layers. I picture it as hollowing from the inside out with the most important things as the outermost layers. I think that having the important things at the outer edge is the part that confuses other people.
I know the last three layers--
One is the ability to string together words in my head to create story/narrative and to converse in casual settings. This goes first.
The next, further out, is my face to face social interface (phone calls go away earlier) for strangers which is a self defense thing. Being fat, 51, female, and disabled, this is a huge thing because I need things from people who are prone to looking at me and dismissing me. This is both the ability to be assertive and the ability to be friendly-- cab drivers, staff at the grocery store, nurses, Cordelia's teachers, people like that.
The last and outermost is taking care of Cordelia. Yesterday, I could tell a difference between my thinking and mannerisms with regard to anything having to do with her. Last night was her first driver's ed class, and I checked the paperwork, made sure it was all there and filled out and that she and Scott left (me in the waiting room at the ER) at the right time. I could do that when I couldn't assign a number to my pain because the 0-10 pain scale doesn't parse well for me.
I think I view this as a deterioration from the inside out because the stuff I keep longest has to do with interfacing with things outside my head.
I know the last three layers--
One is the ability to string together words in my head to create story/narrative and to converse in casual settings. This goes first.
The next, further out, is my face to face social interface (phone calls go away earlier) for strangers which is a self defense thing. Being fat, 51, female, and disabled, this is a huge thing because I need things from people who are prone to looking at me and dismissing me. This is both the ability to be assertive and the ability to be friendly-- cab drivers, staff at the grocery store, nurses, Cordelia's teachers, people like that.
The last and outermost is taking care of Cordelia. Yesterday, I could tell a difference between my thinking and mannerisms with regard to anything having to do with her. Last night was her first driver's ed class, and I checked the paperwork, made sure it was all there and filled out and that she and Scott left (me in the waiting room at the ER) at the right time. I could do that when I couldn't assign a number to my pain because the 0-10 pain scale doesn't parse well for me.
I think I view this as a deterioration from the inside out because the stuff I keep longest has to do with interfacing with things outside my head.
no subject
Date: 2018-06-20 09:46 pm (UTC)----------
I think when most people think of losing capabilities, they think of the fluffy, outer, less-important stuff going away first, and the most central core of a person's self being on the inside and lasting the longest. I see where your description is coming from, and I also see why your description doesn't fit together with other people's model looks like.
no subject
Date: 2018-06-21 10:22 pm (UTC)Well, and Cordelia is more important to me than any of the rest of it.
no subject
Date: 2018-06-21 01:38 pm (UTC)no subject
Date: 2018-06-21 10:22 pm (UTC)