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Apr. 1st, 2017 10:55 amI think maybe my back is starting to get better. I really hope that that’s the case because this pain thing sucks.
My right hand, however, is getting worse. I had to ask Scott to help me brush my hair this morning, and there have been days when I couldn’t floss. The giant braces might help the hair brushing problem, but they also might not because they make gripping and turning things the way I need to too difficult. I mentioned maybe chopping my hair, and Scott thought it might help, but I’m not sure it would because most of the knots I wake up with are high up on my head. I think I’d have to get my head shaved to avoid them.
I also don’t want to do something as radical as chopping off my hair until I know whether or not the problem is as simple to solve as stopping the Tamoxifen. I need to talk to my doctors about that. I’m not sure if it’s something I can stop for a while to see if the pain problems get better and go back to if the pain doesn’t improve. At this point, I’m pretty certain that the Tamoxifen is not worthwhile if it’s giving me this much pain— Five years of taking it will decrease my risk of recurrence by 4%, and the oncologist said that even a year would decrease the risk a bit. I’ve been taking the stuff since December of 2015.
4% is not worth five years of pain. (The baseline risk for me is 10%.)
I need to get Scott to empty the clean dishes out of the bottom rack of the dishwasher (I did most of the top) and to put away the things that require bending. I need him to bring the clean laundry and the clean sheets upstairs. I also asked him two days ago to look for something in the basement (I have a reacher/grabber thing that will let me pick up some things without bending. I’m 90% sure it fell down the basement stairs a few months back, so it’s down there somewhere).
Today is one of the days of the year when going to downtown or campus is decidedly unwise. It’s the Hash Bash, and there will be thousands of people wandering around (and taking up the parking spaces).
Scott’s very conservative aunt just friended me on Facebook. Ah, well, if she hadn’t realized that I’m a flaming liberal, she wasn’t paying attention. And it’s not like I post much. One surprise is that one of my aunts has turned out to be a lot more liberal than I thought she was— She’s reblogging Bernie Sanders stuff. I mean 80% of what she posts is cute dog pictures and pleas for people to adopt/sponsor dogs, but there is some political stuff, all things I can get on board with.
Today’s goal is to finish and return a graphic novel that’s due today and can’t be renewed. Then I work on the Korean DVD that’s due tomorrow and can’t be renewed. Then I write. I would like to watch some things with Scott in the living room, but I still can’t sit there for more than about fifteen minutes at a time without my back feeling worse so not today.
I talked to Scott’s mother yesterday and to my step-father. My mother was in Florida through some time yesterday in order to sell her father’s house, so I didn’t actually talk to her. My step-father says she’ll only be in Michigan for a week in April. I’d been under the impression that it would be much longer than that. I guess I can’t count on seeing her. Pity she’s not up here this week. Both of them will come north some time in May, after my step-father’s semester ends.
My right hand, however, is getting worse. I had to ask Scott to help me brush my hair this morning, and there have been days when I couldn’t floss. The giant braces might help the hair brushing problem, but they also might not because they make gripping and turning things the way I need to too difficult. I mentioned maybe chopping my hair, and Scott thought it might help, but I’m not sure it would because most of the knots I wake up with are high up on my head. I think I’d have to get my head shaved to avoid them.
I also don’t want to do something as radical as chopping off my hair until I know whether or not the problem is as simple to solve as stopping the Tamoxifen. I need to talk to my doctors about that. I’m not sure if it’s something I can stop for a while to see if the pain problems get better and go back to if the pain doesn’t improve. At this point, I’m pretty certain that the Tamoxifen is not worthwhile if it’s giving me this much pain— Five years of taking it will decrease my risk of recurrence by 4%, and the oncologist said that even a year would decrease the risk a bit. I’ve been taking the stuff since December of 2015.
4% is not worth five years of pain. (The baseline risk for me is 10%.)
I need to get Scott to empty the clean dishes out of the bottom rack of the dishwasher (I did most of the top) and to put away the things that require bending. I need him to bring the clean laundry and the clean sheets upstairs. I also asked him two days ago to look for something in the basement (I have a reacher/grabber thing that will let me pick up some things without bending. I’m 90% sure it fell down the basement stairs a few months back, so it’s down there somewhere).
Today is one of the days of the year when going to downtown or campus is decidedly unwise. It’s the Hash Bash, and there will be thousands of people wandering around (and taking up the parking spaces).
Scott’s very conservative aunt just friended me on Facebook. Ah, well, if she hadn’t realized that I’m a flaming liberal, she wasn’t paying attention. And it’s not like I post much. One surprise is that one of my aunts has turned out to be a lot more liberal than I thought she was— She’s reblogging Bernie Sanders stuff. I mean 80% of what she posts is cute dog pictures and pleas for people to adopt/sponsor dogs, but there is some political stuff, all things I can get on board with.
Today’s goal is to finish and return a graphic novel that’s due today and can’t be renewed. Then I work on the Korean DVD that’s due tomorrow and can’t be renewed. Then I write. I would like to watch some things with Scott in the living room, but I still can’t sit there for more than about fifteen minutes at a time without my back feeling worse so not today.
I talked to Scott’s mother yesterday and to my step-father. My mother was in Florida through some time yesterday in order to sell her father’s house, so I didn’t actually talk to her. My step-father says she’ll only be in Michigan for a week in April. I’d been under the impression that it would be much longer than that. I guess I can’t count on seeing her. Pity she’s not up here this week. Both of them will come north some time in May, after my step-father’s semester ends.
